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Journals

Good News About Frankie

FrankiesAuntie
  • By FrankiesAuntie · Posted September 19, 2009
  • 3 replies
  • Hey every one I visited with my nephew Frankie yesterday he is looking good considering all he has gone through. Frankie got moved out of ICU today & moved to another floor. We are so thrilled. Praise ...

My baby was diagnosed with NMDA Antibodies

lynnzbopper
  • By lynnzbopper · Posted September 19, 2009
  • 1 reply
  • That right my baby! He was 20 monthes old when he was addmitted Oct. 12, 2008. He was taken to Rochetser MN. We spent 3 monthes there. He had seisures, involentary movements, right side weakness, and ...

Update On Frankie.

FrankiesAuntie
  • By FrankiesAuntie · Posted September 17, 2009
  • 4 replies
  • Frankie is still in ICU fighting it has been a battle but he is stong. "Frankie can do all things through Christ who strengthens him" Phillipians 4:13 I visited Frankie this past Monday, he no longer ...

Frankie is doing Better Thank God!

lovebuggy1
  • By lovebuggy1 · Posted September 14, 2009
  • 4 replies
  • Hi everyone, just wanted to give everyone who has been praying for Frankie a little update. I spoke with his mom this morning and he is doing better he is off the ventilator and is able to speak a little ...

trying to beat two things at once

lovebuggy1
  • By lovebuggy1 · Posted September 12, 2009
  • 5 replies
  • My cousin Frankie is showing improvement since his month in ICU with Herpes simplex encephalitis. But just recently he caught pnemonia while there... Has anyone ever expirienced having encephalitis and ...

The power of prayer!

FrankiesAuntie
  • By FrankiesAuntie · Posted September 9, 2009
  • 15 replies
  • I am so amazed with the power of prayer God is doing great things for my nephew Frankie who has meningitis & encephalitis. I went to go see him in the hospital yesterday & it's amazing to see how we almost ...

anniversary

jesslaw
  • By jesslaw · Posted September 4, 2009
  • 10 replies
  • It is my two year anniversary ...

Does it ever end?

mesc
  • By mesc · Posted September 1, 2009
  • 1 reply
  • I broke down and went to the doc today. Didn't feel like I had much of a choice. Headache and tightness and burning all the way across the top of my head over my eyes, weight loss, nausea, fatigue and ...

My Nephew

ukumar
  • By ukumar · Posted August 29, 2009
  • 3 replies
  • My nephew was recently diagnos with Viral Encephalitis and has been going under medical traetment for 3 weeks now. He is 15 years of age. All the tests CT Scan, MRI, LP show no presence of Bacteria, TB ...

Increased Vimpat

lisamarie23
  • By lisamarie23 · Posted August 24, 2009
  • 2 replies
  • The doctor said to increase Vimpat. I had 2x vision this morning. I called the doctor's office and talked to a nurse. The doctor is off this week. She said to decrease the morning pill. Now I am kinda ...

It's been a long time

Inge
  • By Inge · Posted August 24, 2009
  • 6 replies
  • Hello all ~ not sure if you remember me or not. My journey after E has been a struggle. I'm 2 years into this now & am still using a walker, cannot open one of my eyes & have had a significant drop in ...

My Story

jesslaw
  • By jesslaw · Posted August 23, 2009
  • 9 replies
  • I was living and working in Thailand, had a nice life, not perfect as no life is, but it was good. I had not been feeling great for the past week, not bad , but not great. I thought that I had a mild ...

my new friends

Nic02
  • By Nic02 · Posted August 21, 2009
  • 2 replies
  • I've been lucky enought to stumble upon this group after years of living in a very small community with our island specialist only ever having dealt with two surviving patients (of viral encephalitis ...

My 2 Year Old Daughter Died from Encephalitis

lbecker
  • By lbecker · Posted August 12, 2009
  • 30 replies
  • Hello, I am new here and was wondering if anyone has lost a child due to encephalitis. On May 29 I found my healthy 2 year old daughter in her crib in the middle of a seizure. She was unresponsive so ...

How I'm going: 16 weeks after e

muzzamo
  • By muzzamo · Posted August 10, 2009
  • 8 replies
  • Doing well all things considered, hopefully this Friday I'll be celebrating my first week back at work full time. My work performance is adequate (I'm a software engineer at a bank so my work is taxing ...

Hugs to Ingrid!

WendyStation
  • By WendyStation · Posted July 28, 2009
  • 2 replies
  • Happy Birthday to my good friend Ingrid. We're partners in raising awareness with EGlobal... and we're good friends as well! Hope you have an excellent day ...

New to the group

jesslaw
  • By jesslaw · Posted July 27, 2009
  • 11 replies
  • Hello, My name is Jessica and it has been nearly two years since I fell ill and was hospitalized with encephalitis. At first, I was walking on air because simply, I was alive and I was surrounded by love ...

How I ended up here

jupiter
  • By jupiter · Posted July 22, 2009
  • 13 replies
  • How did I end up here at all? Here is part of my story,,,it's long,...about an illness I had, and how I ended up here........ So,..there I was,..with a house,..a great business,..a great relationship,..and ...

Herpes Encephalitis questions......

Thazooma
  • By Thazooma · Posted July 21, 2009
  • 21 replies
  • Hi, My husband recently spent 16 days in the hospital, CCU, DOU and Brain Mapping Unit. All his test came out negative and then a week after he was discharged they finally received a positive test...Herpes ...

26 years post recovery: Time Flies While We are Having Fun......

ShelbyJones
  • By ShelbyJones · Posted July 20, 2009
  • 8 replies
  • And time flies even if you are NOT having fun...My name is Shelby and I was diagnosed with meningio-encephalitis in fall of 1983. What the Dr's told me at that time was tha I could expect a complete recovery ...

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