When I was 4 months old my family and I were going to a Christmas concert when I began to seize. They rushed me to the hospital. The hospital records describe my condition and then say "measles ?". I spent several weeks in hospital. My mom has said they didn't know whether I would live or die. They were told I was going to be mentally retarded and that the illness had left scar tissue on my brain. I had asked my mom about this a few years ago using the term encephalitis, She said I didn't have encephalitis before going off on one of her little martyr syndrome episodes so I didn't get to question her fully. There are no other health records from this time as they get destroyed after so many years. However scar tissue on the brain after an illness seems to be the "definition" of encephalitis. I believe they might never had used that terminology with her being country doctors. They might have just told her I had a sickness in my brain. I also believe the doctors were correct in labeling measles as the cause because I have never had the measles at any other time despite not being vaccinated(I wasn't allowed to be vacinated because I was too sick as a child) and being exposed to measles numerous times.
I had numerous seizures as a child and would go into status eppileptus( one seizure after another) I failed grade 1. This may have been because I was allowed to take kindergarten as I was too sick and there was just so much information to take in. It could have also been because I was on phenobarbitol and it caused hyperactivity which my family has described me as having. The seizures stopped when I was 7.
I have always had a problem with memory and relied on my niece for descriptions of what went on in our family. If I didn't write something in my journal I would not remember it later. For school I wouldn't memorize things I knew i couldn't so I figured out ways to get the answer by working it out logically from the basics. I have always had a problem with word recall and had to mime out what I wanted. Those darn thingamajigs. I relied on tools to help me out such as dictionaries and thesaurasuses. I didn't know how weird I was, til a friend confessed to me "when I first met you, I told my mother you were so weird". I don't have facial recogniton so I cann't "read" people. I've heard communication is 20% what we say and 80% nonverbal. I don't catch on when people are being falsely nice. Although I grew up in a small town (mostly) where everybody knows everybody, I didn't know a soul. To this day people have to greet me first then I try to figure out who they are by the conversation. Change your hair, lose weight I won't recognize you even in your normal location. I have very little guile. I call it "terminal honesty". It did mean that I was bullied a lot as a kid and that people take advantage of me as an adult. For the most part I cannot play the social games. I have always cried for no apparent reason. It is so embarassing. In university I went to talk to a prof about a low grade he gave me. I took the paper in and we discussed where I lost marks. Every circle he made he responded I didn't lose marks for that. I had the right conclusion and gave all the info he wanted. I was winning the arguement for a better mark but even still I was crying. I just wanted to leave so accepted only a slightly better mark. I also well up whenever I hear a siren. For the most part I cann't watch comedies because they are mostly meanspirited and I become so stressed I have to leave or cover my ears and eyes like people do in horror films. I have "brain off days". Typically I can score about 155 on intelligence tests. Then on other days I cannot do simple tasks that I have done before. In uni again, on a midterm I only got a 27, the class average was 29. I don't get below class average even on a hard test. When I pulled it out to study for finals, I was able to get 95 in only 45 minutes. The course wasn't cumulative nor had any part been reveiwed.
I am realizing that this is getting very long. When I made a short intro in welcome curlycanuck it focused me that the changes all occured when my brain matured. The greatest changes occured when I hit my mid to late twenties when your higher executive functions come on line. I would like to hear from other adult survivors of childhood E if they recognized the same changes.