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Discussions

d'nile...not just a river in Egypt

myamee
  • By myamee · Posted 6:21 am
  • In Diagnosis of encephalitis · 1 reply
  • Hello. I'm new. Will use short-form to be as brief as possible. *been browsing and lurking since last year. *Diagnosed HSV-Encephalitis in Oct. 07 at Nanaimo Hosp' on Vancouver Island, BC, Canada. *sent ...

Didn't realize how lucky my wife was.

Anarchy_X
  • By Anarchy_X · Posted yesterday at 6:07 pm
  • In Life after encephalitis · 6 replies
  • I was talking to the infectious disease doctor who told me that the main reason my wifeis going to recover is because of the Acyclovir. He was telling me that compared to others, my wife looks great and ...

Wife's remembering a bit and also that she doesn't remember.

Anarchy_X
  • By Anarchy_X · Posted November 18, 2009
  • In Headaches, anger and confusion · 3 replies
  • Well my wife has been on Risperdal for two weeks now and is able to remember somethings, once and a while of course, but more importantly is saying that she knows there are things she doesn't remember ...

When does a normal feeling return?

KOL
  • By KOL · Posted November 18, 2009
  • In Life after encephalitis · 4 replies
  • Hello, My mom was diagnosed with HPE on October 2. She is living with me currently. Although she is much better, she says she doesn't feel well "normal" and looks dazed a lot. When did you all begin to ...

I need Help from someone who has been there

jenniferbrown
  • By jenniferbrown · Posted November 16, 2009
  • In Diagnosis of encephalitis · 8 replies
  • Well, Im not really sure as of where to start. I have been healthy most of my life until about 6 months ago when i turned 24. I suddenly started having seizures and no one could tell me why. All of my ...

life after gross brain damage.

redantmom
  • By redantmom · Posted November 15, 2009
  • In Life after encephalitis · 5 replies
  • How many of you suffered gross brain damage and how did you learn to compesate and do you or they lead near normal lives. Our Neros say we can if we keep up the pace of therapy that we do , a very, very ...

What made wife's teeth black?

Anarchy_X
  • By Anarchy_X · Posted November 14, 2009
  • In Treatment and therapy · 1 reply
  • Just wondering why in the past couple of weeks my wife's teeth turned black, then all of a suddent they are turning back to their normal color? Could it have been the morphine she was on for the two weeks ...

Falling apart - broke my back!

countingsheep
  • By countingsheep · Posted November 13, 2009
  • In Life after encephalitis · 12 replies
  • I'm 7 years post E. One of my many neurological issues is that my brain can't control my blood pressure. Well, my bp dropped and I passed out on my hard tile floor. Broke my sacrum bone and possibly my ...

Introduction

AmeliaBedeliasMom
  • By AmeliaBedeliasMom · Posted November 13, 2009
  • In Children and encephalitis · 1 reply
  • My 3-year-old daughter was diagnosed with meningoencephalomyelitis and rhomboencephalitis after a one month illness that had baffled my local (rural US) doctors. I still have no idea what caused my daughter's ...

Do we still suffer the effects of Encephalitis even once we've "recovered?"

k833
  • By k833 · Posted November 12, 2009
  • In Life after encephalitis · 10 replies
  • Hey im new to this. Just joined and have no idea what im doing. But for years ive wondered if having encephalitis as a child caused me any long term effects that are still effecting me now??? If that ...

MRI

aldoween

questions

capemermaid
  • By capemermaid · Posted November 11, 2009
  • In Diagnosis of encephalitis · 2 replies
  • i have not been given a definite diagnosis but have suspected tick borne encephalitis from Europe. this has 2 phases, a short flu like ilness followed by the neurological part of the disease. in my case ...

Tick Born Encephalitis - Czech

capemermaid
  • By capemermaid · Posted November 11, 2009
  • In Introduce yourself · 2 replies
  • Hi I spent a month in the Czech Republic this past August. I was not aware of any tick bites but was bitten by many mosquitoes and a horsefly (to which i reacted badly, and was put on a course of Doxycicline ...

Wife's off to behavioral hospital

Anarchy_X
  • By Anarchy_X · Posted November 10, 2009
  • In Treatment and therapy · 6 replies
  • Well my wife was assessed by psychiatrist who feels she will benefit from a bit more intense medical treatment to help her get rid of her hallucinations/confusion faster. Don't know how she'll be there ...

Please need help...I am trying to stay positive about my nephew

Domluc
  • By Domluc · Posted November 10, 2009
  • In Diagnosis of encephalitis · 8 replies
  • My 18 year old nephew has been admitted this past Sunday with Viral Encephalitis. The hospital induced a coma to protect him from hurting himself. They completed a Spinal Tap, MRI and all kinds of blood ...

Brain receiving wrong messages !

Sandy_H
  • By Sandy_H · Posted November 9, 2009
  • In Life after encephalitis · 6 replies
  • Hi Friends, My Doctor gave me an interesting angle on messages to our brain that I'd like to share. We all concentrate on what messages the brain isn't getting but what about the messages the brain is ...

why is speaking clearer than writing?

Anarchy_X
  • By Anarchy_X · Posted November 9, 2009
  • In Life after encephalitis · 10 replies
  • Just wonder if anyone else knows why my wife can speak - though sometimes doesn't make sense cause talking about strange things with strange words - yet she can't write most words correctly. They look ...

Electrolytes

writehanded
  • By writehanded · Posted November 8, 2009
  • In Life after encephalitis · 3 replies
  • So far...so good. I have been going to acupuncturist and chiropractor for some time as I have, since HSE, had numbness in both feet and my left hand. That, along with the headaches, fevers, memory issues ...

When do you know loved one is "back", wife coming home Wednesday

Anarchy_X
  • By Anarchy_X · Posted November 7, 2009
  • In Life after encephalitis · 14 replies
  • I see my wife making progress daily, especially since she's been on Risperdal since this past Monday, yet she still has the agitation, poor short-memory, hallucinations/delusions. She can now bath herself ...

Does anyone see a pattern with recovery?

KOL
  • By KOL · Posted November 6, 2009
  • In Life after encephalitis · 9 replies
  • My mother (73 years) is 5 weeks post Herpes Encephalitis diagnosis. She has days (times) when she seems very with it...alert...and acts fairly normal. Then other times she cannot remember what we talked ...

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