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When do you know loved one is "back", wife coming home Wednesday
- By Anarchy_X · Posted 3:33 pm
- Discussion in Life after encephalitis · 0 replies
- I see my wife making progress daily, especially since she's been on Risperdal since this past Monday, yet she still has the agitation, poor short-memory, hallucinations/delusions. She can now bath herself ...
Ingrid is home!
- By WendyStation · New reply 1:47 pm
- Discussion in Life after encephalitis · 5 replies
- Ingrid is home! She writes... "Greetings everyone! My surgery went well. I was in the hospital from the 19th through the 23rd and on the 23rd got moved to a rehabilitation hospital. They did great work ...
Ringing of the ears
- By Cacalves · New reply 1:08 pm
- Discussion in Treatment and therapy · 9 replies
- Hi everyone. I just joined the group and did so in order to find better information to help care for my brother that had HSE. It's been almost 4 months since he came down with HSE and he recovered remarkably ...
Any ideas on easing the lingering effects?
- By Ron57 · New reply 12:06 pm
- Discussion in Life after encephalitis · 5 replies
- I have vision, fatigue, tremors, balance, falling, etc. problems. Anyone find any treatments to help with these, especially fatigue and vision. -Ron ...
Does anyone see a pattern with recovery?
- By KOL · New reply 11:59 am
- Discussion in Life after encephalitis · 4 replies
- My mother (73 years) is 5 weeks post Herpes Encephalitis diagnosis. She has days (times) when she seems very with it...alert...and acts fairly normal. Then other times she cannot remember what we talked ...
Did urinary tract infection delay recovery?
- By Anarchy_X · New reply 4:14 am
- Discussion in Life after encephalitis · 2 replies
- My wife got the infection while in ICU and since the infection can cause delirium I was wondering if anyone has experience with it delaying someone getting better. My wife did start getting a bit better ...
Limbic Encephalitis
- By WendyStation · New reply yesterday at 11:39 am
- Discussion in Diagnosis of encephalitis · 5 replies
- A friend writes... To Whom This May Concern: My name is Elaine B. Krause. Recently, I contacted NORD in order to see why my disease was not listed in their file of rare diseases. I was interested in contacting ...
Hi everyone
- By ShelbyJones · Posted yesterday at 3:27 am
- Journal · 0 replies
- Just thought I would check in and be counted. My family has had our bout with "flu-like illness" which brings up the question for me to vaccinate or not vaccinate? Just when I think I have decided either ...
Avoid the flu and keep healthy!
- By WendyStation · New reply November 5, 2009
- Discussion in Life after encephalitis · 5 replies
- In my opinion, the decision to take any flu vaccine is a decision to be made between each person and their doctor... the media have shared with us so many contrasting opinions, it's impossible to have ...
HSE - Is this really happening?
- By kristeena319 · New reply November 5, 2009
- Discussion in Introduce yourself · 1 reply
- Hello: I am turning to everyone for support, information and help because I am not finding any on the www. My mother-in-law was diagnosed w/ HSE on October 7th, she was found outside wandering trying ...
West Nile Virus (WNV)
- By Claire_52 · New reply November 5, 2009
- Discussion in Life after encephalitis · 11 replies
- Rather than go into all of the residual effects I am experiencing as a result of WNV meninegal-encehphalitis, would like to know if anyone on this board had encephalitis as a result of West Nile I could ...
Benefits in the UK?
- By Mac33 · New reply November 5, 2009
- Discussion in Medical insurance and returning to work · 18 replies
- Hi all, I think this site is mainly US-based but maybe someone can give me some pointers. Short story is - I've been ill since the start of April and a few weeks ago was diagnosed with cerebellitis. I've ...
What to do now?
- By Tnkooldude · New reply November 5, 2009
- Journal · 16 replies
- My wife contacted Herpes Simplex Encephalitis 3 1/3 years ago. She is 62. She lost all of her short term memory and a lot of long term memory also. She stayed home for 2 1/2 years and then she got worse ...
Facial lesions & nasal sores before diagnosis?
- By emmmie · New reply November 4, 2009
- Discussion in Diagnosis of encephalitis · 2 replies
- Hello - really nice to find this community, i've been trying to find out more information concerning this disease and there is very little out there.. my big question for those who have herpes simplex ...
Can Encephalitis be confused with " Conversion Disorder"?
- By mooseinmotion · New reply November 4, 2009
- Journal · 30 replies
- I had BBE Bickerstaff Brainstem Encephalitis in 99 and it is not supposed to come back. They are say it is "Conversion Disorder" and yet my symptoms are quite debilitating and the same! Can Encephalitis ...
Inspire members featured
- By Brian · New reply November 4, 2009
- Journal · 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
West Nile recovery takes only one year?
- By WendyStation · New reply November 4, 2009
- Discussion in Treatment and therapy · 22 replies
- Researchers say that recovery from West Nile "takes a year" ... "recovery takes longer on average for patients with meningitis or encephalitis than for those with milder symptoms – but all do eventually ...
Good days and bad days normal
- By Anarchy_X · New reply November 4, 2009
- Discussion in Treatment and therapy · 3 replies
- Speech therapist concerned that wife did well with speech therapy yesterday but bad today. Is it normal to have good days and bad 5 weeks after being admitted into ICU and week and half after stopping ...
Viral and Autoimmune E Study. Conducted by a survivor.
- By Dan_ · New reply November 3, 2009
- Discussion in Diagnosis of encephalitis · 3 replies
- This past April, after two days of fever, I slipped into a 10-day coma. After being flown from Maine to Massachusetts General Hospital in Boston I was diagnosed with nonspecific viral encephalitis. Long ...
Introduction
- By Tommo · New reply November 3, 2009
- Journal · 11 replies
- I have been reading this forum since i came out of hosiptal 6 weeks ago. I've read some inspirational stories from courageous people. Personally i found it quite scary to read some of the stories because ...
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The Encephalitis Global Support Community connects patients, families, friends and caregivers for support and inspiration. The Encephalitis Global Support Community is sponsored by Encephalitis Global in partnership with Inspire.