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finally a small glimmer of hope!
- By dizzybee · New reply November 21, 2009
- Journal · 7 replies
- went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...
bilateral adrenalectomy- has any one had this?
- By motorgirl85 · New reply November 19, 2009
- Discussion in Living with an endocrine system disorder · 1 reply
- Hi everyone, In 2004 I was diagnosed with Cushings Syndrom and had to have a bilateral adrenalectomy. So now I'm on hormone supplements and I've been desperatly looking for someone who I can talk to about ...
my NIH experience
- By dizzybee · New reply November 17, 2009
- Journal · 40 replies
- THIS IS MY EXPERIENCE -- I HAVE TRIED TO LEAVE THE DOCTORS' INVOLVED NAMES OUT SO AS NOT TO CAUSE ISSUES -- AGAIN, THIS IS WHAT HAPPENED TO ME. Well, where to start--nurse took my vitals and some allergy ...
Chapter 2 - My Mom's surgery in 1996
- By motorgirl85 · New reply November 15, 2009
- Journal · 4 replies
- This will not be a very detailed recollection because its already been 13 years ago. Two years after my first surgery my Mom came down with a flu that she just didn't seem to be able to overcome. She ...
Chapter 1 - My first surgery in 1994
- By motorgirl85 · Posted November 10, 2009
- Journal · 0 replies
- When I was an 8 year-old and going on 9, I remember a time in which I was vomiting a lot and complaining of a stomach ache all the time. So my Mom took me to my pediatrician. After checking my stomach ...
Introduction
- By motorgirl85 · Posted November 10, 2009
- Journal · 0 replies
- Hi my name is Jennifer Woods, I would like to say that I'm your typical 24 year old but I'm not due to Carney Complex (also called Carney Syndrome). I would like to share my personal and medical history ...
prednisone withdrawal challenge
- By fading2fast · Posted November 9, 2009
- Discussion in Symptoms · 0 replies
- After taking prednisone for several years I became Cushingoid and gradually tapered off. My endo tested me and said my adrenals would resume functioning. BUT after 5 weeks steroid free and hours of agonizing ...
Out Damn Spot!
- By dizzybee · New reply November 4, 2009
- Journal · 6 replies
- have been having trigeminal neuralgia (fancy word for pain from Hades) since around Sept. 23 -- been to ER twice one shot of dilaudel and next time a shot of morphine. Finally got an MRI -- i basically ...
Lithium - is it really the Gold standard for depression/bipolar d/o?
- By Slappy7606 · New reply October 21, 2009
- Discussion in Treatment · 6 replies
- I'm 25 y/o and diagnosed with bipolar disorder. I was recently perscribed Lithium because my MD said she was running out of options. She stated that Lithium is the Gold standard for bipolar and depression ...
Prolactinoma & Dostinex (infertility)
- By MIAG2 · New reply October 20, 2009
- Discussion in My diagnosis · 2 replies
- I am 38 and have been diagnosed with a pituitary microadenoma (benign tumor) which causes my prolactin levels to be elevated. Since October 2007 I have been taking Dostinex (Cabergoline) .05 mg per week ...
THIS IS GETTING CRAZY!!!
- By so-tired · New reply October 17, 2009
- Journal · 12 replies
- I have 2 sons, 38 & 28 yrs old. They have not felt well for a long time. After going from doctor to doctor, we finally got a diagnoses for both of them. My oldest has a Pituitary Tumor, so small, that ...
I CAN HARDLY WALK TODAY
- By so-tired · New reply October 13, 2009
- Journal · 27 replies
- I HAVE SO MANY THINGS WRONG WITH ME, BUT TODAY IS REALLY BAD. I AM SO WEAK, AND CAN HARDLY WALK! ANY IDEAS AS TO WHAT THIS COULD BE? I'M SCARED! PLEASE, REPLY? LINDA (SO TIRED ...
Ava's brain surgery, and other stuff
- By Valarie · Posted September 15, 2009
- Journal · 0 replies
- Well the doctors office has scheduled Ava's brain surgery for her Cranio, it is going to be December 9th. We will be in Boise Idaho for a week. Well when I say we, I mean Ava and I, the rest of the family ...
Neonatal Graves...what we have learned
- By Valarie · New reply September 12, 2009
- Journal · 1 reply
- Well since the twins were born I have learned alot more about this disease. I thought I knew alot when our 3 year old had it, but I was wrong. Ava has Craniosynostosis, and hydrocephalus, which is actually ...
Ava
- By Valarie · Posted August 28, 2009
- Journal · 0 replies
- Ava had physical therapy yesterday, and right before the PT appointment stood for about 15seconds for the first time. I was so happy, but then the PT lady was here and she stood for alot longer. It's ...
Ava and Ella and doctors
- By Valarie · Posted August 26, 2009
- Journal · 0 replies
- Well our daughter (faternal twins)were born 17 months ago, they were born with a really rare disease called Neonatal Graves disease. This disease had done alot to one of the twins, her name is Ava. She ...
Multiple Endorcrein Neoplasms
- By pbjtime987 · New reply August 23, 2009
- Discussion in My diagnosis · 2 replies
- I was just wondering if there is anyone else out there that has been told they have M.E.N. I have type one and it is a rare disorder and I have never talked to anyone outside of my family that has it ...
25 y/o F just diagnosed with hypothyroid
- By Slappy7606 · New reply August 16, 2009
- Journal · 19 replies
- Im 25 y/o female 5'2" and weight 132lbs. I've always had lots of energy but there are times when im really really tired for months. I just went to the MD and she said my thyroid isnt functioning at full ...
Guestbooks are now live!
- By TeamInspire · New reply August 15, 2009
- Journal · 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
Endocrine Disorder, but not diagnosed yet
