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Active discussions
When do you know loved one is "back", wife coming home Wednesday
- By Anarchy_X · New reply 3:20 pm
- In Life after encephalitis · 8 replies
- I see my wife making progress daily, especially since she's been on Risperdal since this past Monday, yet she still has the agitation, poor short-memory, hallucinations/delusions. She can now bath herself ...
West Nile Virus (WNV)
- By Claire_52 · New reply 2:54 pm
- In Life after encephalitis · 12 replies
- Rather than go into all of the residual effects I am experiencing as a result of WNV meninegal-encehphalitis, would like to know if anyone on this board had encephalitis as a result of West Nile I could ...
Electrolytes
- By writehanded · Posted 2:00 pm
- In Life after encephalitis · 0 replies
- So far...so good. I have been going to acupuncturist and chiropractor for some time as I have, since HSE, had numbness in both feet and my left hand. That, along with the headaches, fevers, memory issues ...
Does anyone see a pattern with recovery?
- By KOL · New reply 11:09 am
- In Life after encephalitis · 8 replies
- My mother (73 years) is 5 weeks post Herpes Encephalitis diagnosis. She has days (times) when she seems very with it...alert...and acts fairly normal. Then other times she cannot remember what we talked ...
Did urinary tract infection delay recovery?
- By Anarchy_X · New reply yesterday at 4:38 pm
- In Life after encephalitis · 3 replies
- My wife got the infection while in ICU and since the infection can cause delirium I was wondering if anyone has experience with it delaying someone getting better. My wife did start getting a bit better ...
Ingrid is home!
- By WendyStation · New reply yesterday at 1:47 pm
- In Life after encephalitis · 5 replies
- Ingrid is home! She writes... "Greetings everyone! My surgery went well. I was in the hospital from the 19th through the 23rd and on the 23rd got moved to a rehabilitation hospital. They did great work ...
Ringing of the ears
- By Cacalves · New reply yesterday at 1:08 pm
- In Treatment and therapy · 9 replies
- Hi everyone. I just joined the group and did so in order to find better information to help care for my brother that had HSE. It's been almost 4 months since he came down with HSE and he recovered remarkably ...
Any ideas on easing the lingering effects?
- By Ron57 · New reply yesterday at 12:06 pm
- In Life after encephalitis · 5 replies
- I have vision, fatigue, tremors, balance, falling, etc. problems. Anyone find any treatments to help with these, especially fatigue and vision. -Ron ...
Limbic Encephalitis
- By WendyStation · New reply November 6, 2009
- In Diagnosis of encephalitis · 5 replies
- A friend writes... To Whom This May Concern: My name is Elaine B. Krause. Recently, I contacted NORD in order to see why my disease was not listed in their file of rare diseases. I was interested in contacting ...
Avoid the flu and keep healthy!
- By WendyStation · New reply November 5, 2009
- In Life after encephalitis · 5 replies
- In my opinion, the decision to take any flu vaccine is a decision to be made between each person and their doctor... the media have shared with us so many contrasting opinions, it's impossible to have ...
HSE - Is this really happening?
- By kristeena319 · New reply November 5, 2009
- In Introduce yourself · 1 reply
- Hello: I am turning to everyone for support, information and help because I am not finding any on the www. My mother-in-law was diagnosed w/ HSE on October 7th, she was found outside wandering trying ...
Benefits in the UK?
- By Mac33 · New reply November 5, 2009
- In Medical insurance and returning to work · 18 replies
- Hi all, I think this site is mainly US-based but maybe someone can give me some pointers. Short story is - I've been ill since the start of April and a few weeks ago was diagnosed with cerebellitis. I've ...
Facial lesions & nasal sores before diagnosis?
- By emmmie · New reply November 4, 2009
- In Diagnosis of encephalitis · 2 replies
- Hello - really nice to find this community, i've been trying to find out more information concerning this disease and there is very little out there.. my big question for those who have herpes simplex ...
West Nile recovery takes only one year?
- By WendyStation · New reply November 4, 2009
- In Treatment and therapy · 22 replies
- Researchers say that recovery from West Nile "takes a year" ... "recovery takes longer on average for patients with meningitis or encephalitis than for those with milder symptoms – but all do eventually ...
Good days and bad days normal
- By Anarchy_X · New reply November 4, 2009
- In Treatment and therapy · 3 replies
- Speech therapist concerned that wife did well with speech therapy yesterday but bad today. Is it normal to have good days and bad 5 weeks after being admitted into ICU and week and half after stopping ...
Viral and Autoimmune E Study. Conducted by a survivor.
- By Dan_ · New reply November 3, 2009
- In Diagnosis of encephalitis · 3 replies
- This past April, after two days of fever, I slipped into a 10-day coma. After being flown from Maine to Massachusetts General Hospital in Boston I was diagnosed with nonspecific viral encephalitis. Long ...
TIPS for coping at Christmas
- By LadyJaneG · New reply November 3, 2009
- In Life after encephalitis · 7 replies
- I sure could use some tips for coping .....I find Christmas to soooooooooo stressful. And I just wish it wasn't like that. I have a wonderful supportive family. I really don't have much stresses in my ...
Wife's in rehab
- By Anarchy_X · New reply November 3, 2009
- In Treatment and therapy · 2 replies
- Well my wife entered rehab this past Friday and has been found to be needing mostly cognitive/speech therapy, as she is physically pretty capable: walking, feeding herself, bathing, etc. She still has ...
Anyone here ever get an exact cause of what triggered their Encephalitis
- By Nubbsy · New reply November 2, 2009
- In Children and encephalitis · 22 replies
- I was talking to some other parents over the weekend and was intrigued to find out some of the causes of their child's diagnosis, a few were because of severe problems with their immune system and some ...
Adults who had Encephalitis as a young child??
- By LadyJaneG · New reply November 2, 2009
- In Life after encephalitis · 17 replies
- I'm very curious in knowing if anyone else had E as a young child and is now much older? What lasting effects have resulted? I'm soon to be 49. I had E when I was only 5. I have complex partial seizures ...
