Ava had physical therapy yesterday, and right before the PT appointment stood for about 15seconds for the first time. I was so happy, but then the PT lady was here and she stood for alot longer. It's been a tuff road for her, but she is going to be ok I think. She is 17 months old, and still isn't walking. Oh well, she still doesn't eat real table food either, she has a thing with the way it feels I think. She will eat things like ceral(dry)and cheetos, and dried bread, any I have gotten her to eat a sandwich with yogurt spread twice, but she won't eat anything else other than baby food. Her sister Ella loves table food, and would eat all day, but not Ava, she actually doesn't seem to enjoy eating at all. She is now at 16 pounds even and I am glad, but it has taken several months for the last few ounces.
We have been told that Ava has a sensory issue, but I am not real sure that this is a true blue problem. All babies have problesm with things that feel funny to them. One may not like a vacuum, the other may not like the sound of a car. I don't know I seem to think that this part is more of a made up thing. That is like babies that don't like to take a bath, some do some don't. Now all of a sudden they have come up with a name for it, and I kinda think it is a bit on the bogus side. I think that Ava will get use to it, as long as we continue to exspose her to it. It was kinda like the sandbox with her. She would scream the first time we put her in it, then we sat there for about 30 minutes playing with her, and covering her feet, and putting sand in her hands, for her to come to the conclusion she liked it.
Each day she is getting so much stronger, and I know that she is slower in progress than her twin sister Ella, but she is getting it.
She is going to be having brain surgery again in a few months, and I am hoping that we don't loose some of the steps forward she has gained when she has to have the surgery. She did really well the last time, so I am hoping for the same type of improvements. It is really hard to take her in for these brain surgeries. I get so scared, although I trust her doctors, there has been so many things go wrong in the past with things, that I am always worried. The last time I had to take her in, I took her in her car seat carrier, and found that having to take it out to the car empty made me feel like I wasn't going to leave with her. I cried so hard. It's hard! I have to be the only parent with her when she going in for surgery, and that stinks.
Well anyway enough for today,
Valarie



