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Welcome Beetle_69!

WendyStation
  • By WendyStation · Posted 1:34 am
  • Discussion in Introduce yourself · 0 replies
  • Welcome to Encephalitis Global, Beetle_69. Will you please introduce yourself? How does this topic touch you ...

Pain in eye, headaches on right side

zemmi33
  • By zemmi33 · New reply 1:14 am
  • Discussion in Headaches, anger and confusion · 13 replies
  • Hi all, I am one year into my recovery from HSE and doing fairly well overall given how awful the early days were. Lately I am getting more dull headaches on the right side of my head and a feeling of ...

Share a smile AND a message!

WendyStation
  • By WendyStation · New reply 12:50 am
  • Discussion in Introduce yourself · 24 replies
  • photo IngridLogo.jpg The above footnote was created years ago, to be placed at the bottom of outgoing emails and such. Would anyone like me to make them one, to place at the foot of their messages here ...

Urgent prayer request

Rileymorgansmom
  • By Rileymorgansmom · New reply yesterday at 9:43 pm
  • Discussion in Life after encephalitis · 30 replies
  • My daughter is almost 8 and 6 years post encephalitis. She is currently in pediatric ICU because she had over 100 seizures Monday. She is currently knocked out on narcotics but the seizures have stopped ...

Britain’s Got Talent 2013: Aliki Chrysochou beats focal encephalitis to w

WendyStation
  • By WendyStation · Posted yesterday at 8:58 pm
  • Discussion in Life after encephalitis · 0 replies
  • Britain’s Got Talent 2013: Aliki Chrysochou beats focal encephalitis to win Simon Cowell over! http://www.unrealitytv.co.uk/britains-go t-talent/britains-got-talent-2013-aliki- chrysochou-beats-focal-encephalitis-to-w ...

Donations 2013 - Thank you!

WendyStation
  • By WendyStation · New reply yesterday at 7:59 pm
  • Discussion in Life after encephalitis · 11 replies
  • Photobucket Donation recently received from Joan and Alex Hackett, Jr. in memory of Felix Vozzo. Our thanks to you both! Donations received with our sincere thanks from Jack & Steph Regan, Bob & Donna ...

Strong family tension

Markb1000
  • By Markb1000 · New reply yesterday at 7:53 pm
  • Discussion in Relationships · 17 replies
  • Quick family rundown: 6 years ago I moved myself and my mother from NY to FL. She was 80 then and the weather was really causing a lot of hassles. My sister and her husband live nearby too so it was a ...

Five million

Brian
  • By Brian · New reply yesterday at 4:06 pm
  • Journal · 205 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

My MRI came back "clear". Are there alternatives, like SPECT scans?

Sabre
  • By Sabre · New reply yesterday at 2:53 pm
  • Discussion in Life after encephalitis · 7 replies
  • Hearing that my MRI was clear was simultaneously frustrating and relieving. I hardly need to explain to you guys, you understand. Briefly: It's relieving because there are so signs of MS, or severe injury ...

Michael slideshow

MMeli
  • By MMeli · New reply yesterday at 11:02 am
  • Journal · 4 replies
  • In case any of you would like to see some of my favorite pictures that capture Michael's beautiful and jovial spirit, my daughters put together a little slideshow. Here is the link: http://www.youtube.com/watch?v=nwfdAG87L ...

A behavioural memory test today

GTTGsba
  • By GTTGsba · Posted May 16, 2013
  • Journal · 0 replies
  • A behavioural memory test today, I troubled in speaking as brain fatigue. The problem that I always have. Next training scheduled that I might have a suggestion to how I can be better in memorizing the ...

You are all a blessing to me!

Shar47
  • By Shar47 · New reply May 16, 2013
  • Journal · 3 replies
  • Well I would have thought that after 7 years maybe, just maybe, my family and friends would understand. No such luck. If this horrid, debilitating, life changing illness isn't enough to deal with, I have ...

brian

lynaz
  • By lynaz · New reply May 15, 2013
  • Discussion in Introduce yourself · 2 replies
  • hi,im brian..my partner sarah was diagnosed with nmda receptor encephilitis in january after 3 weeks in itu..she is now home after intensive treatment after 3 months..but alot of problems with concentration,mood ...

My first question

Joe5858
  • By Joe5858 · New reply May 15, 2013
  • Journal · 17 replies
  • Matthew, my son, is on very heavy doses of 3 seperate anti seizure meds. In fact, each is double the recommended maximum therapeutic dose. It's been 2 1/2 months since his last recorded seizures and it ...

Faceless, Personless Disease

sheridan75
  • By sheridan75 · New reply May 15, 2013
  • Discussion in Life after encephalitis · 22 replies
  • Hello, my name is Jamey. I'm 7 years after E and all and all I think I'm doing pretty well. The chronic migraines, short term memory loss, body pain, etc. are the worst of it, but I think I've finally ...

Thoughts on helping family and children understand ?

Leilani11
  • By Leilani11 · New reply May 15, 2013
  • Discussion in Relationships · 6 replies
  • Ideas and experiences with helping family to understand? Also, what about explaining and reconnecting with young children? I think the two most difficult and painful parts of having experienced encephalitis ...

Down

jamiemkx6
  • By jamiemkx6 · New reply May 15, 2013
  • Discussion in Headaches, anger and confusion · 9 replies
  • Every day I wonder why. I wonder how. I wonder when. I can never seem to clear my mind. Even when I'm sleeping. The dreams are vivid and almost always dark. I hate myself for not appreciating my past ...

Welcome 1Lyn!

WendyStation
  • By WendyStation · New reply May 15, 2013
  • Discussion in Introduce yourself · 1 reply
  • Welcome to Encephalitis Global 1Lyn. Will you please introduce yourself? How does this topic touch you ...

Auto immune testing

Projectpenny
  • By Projectpenny · New reply May 15, 2013
  • Journal · 3 replies
  • Hi everyone, I am writing from Melbourne, Australia. My daughter (17 years old) started having seizures 10 months ago having up to 5 a day. Previous to the seizures ocuring she went on a school trip to ...

Share your best tricks!

Leilani11
  • By Leilani11 · New reply May 15, 2013
  • Discussion in Life after encephalitis · 23 replies
  • So, I'd love to hear ideas for making life work a little better- in the practical nitty gritty of every day. Maybe it's emotional survival tips or memory or pain management... Household tricks or work ...

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The Encephalitis Global Support Community connects survivors and caregivers to share information and support, raise awareness and alleviate unnecessary suffering. This community is sponsored by Encephalitis Global, an Inspire trusted partner.