Journals

Yeah!!! -- a little good news.....

dizzybee
  • By dizzybee · Posted November 19, 2008
  • 10 replies
  • I finally got an appt with a geneticist on 1/13. This is just a meeting to see if I need genetic testing, but at least it's a start ...

My body is doing what it wants. I have no control.

terpgirl
  • By terpgirl · Posted November 14, 2008
  • 0 replies
  • Today was a good day because I somehow kept my emotions in check. Ever since I was "late" a couple months ago, I've been a wreck. I thought I was pregnant. I wish I was, especially knowing I may not be ...

PET/CT Scans

dizzybee
  • By dizzybee · Posted November 14, 2008
  • 6 replies
  • Has anyone had a PET & CT with contrast and radioactive tracer and felt sick afterwards? I had one done on 10/24 and every since then I've been very weak, nauseous and just don't feel well. I thought ...

Part Duex - Update

dizzybee
  • By dizzybee · Posted November 9, 2008
  • 5 replies
  • As you may have read, I have dysautonomia which is a dysfunction of your autonomic system (everything in your body that works without you thinking about it, brain, heart, breathing, bp, bowels, kidneys ...

My journey, thus far....

dizzybee
  • By dizzybee · Posted November 9, 2008
  • 3 replies
  • I am a 45 yo white female, my mother was almost 35 when I was born and she smoked throughout her pregnancy. My brother had mumps and german measles, which my mother exposed me to, but I never got. I had ...

Update on William with the pancreas problem

KathyG
  • By KathyG · Posted September 9, 2008
  • 6 replies
  • Today we went to see his specialist. We found out today that he IS NOT going to send him to Duke University afterall. He is going to talk to a CF Pulmonary Doctor and try to get the DNA screening for ...

UPDATE.....URGENT...NEED INFO ON 6YR OLD WITH PANCREAS PROBLEM

KathyG
  • By KathyG · Posted September 3, 2008
  • 9 replies
  • Today I had to take my 6 yr old grandson to the emergency dept. He has been sick for 2 days. In my earlier post I explained that he has a pancreas problem and is taking enzymes. About 5 weeks ago the ...

Need medical info for 6 yr old with pancreas problem?

KathyG
  • By KathyG · Posted August 24, 2008
  • 4 replies
  • My 6yr. old grandson has been sick since he was 6 months old with respitory problems. He also developed a food allergy very young. Dr's said that he had Asthma. It kept getting worse over time and he ...

My daughter Alina

heidisosa
  • By heidisosa · Posted July 30, 2008
  • 2 replies
  • My daughter is 15 years old. At age 2 she was diagnosed with hypoparathyroidism. At age 3 she was then diagnosed with Addisons disease. At age 11 she was diagnosed with alopecia areata. At age 13 she ...

25 y/o F just diagnosed with hypothyroid

Slappy7606
  • By Slappy7606 · Posted July 2, 2008
  • 12 replies
  • Im 25 y/o female 5'2" and weight 132lbs. I've always had lots of energy but there are times when im really really tired for months. I just went to the MD and she said my thyroid isnt functioning at full ...

Improvements to the message system are complete

Walter
  • By Walter · Posted June 10, 2008
  • 14 replies
  • Hello everyone. Just a quick note to let you know that the improvements to the message system that I wrote about previously are complete. You can check them out now. You'll notice that we've grouped your ...

Upcoming improvements to the messaging system

Walter
  • By Walter · Posted June 1, 2008
  • 23 replies
  • Hello everyone. I'm writing to let you know about some long overdue improvements that we'll be making to this site's messaging system later this week. The messages section is the most frequently visited ...

Why are we here?

Brian
  • By Brian · Posted April 11, 2008
  • 124 replies
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

Welcome from TeamInspire!

TeamInspire
  • By TeamInspire · Posted March 13, 2008
  • 35 replies
  • Hello, old friends and new. Today is a big day for us! We have made numerous improvements to your community, most that were suggestions from you. As you can see the site is very different then before ...

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