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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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finally a small glimmer of hope!
- By dizzybee · Posted November 17, 2009
- Journal · 7 replies
- went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...
Chapter 2 - My Mom's surgery in 1996
- By motorgirl85 · Posted November 11, 2009
- Journal · 4 replies
- This will not be a very detailed recollection because its already been 13 years ago. Two years after my first surgery my Mom came down with a flu that she just didn't seem to be able to overcome. She ...
bilateral adrenalectomy- has any one had this?
- By motorgirl85 · Posted November 11, 2009
- Discussion in Living with an endocrine system disorder · 1 reply
- Hi everyone, In 2004 I was diagnosed with Cushings Syndrom and had to have a bilateral adrenalectomy. So now I'm on hormone supplements and I've been desperatly looking for someone who I can talk to about ...
Chapter 1 - My first surgery in 1994
- By motorgirl85 · Posted November 10, 2009
- Journal · 0 replies
- When I was an 8 year-old and going on 9, I remember a time in which I was vomiting a lot and complaining of a stomach ache all the time. So my Mom took me to my pediatrician. After checking my stomach ...
Introduction
- By motorgirl85 · Posted November 10, 2009
- Journal · 0 replies
- Hi my name is Jennifer Woods, I would like to say that I'm your typical 24 year old but I'm not due to Carney Complex (also called Carney Syndrome). I would like to share my personal and medical history ...
prednisone withdrawal challenge
- By fading2fast · Posted November 9, 2009
- Discussion in Symptoms · 0 replies
- After taking prednisone for several years I became Cushingoid and gradually tapered off. My endo tested me and said my adrenals would resume functioning. BUT after 5 weeks steroid free and hours of agonizing ...
Out Damn Spot!
- By dizzybee · Posted October 31, 2009
- Journal · 6 replies
- have been having trigeminal neuralgia (fancy word for pain from Hades) since around Sept. 23 -- been to ER twice one shot of dilaudel and next time a shot of morphine. Finally got an MRI -- i basically ...
I CAN HARDLY WALK TODAY
- By so-tired · Posted October 7, 2009
- Journal · 27 replies
- I HAVE SO MANY THINGS WRONG WITH ME, BUT TODAY IS REALLY BAD. I AM SO WEAK, AND CAN HARDLY WALK! ANY IDEAS AS TO WHAT THIS COULD BE? I'M SCARED! PLEASE, REPLY? LINDA (SO TIRED ...
my NIH experience
- By dizzybee · Posted October 2, 2009
- Journal · 40 replies
- THIS IS MY EXPERIENCE -- I HAVE TRIED TO LEAVE THE DOCTORS' INVOLVED NAMES OUT SO AS NOT TO CAUSE ISSUES -- AGAIN, THIS IS WHAT HAPPENED TO ME. Well, where to start--nurse took my vitals and some allergy ...
THIS IS GETTING CRAZY!!!
- By so-tired · Posted September 27, 2009
- Journal · 12 replies
- I have 2 sons, 38 & 28 yrs old. They have not felt well for a long time. After going from doctor to doctor, we finally got a diagnoses for both of them. My oldest has a Pituitary Tumor, so small, that ...
Ava's brain surgery, and other stuff
- By Valarie · Posted September 15, 2009
- Journal · 0 replies
- Well the doctors office has scheduled Ava's brain surgery for her Cranio, it is going to be December 9th. We will be in Boise Idaho for a week. Well when I say we, I mean Ava and I, the rest of the family ...
Neonatal Graves...what we have learned
- By Valarie · Posted September 12, 2009
- Journal · 1 reply
- Well since the twins were born I have learned alot more about this disease. I thought I knew alot when our 3 year old had it, but I was wrong. Ava has Craniosynostosis, and hydrocephalus, which is actually ...
Ava
- By Valarie · Posted August 28, 2009
- Journal · 0 replies
- Ava had physical therapy yesterday, and right before the PT appointment stood for about 15seconds for the first time. I was so happy, but then the PT lady was here and she stood for alot longer. It's ...
Ava and Ella and doctors
- By Valarie · Posted August 26, 2009
- Journal · 0 replies
- Well our daughter (faternal twins)were born 17 months ago, they were born with a really rare disease called Neonatal Graves disease. This disease had done alot to one of the twins, her name is Ava. She ...
Multiple Endorcrein Neoplasms
- By pbjtime987 · Posted August 17, 2009
- Discussion in My diagnosis · 2 replies
- I was just wondering if there is anyone else out there that has been told they have M.E.N. I have type one and it is a rare disorder and I have never talked to anyone outside of my family that has it ...
Scheduled maintenance this evening
- By TeamInspire · Posted August 10, 2009
- Journal · 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
Share your story via video!
- By TeamInspire · Posted June 15, 2009
- Journal · 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Thyroid Cancer and Paraganglioma
- By gtghawaii · Posted June 12, 2009
- Discussion in My diagnosis · 1 reply
- I started having problems with my voice in 2002 and went to an ENT who diagnosed a paralyzed vocal chord and performed a collagen injection. At the time they could not determine the cause. The injection ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · Posted June 10, 2009
- Journal · 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Here we go again....
- By terpgirl · Posted June 3, 2009
- Journal · 1 reply
- I was diagnosed with PCOS awhile ago. I've been on the Pill for four months now and it finally seemed to be working. About a month ago, my doctor switched my Pill to a different brand. I've been taking ...
