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Active discussions
Viral and Autoimmune E Study. Conducted by a survivor.
- By Dan_ · New reply yesterday at 9:48 pm
- In Diagnosis of encephalitis · 8 replies
- This past April, after two days of fever, I slipped into a 10-day coma. After being flown from Maine to Massachusetts General Hospital in Boston I was diagnosed with nonspecific viral encephalitis. Long ...
Didn't realize how lucky my wife was.
- By Anarchy_X · New reply yesterday at 7:02 pm
- In Life after encephalitis · 6 replies
- I was talking to the infectious disease doctor who told me that the main reason my wifeis going to recover is because of the Acyclovir. He was telling me that compared to others, my wife looks great and ...
d'nile...not just a river in Egypt
- By myamee · New reply yesterday at 6:00 pm
- In Diagnosis of encephalitis · 1 reply
- Hello. I'm new. Will use short-form to be as brief as possible. *been browsing and lurking since last year. *Diagnosed HSV-Encephalitis in Oct. 07 at Nanaimo Hosp' on Vancouver Island, BC, Canada. *sent ...
Anyone here ever get an exact cause of what triggered their Encephalitis
- By Nubbsy · New reply yesterday at 5:29 pm
- In Children and encephalitis · 30 replies
- I was talking to some other parents over the weekend and was intrigued to find out some of the causes of their child's diagnosis, a few were because of severe problems with their immune system and some ...
When does a normal feeling return?
- By KOL · New reply yesterday at 9:27 am
- In Life after encephalitis · 4 replies
- Hello, My mom was diagnosed with HPE on October 2. She is living with me currently. Although she is much better, she says she doesn't feel well "normal" and looks dazed a lot. When did you all begin to ...
Wife's remembering a bit and also that she doesn't remember.
- By Anarchy_X · New reply November 19, 2009
- In Headaches, anger and confusion · 3 replies
- Well my wife has been on Risperdal for two weeks now and is able to remember somethings, once and a while of course, but more importantly is saying that she knows there are things she doesn't remember ...
life after gross brain damage.
- By redantmom · New reply November 18, 2009
- In Life after encephalitis · 5 replies
- How many of you suffered gross brain damage and how did you learn to compesate and do you or they lead near normal lives. Our Neros say we can if we keep up the pace of therapy that we do , a very, very ...
I need Help from someone who has been there
- By jenniferbrown · New reply November 18, 2009
- In Diagnosis of encephalitis · 8 replies
- Well, Im not really sure as of where to start. I have been healthy most of my life until about 6 months ago when i turned 24. I suddenly started having seizures and no one could tell me why. All of my ...
herpes encephalitis
- By aldoween · New reply November 17, 2009
- In Life after encephalitis · 27 replies
- Hi, fiends! Are there peoples who had herpes encephalitis ...
Falling apart - broke my back!
- By countingsheep · New reply November 17, 2009
- In Life after encephalitis · 12 replies
- I'm 7 years post E. One of my many neurological issues is that my brain can't control my blood pressure. Well, my bp dropped and I passed out on my hard tile floor. Broke my sacrum bone and possibly my ...
MRI
- By aldoween · New reply November 16, 2009
- In Diagnosis of encephalitis · 4 replies
- Hi a all! And your case of Encephalitis (HSV or other): MRI help you ...
Post Encephalitis & Itching
- By abosalim · New reply November 16, 2009
- In Children and encephalitis · 11 replies
- Good Day All My son just got out of the hospital 2 weeks ago after nasty episode of encephalitis (5 weeks @ the hospital). It was horrible experience for him, my wife & I as you may appreciate. However ...
Do we still suffer the effects of Encephalitis even once we've "recovered?"
- By k833 · New reply November 14, 2009
- In Life after encephalitis · 10 replies
- Hey im new to this. Just joined and have no idea what im doing. But for years ive wondered if having encephalitis as a child caused me any long term effects that are still effecting me now??? If that ...
What made wife's teeth black?
- By Anarchy_X · New reply November 14, 2009
- In Treatment and therapy · 1 reply
- Just wondering why in the past couple of weeks my wife's teeth turned black, then all of a suddent they are turning back to their normal color? Could it have been the morphine she was on for the two weeks ...
Introduction
- By AmeliaBedeliasMom · New reply November 13, 2009
- In Children and encephalitis · 1 reply
- My 3-year-old daughter was diagnosed with meningoencephalomyelitis and rhomboencephalitis after a one month illness that had baffled my local (rural US) doctors. I still have no idea what caused my daughter's ...
Brain receiving wrong messages !
- By Sandy_H · New reply November 13, 2009
- In Life after encephalitis · 6 replies
- Hi Friends, My Doctor gave me an interesting angle on messages to our brain that I'd like to share. We all concentrate on what messages the brain isn't getting but what about the messages the brain is ...
When do you know loved one is "back", wife coming home Wednesday
- By Anarchy_X · New reply November 13, 2009
- In Life after encephalitis · 14 replies
- I see my wife making progress daily, especially since she's been on Risperdal since this past Monday, yet she still has the agitation, poor short-memory, hallucinations/delusions. She can now bath herself ...
Please need help...I am trying to stay positive about my nephew
- By Domluc · New reply November 12, 2009
- In Diagnosis of encephalitis · 8 replies
- My 18 year old nephew has been admitted this past Sunday with Viral Encephalitis. The hospital induced a coma to protect him from hurting himself. They completed a Spinal Tap, MRI and all kinds of blood ...
Ingrid is home!
- By WendyStation · New reply November 12, 2009
- In Life after encephalitis · 10 replies
- Ingrid is home! She writes... "Greetings everyone! My surgery went well. I was in the hospital from the 19th through the 23rd and on the 23rd got moved to a rehabilitation hospital. They did great work ...
H1N1 vaccine and post encephalitis patients
- By claudiachristine · New reply November 12, 2009
- In Life after encephalitis · 12 replies
- Can anyone please give me advise on whether I should vaccinate my son who is 1.5 years post E and is 7 years old. He has not had a flu shot since the E only a Hep A shot before a holiday, but I'm getting ...
