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Journals

Heart problems

annedovepainter
  • By annedovepainter · Posted September 20, 2008
  • 7 replies
  • I went to a Cardiologist last Thursday because my heart has been doing weird things and I have had a few bad turns. He examined me and said that I have a heart murmur,and possibly a leaky heart valve ...

The After Effects of Viral Encephalitis

Arkiemom
  • By Arkiemom · Posted September 16, 2008
  • 13 replies
  • My son Trexton was diagnosed with viral encephalitis when he was 16 mo. old. He slept almost 15 hours a day, wouldn't eat or drink, had a high fever and had a glossy look to his eyes. He lost the ability ...

where did I go?

missmariann3
  • By missmariann3 · Posted September 15, 2008
  • 13 replies
  • I've had some epilepsy accidents even with the best meds. my crying has stopped though. my left leg wasn't working, and kept slipping out from under me and i was on my right leg with ataxia big time ...

Back to hockey (at least, I *think* it was hockey and not a hallucination)

Mac33
  • By Mac33 · Posted September 7, 2008
  • 11 replies
  • So, the hockey season started yesterday. I can't play (right now) but I can certainly watch. Things were made more hectic because my young niece and nephew decided at the last minute they wanted to come ...

I don't understand . . .

Mac33
  • By Mac33 · Posted September 5, 2008
  • 8 replies
  • How I can be so completly exhausted all day every day, and sitting thinking for the whole week "Ahhh, Saturday's coming, I can sleep for 12 hours minimum", and then when I go to bed exhausted and happy ...

alone for one night!!!

mtflower
  • By mtflower · Posted August 28, 2008
  • 4 replies
  • everyone left for camp today, one day early!! lucky me!! i had to work tonight and it was nice to come home to an empty house except for my small zoo! lol i have to work tomorrow also and will drive up ...

Comedy from work

Mac33
  • By Mac33 · Posted August 28, 2008
  • 15 replies
  • So, my next neurology appointment is mid-September. My department doesn't allow flexi time and we get no time off for medical appointments, so normally for dentists, doctors etc overtime is worked instead ...

summer's end

mtflower
  • By mtflower · Posted August 28, 2008
  • 7 replies
  • this may sound kind of selfish, but, i am truely grateful that summer is coming to an end and my grandson, whom i am raising, is going back to school on the second of september! hooray!!!! i love him ...

Privacy and control

Brian
  • By Brian · Posted August 27, 2008
  • 48 replies
  • At Inspire, we think about privacy all the time. Virtually every web site has a privacy policy; you can read ours here: http://www.inspire.com/about/privacy/. But simply following the letter of a privacy ...

Rehab - Step 1: Crawling out of the fog

kellys_mom
  • By kellys_mom · Posted August 27, 2008
  • 9 replies
  • I am posting the exact steps that Kelly has taken to recover. Her prognosis was physical recovery with grief and loss counseling for her lost skills and abilities. She has directed her anger from being ...

Medicine Side Effects

kellys_mom
  • By kellys_mom · Posted August 22, 2008
  • 3 replies
  • Please keep in mind that I am not a medical person. I am Kelly's mom, personal assistant and secretary. I am also my mom's link to the internet. No one should stop taking medicines without talking to ...

Travelling to Montreal

Mac33
  • By Mac33 · Posted August 20, 2008
  • 5 replies
  • I keep meaning to post a journal, if even so I myself have a record of what's going on with me, but never get round to it. I have a half hour or so free now though with nothing to do but go online, so ...

Home and settling in..

amers88
  • By amers88 · Posted August 17, 2008
  • 11 replies
  • Well we have been adjusting to home life for about 2 weeks. Everything is going well. I am getting the support of the School, Medical Assistance and SSI. I think it might be my persistance and my many ...

Narcolepsy

qmax
  • By qmax · Posted August 17, 2008
  • 6 replies
  • We have just returned from the Children's Hospital in Calgary and they seem to believe that our son now has Narcolepsy. He fit into a few of the crieteria and so he has that now. Of course we see so much ...

wrong diagnosis

juliej1960
  • By juliej1960 · Posted August 17, 2008
  • 9 replies
  • hi to all my husband ken was diagnosed last year as having hse, after another attack in july he has been diagnosed as never having hse and has got melas syndrome very rare and worse than hse, thanks to ...

WE ARE HOME

amers88
  • By amers88 · Posted August 5, 2008
  • 9 replies
  • Well we are home. It is the first full day and Ron is walking around like it is all new. He is asking permission to walk into rooms, get something to snack on, and go to the bathroom. We keep telling ...

Kelly's Mystery Illness

kellys_mom
  • By kellys_mom · Posted July 27, 2008
  • 10 replies
  • My daughter, Kelly, was given the diagnosis of Acute disseminated encephalomyelitis (ADEM) in September 2005. Her symptoms were demyelinating brain lesions and brain inflammation of unknown cause. For ...

Thank You for the wonderful encouragement I love this site!!!

Ladybugg
  • By Ladybugg · Posted July 25, 2008
  • 3 replies
  • Hello Everyone, Wow!!! I have received 4 replies and am humbled at the wealth of encouragement I have received and at the flight of things all of you have been thru. I am sooo very thankful my husband ...

Mother missing my son

amers88
  • By amers88 · Posted July 23, 2008
  • 43 replies
  • This is the first time that I am posting anything here, but I have read some of the entries and I see allot of hope for my 17 year old son. He was diagnosed 5 weeks ago with Viral Encephalitis. He is ...

Vacation

lola53
  • By lola53 · Posted July 21, 2008
  • 2 replies
  • We went to visit my daughter in NY (up in the Adirondacks), last week, and had a pretty good time. I got to play golf with both my Mom and my Sister and both at the same time too....That was awesome....they ...

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