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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
where are we going?
- By markingtime · Posted yesterday at 9:04 pm
- 1 reply
- I am new to this my husband has been diagnosed with encephalitis. they tell us it's cvancer caused but can't find the cancer so confusion, dirorientation, fatigue, amnesia, mood swings keep increasing...how ...
Hi everyone
- By ShelbyJones · Posted November 6, 2009
- 0 replies
- Just thought I would check in and be counted. My family has had our bout with "flu-like illness" which brings up the question for me to vaccinate or not vaccinate? Just when I think I have decided either ...
What to do now?
- By Tnkooldude · Posted October 31, 2009
- 16 replies
- My wife contacted Herpes Simplex Encephalitis 3 1/3 years ago. She is 62. She lost all of her short term memory and a lot of long term memory also. She stayed home for 2 1/2 years and then she got worse ...
Inspire members featured
- By Brian · Posted October 28, 2009
- 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
What must it be like in the mind of an E sufferer?
- By scaredmum · Posted October 27, 2009
- 13 replies
- Oneday when I was in deep thought about everything, I wrote this. I was thinking about how hard it must be for someone to 'wake up' oneday and everything be so different but you don't know why. I can ...
Frankie is home now!!
- By lovebuggy1 · Posted October 26, 2009
- 3 replies
- Hi everyone, I know it's been a while since I've been on here. Just wanted to let you all know that Frankie is finally home!!! Thank God! He has been home for about a week now and is doing Good. Although ...
How to help a loved one recovering from E
- By KOL · Posted October 24, 2009
- 7 replies
- My mother went into the hospital October 2nd and was diagnosed with Herpes Encephalitis (although a spinal tap was not done) She was not in the ER and was almost comatose. Acyclovir was administered (every ...
Introduction
- By Tommo · Posted October 14, 2009
- 11 replies
- I have been reading this forum since i came out of hosiptal 6 weeks ago. I've read some inspirational stories from courageous people. Personally i found it quite scary to read some of the stories because ...
Our new website is now available!
- By WendyStation · Posted October 6, 2009
- 4 replies
- A new version of our Web site is now live on the Web. We invite you to take a look at our new site, and appreciate your feedback: http://www.encephalitisglobal.org ...
Viral and Autoimmune Encephalitis Study. Conducted by a survivor.
- By Dan_ · Posted October 6, 2009
- 10 replies
- This past April, after two days of fever, I slipped into a 10-day coma. After being flown from Maine to Massachusetts General Hospital in Boston I was diagnosed with nonspecific viral encephalitis. Long ...
ANTI-NMDA Receptor Encephalitis
- By scahalan · Posted October 5, 2009
- 8 replies
- Hi all, Please take the time to read my story of ANTI-NMDA receptor encephalitis. It was a long road but now I'm back to 100 percent. I hope this helps other people out there! http://www.nypost.com/p/news/local/my_my ...
In the middle of a project
- By WendyStation · Posted October 3, 2009
- 3 replies
- Apology that I've not been here often the past two days... I'm in the middle of a project which is keeping me busy. Hopefully life will settle this weekend, then I can explain in more detail ...
Improvements over time
- By ShelbyJones · Posted October 1, 2009
- 3 replies
- Please forgive my attempt at humor. My sense of "irony" has helped me stay sane over the years. It is one of the tools I have developed to help me accept an unacceptable situation. I have found that the ...
My daughter is getting better!
- By scaredmum · Posted September 30, 2009
- 15 replies
- I was a scaredmum not that long ago. I wrote on here searching for some help and understanding of encephalitis. I had never heard of this illness before until my daughter was struck down with it. Today ...
Frankie is on his way to recovery
- By lovebuggy1 · Posted September 28, 2009
- 7 replies
- Hi everyone it's Veronica Frankie's cousin just wanted to give you all another update on Frankie. He has now been moved to the Rehab part of the Loma Linda Hospital in CA. My mom and dad and brother just ...
'E' my long and winding road a life lost and new life gained
- By MaccaM72 · Posted September 26, 2009
- 10 replies
- Every once in awhile I get emotional about 'E' and how it has effectected my life. The Anger: A life I once lived lost at 30, Good Job, Making good money, living the life of partying with friends all ...
Today September 22
- By ShelbyJones · Posted September 22, 2009
- 9 replies
- I am wondering how many people may have contracted E in 1983, which is when I was sick. Does anyone have any info ...
Good News About Frankie
- By FrankiesAuntie · Posted September 19, 2009
- 3 replies
- Hey every one I visited with my nephew Frankie yesterday he is looking good considering all he has gone through. Frankie got moved out of ICU today & moved to another floor. We are so thrilled. Praise ...
My baby was diagnosed with NMDA Antibodies
- By lynnzbopper · Posted September 19, 2009
- 1 reply
- That right my baby! He was 20 monthes old when he was addmitted Oct. 12, 2008. He was taken to Rochetser MN. We spent 3 monthes there. He had seisures, involentary movements, right side weakness, and ...
Update On Frankie.
- By FrankiesAuntie · Posted September 17, 2009
- 4 replies
- Frankie is still in ICU fighting it has been a battle but he is stong. "Frankie can do all things through Christ who strengthens him" Phillipians 4:13 I visited Frankie this past Monday, he no longer ...
