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Facial lesions & nasal sores before diagnosis?

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Hello - really nice to find this community, i've been trying to find out more information concerning this disease and there is very little out there..

my big question for those who have herpes simplex hsv-1 encephalitis is did you exhibit any typical facial 'cold sore' symptoms before getting full blown encephalitis? like a regular mouth cold sore or lesions on the face, or in your nose?

the reason i ask is 3 years ago i acquired hsv-1 from a kiss on the cheek from a friend with an infected lip.. a few days later my face exploded into a huge lesion all over my cheek, horrible weepy gross.. it spread into three spots across my face, scared me pretty bad, and then went away after about a month or so, the red discoloration is still there to this day.. the next time it happened a few months later i desperately went to the dermatologist, they thought it was bacterial.. tried every cream until we tried zovirax cream (aciclovir) and poof, two days later it was gone. bad news is, i contracted herpes.. and it kept coming back, 1 month later, huge sores.. worst places possible right on my cheek, chin, face.. the zovirax was a miracle, i can tell right before they're about to break out again and i put the cream on and poof no re-occurrence..

then about a year and a half ago i noticed something new.. it was in my nose. then i got scared.. i ignored it.. it happened 3 or 4 times (zovirax says not to use it on the mucus membranes.. so i didn't) and then i was watching discovery channel and they had a show on people with severe memory loss.. HSV-1 Encephalitis, "brain herpes".. and i freaked out.. and went online.. and discovered it reaches your brain through your olfactory nerve.. nose.. hsv-1.. brain.. encephalitis..

so now i basically feel like a ticking time bomb and i can't find any info if these things present before hand, like is there something i can do to prevent encephalitis? taking valtrex if i get the flu? or just being hyperaware of any headaches?

what triggers my facial outbreaks is if i use any kind of harsh face creams or scrubs (pro-activ is especially horrible for me) or if i damage the skin in any way, it attacks.. so i'm afraid if i ever get ill with the flu or anything it will weaken me.. it's already in my olfactory area.. and would then attack my brain..

well i'm glad to see so many survivors who have done so well, makes me feel a lot better about the medical care available, i'm glad you all are here to share and educate!

thanks,
emmie

Explore topics in this discussion:

Memory Valtrex Encephalitis Zovirax Cold sore Stress Herpes simplex

2 replies

Hi Emmie

I can understand how you feel. However, don't stress!
I am a HSVE survivor and the Doctors told me that we breath in the Herpes Virus everyday and the one that got me wasn't the one I already had in my body. I have had coldsores on my lip since a very young girl. The Doctor said that I had breathed in a different strain of the virus that went to my brain. I still have the original virus and on occasion if I'm stressed or get sunburnt, I get a coldsore. The first time this happened after E, I was very upset and went straight to the Doctor thinking "Oh no here I go again" My Doctor reassured me "different strain of the virus, You'll be ok". It's been 15yrs and I have had a few coldsores but no return of E. You'll be ok to. I hope that this comforts you. Cheers Sandy

Sandy's right about not stressing! On the other side of the coin, I never ever had a single coldsore, got HSVE, lived, and still have never had a coldsore. Probably the inner and outer viruses are from different sources as Sandy said. All the Best, Bob

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