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Treatment's

By kimjames · New reply yesterday at 1:03 pm
Discussion in Children and encephalitis · 2 replies
My son has been in hospital with E (unknown cause) although they think it's mnda for 11 weeks, he has had 3 IVIG treatment's so far and physically he is amazing but on the Cognition side of things there ...

Welcome, cathloon!

By WendyStation · Posted yesterday at 12:47 pm
Discussion in Introduce yourself · 0 replies
Welcome to Encephalitis Global, cathloon. I see you're from Canada... me too! Vancouver here. Will you please introduce yourself? How does this topic touch you ...

My story so far....

By Lauren82 · New reply yesterday at 8:00 am
Discussion in Introduce yourself · 13 replies
Hi. My name is Lauren, I am 28 and I live in NSW, Australia. My husband, Pete (34 years old), was taken into emergency 4 weeks ago today after I found him with a fever, was incoherant, couldn't speak ...

Need help diagnosing

By cdm30379 · New reply yesterday at 7:51 am
Discussion in Diagnosis of encephalitis · 5 replies
Hi there, i have tried reading a few websites but i am struggling to make head nor tail of my situation. My gran who is 80 was taken into hospital via ambulance 10 days ago. I wasnt there but she was ...

Welcome chef1!

By WendyStation · Posted yesterday at 1:55 am
Discussion in Introduce yourself · 0 replies
Welcome to Encephalitis Global, chef1. Will you please introduce yourself? How does this topic touch you ...

anti NMDA Encephalitis without seizures

By opie · New reply August 31, 2010
Discussion in Treatment and therapy · 10 replies
Has anyone else heard of Anti NMDA encephalitis without seizures? My sister was diagnosed almost two years ago and never once had a seizure. I still haven't come across anyone else with the same story ...

One month since E diagnosis

By BLove · New reply August 30, 2010
Discussion in Treatment and therapy · 5 replies
Hi Everyone, I want to start by saying "Thank You" to ALL of you who have taken the time out to respond to my original post. I never knew how much comfort, support and knowledge I would receive from an ...

Overies out due to NMDAR - encepalitis

By TeamMaria · New reply August 28, 2010
Discussion in Treatment and therapy · 6 replies
Dear Inspire friends, My sister Maria is home after 4mths in the hopsital. She did better but is now in bad shape again. There is someone on here who had their overies out even though all test came back ...

Welcome good-wife!

By IngridGuerci · Posted August 28, 2010
Discussion in Life after encephalitis · 0 replies
I am assuming you're a caretaker and your hubby is the survivor. Please tell us a little bit more and ask as many questions as you may have; we're all here to help each other. Ingrid HSE 12/95 (I was ...

Effects from the virus

By dizzybroad · New reply August 28, 2010
Discussion in Life after encephalitis · 7 replies
Hi, I was wondering if anyone out there suffers from vestibular problems and numbness around the mouth after "e", am I alone or what? I am pretty sure I contracted the virus after getting bitten by a ...

brainstem E progress?

By Skandia · New reply August 27, 2010
Discussion in Life after encephalitis · 4 replies
Hi, I haven't posted for a while but often check in to see what others are talking about. What I've noticed is that brainstem E seems to be unusual and has different outcomes / prognosis to other lobal ...

Welcome Andrewkatie and Elaineandkatie!

By WendyStation · Posted August 27, 2010
Discussion in Introduce yourself · 0 replies
Welcome to Encephalitis Global, Andrewkatie and Elaineandkatie. Will you please introduce yourself? How does this topic touch you? We note that you are from the UK... please be advised of another excellent ...

A few more words about privacy

By Brian · New reply August 27, 2010
Journal · 76 replies
All of us at Inspire care a great deal about your privacy and work hard to ensure the information you trust us with is kept safe. We designed Inspire so that you have complete control over how your personal ...

Wednesday night dinners

By Bvujaklija · New reply August 27, 2010
Journal · 5 replies
After about 24 hours straight in bed because my muscles hurt and are weak from the myoclonus, I HAD to get up. Just couldn't stand it any longer. So I tried some positive thinking, relaxation response ...

Welcome Open_Pipe_Bob!

By WendyStation · Posted August 26, 2010
Discussion in Introduce yourself · 0 replies
Welcome to Encephalitis Global, Open_Pipe_Bob. Will you please introduce yourself? How does this topic touch you ...

My E story...is this common? What's next?

By jemoore667 · New reply August 26, 2010
Journal · 9 replies
I had E back in '93 - just prior to that I recall having shingles and a bad cold, probably pneumonia. When the fever and headache peaked I was advised by my sister (a nurse) to see a neurologist, so thankfully ...

Welcome Quroshi!

By WendyStation · Posted August 25, 2010
Discussion in Introduce yourself · 0 replies
Welcome to Encephalitis Global Quroshi. How does the topic of encephalitis touch you ...

Welcome sgompf!

By WendyStation · Posted August 25, 2010
Discussion in Introduce yourself · 0 replies
Welcome, sgompf! You mention an interest in the topic of amebic encephalitis. How does this topic touch you ...

Welcome MickiM!

By WendyStation · Posted August 25, 2010
Discussion in Introduce yourself · 0 replies
Welcome to Encephalitis Global, MickiM. How may we assist you? How does this topic touch you ...

My Daughter was recently diagnosed w/Encephalitis

By BLove · New reply August 25, 2010
Discussion in Introduce yourself · 38 replies
Hello New Friends, My 16yr old daughter was recently diagnosed with Encephalitis of an unknown cause after about a months stay in the hospital. She became ill 6/22/10 by dropping to the floor and having ...

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The Encephalitis Global Support Community connects patients, families, friends and caregivers for support and inspiration. The Encephalitis Global Support Community is sponsored by Encephalitis Global in partnership with Inspire.