I started having problems with my voice in 2002 and went to an ENT who diagnosed a paralyzed vocal chord and performed a collagen injection. At the time they could not determine the cause. The injection wore off and I decided to go to UCLA in 2008 for a more permanent solution. I was really hopeful of getting at least some of my vocal function back. Instead, over the course of the past year I've had a CT, Pet CT, MRI, FNA and MRA tests done and finally a diagnosis. I have three Paraganliomas, two are bilateral carotid tumors and the third is located in my trachea. On top of that I also have Thyroid Cancer. I had a total Thyroidectomy last month and need to do Radioactive Iodine treatment. When I was told about the paraganglioma's I was told that they are benign but because of their locations in-operable. The doctor said I could "choose" to have radiation therapy. I went to see the oncologist yesterday and he told me I have no choice I have to have radiation therapy done or I will have more complications. I then went to see the ENT and he told me they won't be able to correct my vocal chord because of the radiation. I'm really disheartened and depressed. You never know how much you depend on speaking until you can't do it anymore. I could really use some encouragement.




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