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Life after encephalitis
How has encephalitis changed your life?
Adults who had Encephalitis as a young child??
- By LadyJaneG · New reply November 2, 2009
- 17 replies
- I'm very curious in knowing if anyone else had E as a young child and is now much older? What lasting effects have resulted? I'm soon to be 49. I had E when I was only 5. I have complex partial seizures ...
Timeframe for Recovery
- By concrndsisinlaw · New reply October 31, 2009
- 11 replies
- Hi Everyone, I went and saw my brother-in-law today at the rehab hospital he was moved to this past Sunday. I was really surprised at the difference from last week. He appears to be doing much better ...
ADEM Study seeking participants
- By WendyStation · Posted October 31, 2009
- 0 replies
- The Transverse Myelitis Association (TMA) has kindly contacted us to share information on a current ADEM Study which is seeking participants. Thank you for sharing, Sandy Siegel ...
Ingrid update...
- By WendyStation · New reply October 30, 2009
- 7 replies
- Ingrid writes... Ingrid writes... I am being moved to a different place tomorrow. I should be there around 10 days. I won't have a computer at my bed, I'll have to go to the visitor's area, but that's ...
Just want you all to know I won't be around for a few days
- By IngridGuerci · New reply October 30, 2009
- 12 replies
- On Monday I will be going into the hospital for knee replacement surgery; I had a car accident in 1977 that did a lot of damage to my left leg, especially my knee but there was no high tech procedures ...
Seasonal and H1N1 Vaccines and Encephalitis
- By cherrienb · New reply October 28, 2009
- 5 replies
- My son was diagnosed with encephalitis in 2006, cause unknown. At that time, he was told not to get the flu vaccine for 5 years as it could trigger a recurrence. With H1N1 and the seasonal flu looming ...
Hatfields and McCoys
- By maineicecube · New reply October 28, 2009
- 2 replies
- This is basically what my relationship with the Zoster Family feels like right now.... Last year, around this time mind you (September 22nd to be exact) I was hospitalized for a week with what appeared ...
Helping mom
- By KOL · New reply October 27, 2009
- 13 replies
- How can I help my mom recover faster from Encephalitis? 3 weeks after her diagnosis. KOL ...
Will my wife remember having encephalitis?
- By Anarchy_X · New reply October 27, 2009
- 22 replies
- Hello, my wife has been in the hospital for the past two weeks being treated for Herpes Encephalitis. They didn't think she would live, but has made a strong recovery starting over the past two days that ...
loss of taste,smell and appetite
- By misseaster13 · New reply October 26, 2009
- 15 replies
- my husband had e in april,after the initial physical worries,he is now experiencing the residual effects,has anyone lost their taste and smell,does it come back? i have tried stronger tasting food,if ...
FACES Program now available!
- By WendyStation · New reply October 26, 2009
- 3 replies
- Do you want a peek at what we will be doing at FACES? Want to print off our FACES Program? Click http://www.encephalitisglobal.org/FACES% 202009%20Program.doc to view! (If YOU would like to join us at ...
hair loss
- By plbubba · New reply October 26, 2009
- 15 replies
- I was wondering if anyone had problems with hair loss after having HSE. My Mother's hair is really coming out in places. She also has continued to scratch her head. She did this from the start and still ...
Pregnancy Post E
- By tkeys · New reply October 26, 2009
- 6 replies
- I have a question for people who are farther post-E than I am. I had (autoimmune) brainstem encephalitis starting in January 2009. I spent until mid March in the hospital, then did therapy outpatient ...
Dr. says " should recover from before" but speech can't confirm?
- By Anarchy_X · New reply October 23, 2009
- 9 replies
- I spoke with my wife's hospitalist who wanted as much info as to how my wife was before I took her to the ER, just two days after confusion and speech problems occured, and other medical info. She wanted ...
Autoimmune vs. Viral - Thoughts?
- By Dan_ · New reply October 23, 2009
- 6 replies
- If there are any medically informed people out there, I'd like their opinion on the following. Fifty percent of viral encephalitis cases go undiagnosed or are diagnosed as "nonspecific." Do you think ...
Reccurence in the eye??
- By tinydancer · New reply October 22, 2009
- 3 replies
- Well, 8 months without trouble we finally hit another hard spot. This week my bf had what docs believe to be a recurrence of the virus, in his eye. His retina began detaching and he has lost most of his ...
Flash backs from intensive care
- By Sandy_H · New reply October 19, 2009
- 2 replies
- Hi everyone, I have no actual memory of hospital but lately I've been wondering if my mind and body remembers how I felt while in intensive care. I remember when I came home from hospital I hated sleeping ...
Eye problems after intensive care
- By Sandy_H · New reply October 18, 2009
- 8 replies
- Dear Friends I have been having the occassional problem with the vision in one eye recently so I asked my Doctor. I was surprised when he said that it is common for people who have been in intensive care ...
So Angry!
- By SickOfBeingSick · New reply October 18, 2009
- 23 replies
- I had my neuro-psych consultation today after a full day of testing last week. I am so angry. It's been a year since the last case of meningitis. I pretty much knew the extent of the damage. The testing ...
fungous (mycotic) encephalitis
- By aldoween · New reply October 17, 2009
- 7 replies
- Good evening a all! And how about fungous (mycotic) encephalitis? Are there survivors ...
