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QUESTION ABOUT SIEZERS

yetzabee
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Understanding that you are not doctors but people who suffered E. I wondered if a person can have siezers and not know it after E?

I know there are different types of siezers and when this first started i felt as if there were electrical shocks in my head and lip. That went away and now i just experience a sudden ill feeling with pain in neck and eyes which comes and goes.

I had an EEG at the begining and all they said was that I blink a lot with the light. The flashing light hurt my eyes even when they were shut. The doctors never said anything more on it.

I was just wondering if anyone was experiencing something similar?

Explore topics in this discussion:

Pain Encephalitis Seizures Stress

16 replies

MaccaM72

Quite often I am not aware I have had a seizure until someone tells me. Sometimes they hit so quick and are so brief that no one notices until I crash hard or act in a bizarre fashion or speak out of context out of no where.

Occasionally I wake up in strange places usually on the floor.

Nocturnal seizures I can usually tell because I will likely wet myself. Thats why I make sure my bladder is empty 1-2 hrs before expected time of going to sleep. It has been a lonnnnnnnng time since one of those but even if I am the only one that may notice it is embarrassing nonetheless.

Seizures can have a tendency of almost wiping time slots from your brain.

dannon

Sensitivity to light after encephalitis has been experienced by many of us.
-dannon

yetzabee

thanks you guys.. i don't go unconscience but i do get very disoriented during these moments . Which happens daily.

MichelleN

I have the petite seizures and we think once a day, but if I'm alone I can't always tell. I had quite a few the other day and the only reason I knew was because I had to keep rewinding the TV show I was watching and the third time when I didn't understand it I gave up only to fall asleep.

That was a stress day so we're sure I had seizures and quite a few. We think I probably had a grand mal, but when I'm sitting on the couch it's harder to tell.

I stay away from camera's because of the flash. I'm not afraid of lightening, but I try to look away so I don't see the light. I am VERY light sensitive.

Michelle

yetzabee

Have you had an eeg Michelle?

MichelleN

I'm not completely sure because I switch names, but I'm pretty sure that I have. Many times my tests come up messed up so many times I don't bother paying attention to what they come up with.

Michelle

yetzabee

I hear you! and understand!

lemonplegde

light sensitivity and dry eyes i have had post enceph it has gotten better over time..
tish

yetzabee

I have the dry eye mostly in one eye and it also itches it has not gotten better. I dont see good from that eye i feel I can't move the eyes easy like I use to.

What is post E? lemonpledge

MichelleN

I have pain in my left eye often, but sometimes when the pain is in the right my left dries out, has crunchy things, and it gets to where I can't close it.

We think that when it gets to where I can't close it then there is a good chance that is a sign of a seizure we just haven't figured out whether it's a sign that I'm going to have one or I've had one.

Michelle

yetzabee

wow michelle how do you feel after that happens to you?

MichelleN

I'm not really sure about that and that's part of why I keep my journal. That's how we figured out it's probably a seizure because either there is a long time I don't enter in my medical journal with time I can't remember at all or the pain doesn't go away until I get up in the morning.

I can never explain how helpful my medical journal has been with all I've found out from it.

Michelle

yetzabee

I couldnt do the journal it depressed me more reminding me of my everyday sysmtoms it was more fustrating, but its great that it works for you. Yesterday I called another neuro who supposively has knowledge on E. So I will be mentioning my little attacks,, I was having an episode when I called, the increase in symtoms and disorientation and all that,, then i layed down for a a while and it gradually goes away. Who knows what it is but it dibilitates me and I cant function at all.

sinceage1

Yes yetzabee. I also had GTC seizure upon having E. Since then, many times my family(and others who know me) have told me(upon witnessing) that I had a seizure when I didn't realize it. More severe cases have given me noticable headaches once my consciousness comes back. It is good what Michelle is doing. Keeping a journal of each episode and bringing it to next dr. appt. helps dr. know what your most common types are and when they happen most often. This determines which anticonvulsant drugs are most important for you and when they are needed most.

yetzabee

I knew a girl once who had siezers but didnt go unconscience her eyes would do something wierd. I am referring to those kinds of siezers. If anyone has those kind and do not know it.
My foster son died at 24 in 08 from a seizer , it was always scary to see him go through one. Never thought he would die from it.
Thanks for you post sinceage1.

yetzabee

I had to write this because I finally was able to distinguish the sensation of the aura!!! and then I looked it up and sure enough it discribed what I am going through. I didnt tell the doctor because i never new how to. But thanks to someone here who mentioned it where i could understand it. Yoo hoo now i can tell the doctor. Well i just had a small one so to speak i felt sick inside a funny taste in the back of my nose and throat, light sensativity and head and eye ache and increased numbness,, and i got thirsty while it was happening. Sounds crazy but i could figure it for two years so Im happy to have gotten that information here. THANKS A BUNCH!

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