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Life after encephalitis
How has encephalitis changed your life?
When do you know loved one is "back", wife coming home Wednesday
- By Anarchy_X · New reply 12:02 pm
- 7 replies
- I see my wife making progress daily, especially since she's been on Risperdal since this past Monday, yet she still has the agitation, poor short-memory, hallucinations/delusions. She can now bath herself ...
Does anyone see a pattern with recovery?
- By KOL · New reply 11:09 am
- 8 replies
- My mother (73 years) is 5 weeks post Herpes Encephalitis diagnosis. She has days (times) when she seems very with it...alert...and acts fairly normal. Then other times she cannot remember what we talked ...
Did urinary tract infection delay recovery?
- By Anarchy_X · New reply yesterday at 4:38 pm
- 3 replies
- My wife got the infection while in ICU and since the infection can cause delirium I was wondering if anyone has experience with it delaying someone getting better. My wife did start getting a bit better ...
Ingrid is home!
- By WendyStation · New reply yesterday at 1:47 pm
- 5 replies
- Ingrid is home! She writes... "Greetings everyone! My surgery went well. I was in the hospital from the 19th through the 23rd and on the 23rd got moved to a rehabilitation hospital. They did great work ...
Any ideas on easing the lingering effects?
- By Ron57 · New reply yesterday at 12:06 pm
- 5 replies
- I have vision, fatigue, tremors, balance, falling, etc. problems. Anyone find any treatments to help with these, especially fatigue and vision. -Ron ...
Avoid the flu and keep healthy!
- By WendyStation · New reply November 5, 2009
- 5 replies
- In my opinion, the decision to take any flu vaccine is a decision to be made between each person and their doctor... the media have shared with us so many contrasting opinions, it's impossible to have ...
West Nile Virus (WNV)
- By Claire_52 · New reply November 5, 2009
- 11 replies
- Rather than go into all of the residual effects I am experiencing as a result of WNV meninegal-encehphalitis, would like to know if anyone on this board had encephalitis as a result of West Nile I could ...
TIPS for coping at Christmas
- By LadyJaneG · New reply November 3, 2009
- 7 replies
- I sure could use some tips for coping .....I find Christmas to soooooooooo stressful. And I just wish it wasn't like that. I have a wonderful supportive family. I really don't have much stresses in my ...
Adults who had Encephalitis as a young child??
- By LadyJaneG · New reply November 2, 2009
- 17 replies
- I'm very curious in knowing if anyone else had E as a young child and is now much older? What lasting effects have resulted? I'm soon to be 49. I had E when I was only 5. I have complex partial seizures ...
H1N1 vaccine and post encephalitis patients
- By claudiachristine · New reply November 1, 2009
- 10 replies
- Can anyone please give me advise on whether I should vaccinate my son who is 1.5 years post E and is 7 years old. He has not had a flu shot since the E only a Hep A shot before a holiday, but I'm getting ...
Timeframe for Recovery
- By concrndsisinlaw · New reply October 31, 2009
- 11 replies
- Hi Everyone, I went and saw my brother-in-law today at the rehab hospital he was moved to this past Sunday. I was really surprised at the difference from last week. He appears to be doing much better ...
ADEM Study seeking participants
- By WendyStation · Posted October 31, 2009
- 0 replies
- The Transverse Myelitis Association (TMA) has kindly contacted us to share information on a current ADEM Study which is seeking participants. Thank you for sharing, Sandy Siegel ...
Ingrid update...
- By WendyStation · New reply October 30, 2009
- 7 replies
- Ingrid writes... Ingrid writes... I am being moved to a different place tomorrow. I should be there around 10 days. I won't have a computer at my bed, I'll have to go to the visitor's area, but that's ...
Just want you all to know I won't be around for a few days
- By IngridGuerci · New reply October 30, 2009
- 12 replies
- On Monday I will be going into the hospital for knee replacement surgery; I had a car accident in 1977 that did a lot of damage to my left leg, especially my knee but there was no high tech procedures ...
Seasonal and H1N1 Vaccines and Encephalitis
- By cherrienb · New reply October 28, 2009
- 5 replies
- My son was diagnosed with encephalitis in 2006, cause unknown. At that time, he was told not to get the flu vaccine for 5 years as it could trigger a recurrence. With H1N1 and the seasonal flu looming ...
Hatfields and McCoys
- By maineicecube · New reply October 28, 2009
- 2 replies
- This is basically what my relationship with the Zoster Family feels like right now.... Last year, around this time mind you (September 22nd to be exact) I was hospitalized for a week with what appeared ...
Helping mom
- By KOL · New reply October 27, 2009
- 13 replies
- How can I help my mom recover faster from Encephalitis? 3 weeks after her diagnosis. KOL ...
Will my wife remember having encephalitis?
- By Anarchy_X · New reply October 27, 2009
- 22 replies
- Hello, my wife has been in the hospital for the past two weeks being treated for Herpes Encephalitis. They didn't think she would live, but has made a strong recovery starting over the past two days that ...
loss of taste,smell and appetite
- By misseaster13 · New reply October 26, 2009
- 15 replies
- my husband had e in april,after the initial physical worries,he is now experiencing the residual effects,has anyone lost their taste and smell,does it come back? i have tried stronger tasting food,if ...
FACES Program now available!
- By WendyStation · New reply October 26, 2009
- 3 replies
- Do you want a peek at what we will be doing at FACES? Want to print off our FACES Program? Click http://www.encephalitisglobal.org/FACES% 202009%20Program.doc to view! (If YOU would like to join us at ...
