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Diagnosis of encephalitis
Discuss the experience of being diagnosed. What type of encephalitis were you diagnosed with?
Limbic Encephalitis
- By WendyStation · New reply November 6, 2009
- 5 replies
- A friend writes... To Whom This May Concern: My name is Elaine B. Krause. Recently, I contacted NORD in order to see why my disease was not listed in their file of rare diseases. I was interested in contacting ...
Facial lesions & nasal sores before diagnosis?
- By emmmie · New reply November 4, 2009
- 2 replies
- Hello - really nice to find this community, i've been trying to find out more information concerning this disease and there is very little out there.. my big question for those who have herpes simplex ...
Viral and Autoimmune E Study. Conducted by a survivor.
- By Dan_ · New reply November 3, 2009
- 3 replies
- This past April, after two days of fever, I slipped into a 10-day coma. After being flown from Maine to Massachusetts General Hospital in Boston I was diagnosed with nonspecific viral encephalitis. Long ...
lumbar puncture/spinal tap
- By hungary · New reply November 1, 2009
- 27 replies
- I am just curious if any of you out there who have been diagnosed with E have had a lumbar puncture/spinal tap either during your initial diagnosis of E or anytime during your journey with E. If you have ...
Recurrence of Encephalitis
- By dbrowncsuaedu · New reply October 13, 2009
- 12 replies
- I am wondering if anyone here has had a similar experience to mine, or if perhaps I just have a new case. I had a relative minor case (compared to many on this list) -- I just toughed it out with some ...
Morvan's Syndrome
- By MyPatagonia · New reply October 12, 2009
- 1 reply
- My father was initially diagnosed with Voltage-Gated Potassium Channel Autoimmunity with associated Limbic Encephalitis. It is now believed that he has an even more rare condition known as Morvan's Syndrome ...
Anti-NMDA Receptor encephalitis
- By WendyStation · New reply October 5, 2009
- 9 replies
- Received from a friend... Hi Wendy, I hope you are well. I am not sure where to post this link, so I am sending it to you in the hope you will no where to put it, so it gets maximum exposure. It is an ...
my history of desease
- By aldoween · New reply September 28, 2009
- 2 replies
- Hi a all! Somebody had this symptoms (especially rash on the legs)? This is my history of desease: Typical symptoms of first months of desease: bad sleep night (quick awakening after minutes of sleep ...
HSV2
- By AmberMarie2489 · New reply September 25, 2009
- 4 replies
- hi my name is amber and i have a son who is 18 months and he had been diagnosed with Hsv2 and encephalitis when he was about 4 weeks old.i was wondering if there was anyone who was going through the same ...
H1N1 triggers encephalitis
- By WendyStation · New reply September 13, 2009
- 16 replies
- Brain death was caused by A(H1N1) ...later tests showed that the cause of her brain death was encephalitis triggered by the flu infection. http://joongangdaily.joins.com/article/v iew.asp?aid=2909825 ...
Wish we could have this some day!
- By mooseinmotion · New reply September 1, 2009
- 1 reply
- http://www.msnbc.msn.com/id/32632074/ns/ health-infectious_diseases ...
Just asking
- By Fuzzy2hotrods · New reply August 19, 2009
- 1 reply
- Has anyone had this curse more than once ...
1st West Nile E death of the year for Indiana
- By Joey_sMom · New reply August 14, 2009
- 2 replies
- Their hook line was: "Death results from insect bite". I looked at my mother and said, "I'll bet it was West Nile encephalitis"....it was. http://www.wthr.com/Global/story.asp?s=1 0924179 Vicky ...
Diagnosing Encephalitis
- By jesslaw · New reply August 6, 2009
- 9 replies
- I am surprised at how many times I have heard that diagnosing Encephalitis is so hard. My doctors in rural Thailand diagnosed me right away, saved my life, and took great care of me ...
Ovarian teratoma encephalitis
- By WendyStation · New reply August 3, 2009
- 36 replies
- I read for the first time today, about Ovarian teratoma encephalitis. Click http://www.nytimes.com/2008/11/09/magazi ne/09wwln-diagnosis-t.html to view the article ...
The e related books thread
- By muzzamo · New reply July 22, 2009
- 3 replies
- Hi all, I thought it would be worthwhile to discuss the books that we have discovered are related to E. I'll start with this one: http://www.amazon.com/reader/1932603409? _encoding=UTF8&query=fatigue#reader ...
QUESTION ABOUT SIEZERS
- By yetzabee · New reply July 22, 2009
- 16 replies
- Understanding that you are not doctors but people who suffered E. I wondered if a person can have siezers and not know it after E? I know there are different types of siezers and when this first started ...
Damage to nerve ending in eyes
- By samuel · New reply July 18, 2009
- 5 replies
- Hello to you all, my name is sam, and I was wonding if any of you share similar symptoms or have any info on eye bluriness, and with me coupled with social anxiety. I read that the virus can cause nerve ...
meningo-encephalitis?
- By likaloha · New reply July 16, 2009
- 19 replies
- Hi everyone... I have been talking to lots of nice folks who have lived through encephalitis-- in one form or another.. although I usually identify myself as an E survivor, I, in fact, had west nile meningo-encephalitis ...
Can ANYONE identify?
- By Tpenkhus · New reply July 8, 2009
- 18 replies
- I have been a member now for a while. Mostly I have scaneed the topics and watched for situations that may be similar to that of my wife Ann. I have not come accross anything. So I'm going to put this ...
