Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

Life after encephalitis

How has encephalitis changed your life?

Didn't realize how lucky my wife was.

Anarchy_X
  • By Anarchy_X · New reply yesterday at 7:02 pm
  • 6 replies
  • I was talking to the infectious disease doctor who told me that the main reason my wifeis going to recover is because of the Acyclovir. He was telling me that compared to others, my wife looks great and ...

When does a normal feeling return?

KOL
  • By KOL · New reply yesterday at 9:27 am
  • 4 replies
  • Hello, My mom was diagnosed with HPE on October 2. She is living with me currently. Although she is much better, she says she doesn't feel well "normal" and looks dazed a lot. When did you all begin to ...

life after gross brain damage.

redantmom
  • By redantmom · New reply November 18, 2009
  • 5 replies
  • How many of you suffered gross brain damage and how did you learn to compesate and do you or they lead near normal lives. Our Neros say we can if we keep up the pace of therapy that we do , a very, very ...

herpes encephalitis

aldoween
  • By aldoween · New reply November 17, 2009
  • 27 replies
  • Hi, fiends! Are there peoples who had herpes encephalitis ...

Falling apart - broke my back!

countingsheep
  • By countingsheep · New reply November 17, 2009
  • 12 replies
  • I'm 7 years post E. One of my many neurological issues is that my brain can't control my blood pressure. Well, my bp dropped and I passed out on my hard tile floor. Broke my sacrum bone and possibly my ...

Do we still suffer the effects of Encephalitis even once we've "recovered?"

k833
  • By k833 · New reply November 14, 2009
  • 10 replies
  • Hey im new to this. Just joined and have no idea what im doing. But for years ive wondered if having encephalitis as a child caused me any long term effects that are still effecting me now??? If that ...

Brain receiving wrong messages !

Sandy_H
  • By Sandy_H · New reply November 13, 2009
  • 6 replies
  • Hi Friends, My Doctor gave me an interesting angle on messages to our brain that I'd like to share. We all concentrate on what messages the brain isn't getting but what about the messages the brain is ...

When do you know loved one is "back", wife coming home Wednesday

Anarchy_X
  • By Anarchy_X · New reply November 13, 2009
  • 14 replies
  • I see my wife making progress daily, especially since she's been on Risperdal since this past Monday, yet she still has the agitation, poor short-memory, hallucinations/delusions. She can now bath herself ...

Ingrid is home!

WendyStation
  • By WendyStation · New reply November 12, 2009
  • 10 replies
  • Ingrid is home! She writes... "Greetings everyone! My surgery went well. I was in the hospital from the 19th through the 23rd and on the 23rd got moved to a rehabilitation hospital. They did great work ...

H1N1 vaccine and post encephalitis patients

claudiachristine
  • By claudiachristine · New reply November 12, 2009
  • 12 replies
  • Can anyone please give me advise on whether I should vaccinate my son who is 1.5 years post E and is 7 years old. He has not had a flu shot since the E only a Hep A shot before a holiday, but I'm getting ...

why is speaking clearer than writing?

Anarchy_X
  • By Anarchy_X · New reply November 11, 2009
  • 10 replies
  • Just wonder if anyone else knows why my wife can speak - though sometimes doesn't make sense cause talking about strange things with strange words - yet she can't write most words correctly. They look ...

Does anyone see a pattern with recovery?

KOL
  • By KOL · New reply November 9, 2009
  • 9 replies
  • My mother (73 years) is 5 weeks post Herpes Encephalitis diagnosis. She has days (times) when she seems very with it...alert...and acts fairly normal. Then other times she cannot remember what we talked ...

West Nile Virus (WNV)

Claire_52
  • By Claire_52 · New reply November 9, 2009
  • 13 replies
  • Rather than go into all of the residual effects I am experiencing as a result of WNV meninegal-encehphalitis, would like to know if anyone on this board had encephalitis as a result of West Nile I could ...

Electrolytes

writehanded
  • By writehanded · New reply November 9, 2009
  • 3 replies
  • So far...so good. I have been going to acupuncturist and chiropractor for some time as I have, since HSE, had numbness in both feet and my left hand. That, along with the headaches, fevers, memory issues ...

Did urinary tract infection delay recovery?

Anarchy_X
  • By Anarchy_X · New reply November 7, 2009
  • 3 replies
  • My wife got the infection while in ICU and since the infection can cause delirium I was wondering if anyone has experience with it delaying someone getting better. My wife did start getting a bit better ...

Any ideas on easing the lingering effects?

Ron57
  • By Ron57 · New reply November 7, 2009
  • 5 replies
  • I have vision, fatigue, tremors, balance, falling, etc. problems. Anyone find any treatments to help with these, especially fatigue and vision. -Ron ...

Avoid the flu and keep healthy!

WendyStation
  • By WendyStation · New reply November 5, 2009
  • 5 replies
  • In my opinion, the decision to take any flu vaccine is a decision to be made between each person and their doctor... the media have shared with us so many contrasting opinions, it's impossible to have ...

TIPS for coping at Christmas

LadyJaneG
  • By LadyJaneG · New reply November 3, 2009
  • 7 replies
  • I sure could use some tips for coping .....I find Christmas to soooooooooo stressful. And I just wish it wasn't like that. I have a wonderful supportive family. I really don't have much stresses in my ...

Adults who had Encephalitis as a young child??

LadyJaneG
  • By LadyJaneG · New reply November 2, 2009
  • 17 replies
  • I'm very curious in knowing if anyone else had E as a young child and is now much older? What lasting effects have resulted? I'm soon to be 49. I had E when I was only 5. I have complex partial seizures ...

Timeframe for Recovery

concrndsisinlaw
  • By concrndsisinlaw · New reply October 31, 2009
  • 11 replies
  • Hi Everyone, I went and saw my brother-in-law today at the rehab hospital he was moved to this past Sunday. I was really surprised at the difference from last week. He appears to be doing much better ...

Group leaders

You