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Discussions
When do you know loved one is "back", wife coming home Wednesday
- By Anarchy_X · Posted yesterday at 3:33 pm
- In Life after encephalitis · 4 replies
- I see my wife making progress daily, especially since she's been on Risperdal since this past Monday, yet she still has the agitation, poor short-memory, hallucinations/delusions. She can now bath herself ...
Does anyone see a pattern with recovery?
- By KOL · Posted November 6, 2009
- In Life after encephalitis · 7 replies
- My mother (73 years) is 5 weeks post Herpes Encephalitis diagnosis. She has days (times) when she seems very with it...alert...and acts fairly normal. Then other times she cannot remember what we talked ...
Did urinary tract infection delay recovery?
- By Anarchy_X · Posted November 6, 2009
- In Life after encephalitis · 3 replies
- My wife got the infection while in ICU and since the infection can cause delirium I was wondering if anyone has experience with it delaying someone getting better. My wife did start getting a bit better ...
Ingrid is home!
- By WendyStation · Posted November 5, 2009
- In Life after encephalitis · 5 replies
- Ingrid is home! She writes... "Greetings everyone! My surgery went well. I was in the hospital from the 19th through the 23rd and on the 23rd got moved to a rehabilitation hospital. They did great work ...
HSE - Is this really happening?
- By kristeena319 · Posted November 5, 2009
- In Introduce yourself · 1 reply
- Hello: I am turning to everyone for support, information and help because I am not finding any on the www. My mother-in-law was diagnosed w/ HSE on October 7th, she was found outside wandering trying ...
Any ideas on easing the lingering effects?
- By Ron57 · Posted November 5, 2009
- In Life after encephalitis · 5 replies
- I have vision, fatigue, tremors, balance, falling, etc. problems. Anyone find any treatments to help with these, especially fatigue and vision. -Ron ...
Ringing of the ears
- By Cacalves · Posted November 4, 2009
- In Treatment and therapy · 9 replies
- Hi everyone. I just joined the group and did so in order to find better information to help care for my brother that had HSE. It's been almost 4 months since he came down with HSE and he recovered remarkably ...
Good days and bad days normal
- By Anarchy_X · Posted November 3, 2009
- In Treatment and therapy · 3 replies
- Speech therapist concerned that wife did well with speech therapy yesterday but bad today. Is it normal to have good days and bad 5 weeks after being admitted into ICU and week and half after stopping ...
Viral and Autoimmune E Study. Conducted by a survivor.
- By Dan_ · Posted November 3, 2009
- In Diagnosis of encephalitis · 3 replies
- This past April, after two days of fever, I slipped into a 10-day coma. After being flown from Maine to Massachusetts General Hospital in Boston I was diagnosed with nonspecific viral encephalitis. Long ...
Wife's in rehab
- By Anarchy_X · Posted November 2, 2009
- In Treatment and therapy · 2 replies
- Well my wife entered rehab this past Friday and has been found to be needing mostly cognitive/speech therapy, as she is physically pretty capable: walking, feeding herself, bathing, etc. She still has ...
TIPS for coping at Christmas
- By LadyJaneG · Posted November 2, 2009
- In Life after encephalitis · 7 replies
- I sure could use some tips for coping .....I find Christmas to soooooooooo stressful. And I just wish it wasn't like that. I have a wonderful supportive family. I really don't have much stresses in my ...
Facial lesions & nasal sores before diagnosis?
- By emmmie · Posted November 1, 2009
- In Diagnosis of encephalitis · 2 replies
- Hello - really nice to find this community, i've been trying to find out more information concerning this disease and there is very little out there.. my big question for those who have herpes simplex ...
ADEM Study seeking participants
- By WendyStation · Posted October 31, 2009
- In Life after encephalitis · 0 replies
- The Transverse Myelitis Association (TMA) has kindly contacted us to share information on a current ADEM Study which is seeking participants. Thank you for sharing, Sandy Siegel ...
Avoid the flu and keep healthy!
- By WendyStation · Posted October 29, 2009
- In Life after encephalitis · 5 replies
- In my opinion, the decision to take any flu vaccine is a decision to be made between each person and their doctor... the media have shared with us so many contrasting opinions, it's impossible to have ...
Timeframe for Recovery
- By concrndsisinlaw · Posted October 28, 2009
- In Life after encephalitis · 11 replies
- Hi Everyone, I went and saw my brother-in-law today at the rehab hospital he was moved to this past Sunday. I was really surprised at the difference from last week. He appears to be doing much better ...
H1N1 vaccine and post encephalitis patients
- By claudiachristine · Posted October 28, 2009
- In Life after encephalitis · 10 replies
- Can anyone please give me advise on whether I should vaccinate my son who is 1.5 years post E and is 7 years old. He has not had a flu shot since the E only a Hep A shot before a holiday, but I'm getting ...
Hatfields and McCoys
- By maineicecube · Posted October 26, 2009
- In Life after encephalitis · 2 replies
- This is basically what my relationship with the Zoster Family feels like right now.... Last year, around this time mind you (September 22nd to be exact) I was hospitalized for a week with what appeared ...
Helping mom
- By KOL · Posted October 24, 2009
- In Life after encephalitis · 13 replies
- How can I help my mom recover faster from Encephalitis? 3 weeks after her diagnosis. KOL ...
Pregnancy Post E
- By tkeys · Posted October 23, 2009
- In Life after encephalitis · 6 replies
- I have a question for people who are farther post-E than I am. I had (autoimmune) brainstem encephalitis starting in January 2009. I spent until mid March in the hospital, then did therapy outpatient ...
Limbic Encephalitis
- By WendyStation · Posted October 22, 2009
- In Diagnosis of encephalitis · 5 replies
- A friend writes... To Whom This May Concern: My name is Elaine B. Krause. Recently, I contacted NORD in order to see why my disease was not listed in their file of rare diseases. I was interested in contacting ...
