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What must it be like in the mind of an E sufferer?
- By scaredmum · New reply yesterday at 11:40 pm
- Journal · 17 replies
- Oneday when I was in deep thought about everything, I wrote this. I was thinking about how hard it must be for someone to 'wake up' oneday and everything be so different but you don't know why. I can ...
Encephalitis - memory and sense of smell problems
- By RB63 · New reply yesterday at 8:36 pm
- Discussion in Life after encephalitis · 7 replies
- I'm new as of about 3 hours ago so please bare with me as i have no idea what type of information there is out there, but want to find out if others experience(d) what i have. I found out that when I ...
Wife is progressing they say.
- By Anarchy_X · New reply yesterday at 10:59 am
- Discussion in Treatment and therapy · 1 reply
- The nurse taking care of my wife says that she is able to read and comprehend what she is reading and even be able to remember some of what she read. He says that she is writing okay, though some of the ...
d'nile...not just a river in Egypt
- By myamee · New reply yesterday at 10:45 am
- Discussion in Diagnosis of encephalitis · 6 replies
- Hello. I'm new. Will use short-form to be as brief as possible. *been browsing and lurking since last year. *Diagnosed HSV-Encephalitis in Oct. 07 at Nanaimo Hosp' on Vancouver Island, BC, Canada. *sent ...
Please remember Paulette
- By IngridGuerci · Posted yesterday at 10:02 am
- Discussion in Life after encephalitis · 0 replies
- I was honored to have met Paulette in the hospital in NYC and then visit her at her home on Long Island. She is in my thoughts everyday. Here's a toast to you, Paulette! Love, Ingrid >>In a message dated ...
How is E different than other brain traumas?
- By Anarchy_X · New reply November 25, 2009
- Discussion in Life after encephalitis · 1 reply
- I spoke to a nurse taking care of my wife and he said he never worked with someone with E, yet said organic damage, and how it affects a person's brain, is the same for everyone? Anyone know if this is ...
Headaches
- By doublec · New reply November 24, 2009
- Discussion in Headaches, anger and confusion · 5 replies
- My husband was hospitalized in late September for a week with West Nile Encephalitis, he was out of work for three weeks but is doing much better except for the headaches. He was just having them every ...
So how long is the brain actually inflamed?
- By Anarchy_X · New reply November 24, 2009
- Discussion in Life after encephalitis · 10 replies
- Just wondering because I can't seem to find anything on this online and I recall the doctors taking my wife off the medication to reduce swelling about 4 weeks ago. Anyone actually know ...
Survivor of Herpes Simplex Encephalitis
- By pecanjim · New reply November 24, 2009
- Journal · 43 replies
- About two weeks ago I was given the good news that I am surviving herpes simplex encephalitis. I have looked at the published literature on this disease and find it almost completely irrelevant to being ...
life after gross brain damage.
- By redantmom · New reply November 23, 2009
- Discussion in Life after encephalitis · 6 replies
- How many of you suffered gross brain damage and how did you learn to compesate and do you or they lead near normal lives. Our Neros say we can if we keep up the pace of therapy that we do , a very, very ...
When does a normal feeling return?
- By KOL · New reply November 22, 2009
- Discussion in Life after encephalitis · 5 replies
- Hello, My mom was diagnosed with HPE on October 2. She is living with me currently. Although she is much better, she says she doesn't feel well "normal" and looks dazed a lot. When did you all begin to ...
Didn't realize how lucky my wife was.
- By Anarchy_X · New reply November 22, 2009
- Discussion in Life after encephalitis · 8 replies
- I was talking to the infectious disease doctor who told me that the main reason my wifeis going to recover is because of the Acyclovir. He was telling me that compared to others, my wife looks great and ...
Anyone here ever get an exact cause of what triggered their Encephalitis
- By Nubbsy · New reply November 21, 2009
- Discussion in Children and encephalitis · 32 replies
- I was talking to some other parents over the weekend and was intrigued to find out some of the causes of their child's diagnosis, a few were because of severe problems with their immune system and some ...
Viral and Autoimmune E Study. Conducted by a survivor.
- By Dan_ · New reply November 20, 2009
- Discussion in Diagnosis of encephalitis · 8 replies
- This past April, after two days of fever, I slipped into a 10-day coma. After being flown from Maine to Massachusetts General Hospital in Boston I was diagnosed with nonspecific viral encephalitis. Long ...
Wife's remembering a bit and also that she doesn't remember.
- By Anarchy_X · New reply November 19, 2009
- Discussion in Headaches, anger and confusion · 3 replies
- Well my wife has been on Risperdal for two weeks now and is able to remember somethings, once and a while of course, but more importantly is saying that she knows there are things she doesn't remember ...
Holiday Time
- By udi45 · Posted November 19, 2009
- Journal · 0 replies
- I haven't posted much lately... I have been overwhelmed by gratefulness... Grateful for my husband Grateful for my family grateful for my health grateful for the good road that we are on grateful for ...
I need Help from someone who has been there
- By jenniferbrown · New reply November 18, 2009
- Discussion in Diagnosis of encephalitis · 8 replies
- Well, Im not really sure as of where to start. I have been healthy most of my life until about 6 months ago when i turned 24. I suddenly started having seizures and no one could tell me why. All of my ...
herpes encephalitis
- By aldoween · New reply November 17, 2009
- Discussion in Life after encephalitis · 27 replies
- Hi, fiends! Are there peoples who had herpes encephalitis ...
Falling apart - broke my back!
- By countingsheep · New reply November 17, 2009
- Discussion in Life after encephalitis · 12 replies
- I'm 7 years post E. One of my many neurological issues is that my brain can't control my blood pressure. Well, my bp dropped and I passed out on my hard tile floor. Broke my sacrum bone and possibly my ...
MRI
- By aldoween · New reply November 16, 2009
- Discussion in Diagnosis of encephalitis · 4 replies
- Hi a all! And your case of Encephalitis (HSV or other): MRI help you ...
