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I was wondering if anyone has had a problem with a neurogenic bladder after HSE. My mother has had a foley since she was admitted to hospital in May. They tried bladder training for a few days before removing the foley. The foley had to be put back in. We have a urology consult on Sept 17 but thought I would see if anyone else had dealt with this and about any treatment.
Hello plbubba... This is something I've never heard of happening post-encephalitis. But when it comes to encephalitis problems, one should "never say never."
Hugs to you and your Mother, I hope the medical community can help her.
It can be a problem with any brain or spinal cord injury. I feel that right now my Mother's brain is not telling her bladder that it is full and needs to empty. I am hoping with time this connection will reconnect.
Have they tried taking her to the bathroom at set times - much like you would have when you were "potty training" a young child?
Vicky
Caregiver
They tried bladder training. They would clamp the foley for several hours and then release it. As a nurse, we would do this anytime someone had a foley for any length of time prior to it being removed. I think they tried to soon or at least I hope that is the case. We have have to try what you have suggested when we can get her to where she can assist with the transferring.
Plbubba - I feel I must clarify that I have no idea if that will work. I was just wondering if it had been tried. I would think you need to determine if she has "lost muscle control", if she is in fact not getting the message from her brain, or perhaps even both. I have no experience with this situation as my son did not have this issue.
Vicky
Caregiver
i take Enblex every night before bed
Mariann
I had to retrain my body to know the feelings of when to go to the toilet. I have very good bladder control but would hold on too long so when I needed to go, I really needed to go. The messages of a full bladder were not being received by my brain so I had to retrain it to know those feelings.
On way was just to stop and ask yourself "Do I need to go?" or "I had better go". Muscle control is good to work on. When you are on the toilet use your muscles to stop midstream then relax and hold again. It helps you isolate the muscles needed for bladder control. When you know which muscles to strenghten, you can do these exercises at any time of the day. Pelvic floor exercises are good for this area to. A physio can also help with muscle strenghtening.
There may be a simple explaination to the problem, we just have to think outside the square to find it.
All the best. Cheers Sandy
Hi plbubba
I've been thinking about this problem. I don't know if your Mum is confined to a bed. My girlfriend's daughter who was having bladder problems. She has Downs Syndrome & Cerebral Palsy. The Doctors and Therapist told us that the human body is made to be standing up. A lot of her internal problems were because she was laying down most of the time. They said that if we get her upright more that the body will start to work properly. We began therapy to have her sitting up more and raised money for equipment to help her stand and this helped.
Just a thought. Have a lovely weekend.
Cheers Sandy
I hoping that we see some good results in the near future. They have my mom sitting up all day in a wheelchair and in therapy they are working with her on standing. Time will tell. Thanks,
Thought I would update this discussion. My Mother went to the urologist and had a urodynamic study along with a cysto done. The urologist has said that it is definitely a neurogenic bladder and that she would be better to leave the foley in. If he has them take the foley out she would have to be straight cath every 4 hours and if she would have overflow she would end up with skin break down. He feels that for her this is best at this time. He said we would re-evalute it like in six months or if things would suddenly change.
Sounds like a good doctor; I like his advice. Good luck to your Mom!
Ingrid
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