Encephalitis Global Support Community

Welcome to our online support community, sponsored by Encephalitis Global Inc. (www.encephalitisglobal.org). This Encephalitis Global Support Community connects survivors and caregivers to share information and support, raise awareness and alleviate unnecessary suffering. More about this group

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Autoimmune Limbic Encephalitis-VGKC AB

By Nishita · New reply 11:02 pm
Discussion in Life after encephalitis · 21 replies
My 61 year old father was a perfect healthy man till june 10th 2011, when he had his first symptom of LE.He felldown and unconcious for few sec later he was unable recollect what exactly happned to him.Later ...

NMDA- Agitation during recovery phase

By Joeseph · New reply 9:45 pm
Journal · 2 replies
My daughter is now in a rehab center learning to talk, walk, and do other things. Now that she is starting to "wake" up she is asking lotsa of questions like what happened? How come i cannot remember ...

VGKC Limbic Encephalitis

By guscam · New reply 8:12 pm
Discussion in Treatment and therapy · 5 replies
First of all I'm sorry for my English. I'm Italian. My wife, four years ago, had non paraneoplastic limbic encephalitis caused by VGKC (voltage gated pothassium channeles) autoantibodies. Other ones had ...

The modern disease

By belovedcaruso · New reply 6:23 pm
Discussion in Relationships · 4 replies
The late Jimmy Reid a Red Glasgow Clydesider in his famouse rectorial address to me encapsulates how society has, is and will treat in the future people like us who are different. The New York Times rated ...

Do you have HE and H thyroiditis?

By picklesm · New reply 3:14 pm
Discussion in Diagnosis of encephalitis · 11 replies
It looks like I have both and am wondering if that is happening to a lot of people. I think I had the HE for about a year and a half before the thyroiditis became apparent ...

Sense of Humor

By HeatherMc6 · New reply 3:03 pm
Journal · 2 replies
I know that laughter is the best medicine, but I am finding it hard to laugh at anything these past couple of days. Droped off low income housing applications yesterday and did not even bother to drop ...

Long-term Valacyclovir Suppressive Treatment After Herpes Simplex Virus Typ

By Karen313 · New reply 11:01 am
Discussion in Treatment and therapy · 4 replies
Long-term Valacyclovir Suppressive Treatment After Herpes Simplex Virus Type 2 Meningitis: A Double-Blind, Randomized Controlled Trial E. Aurelius1, E. Franzen-Röhl1, M. Glimåker1, O. Akre1, L. Grillner2 ...

Current health status and concerns

By vivi45 · New reply 10:08 am
Journal · 2 replies
I'm posting my personal medical journal so that hopefully it can help someone here. This has been a really strange journey for me which began in August of 2011. I currently don't have a complete diagnosis ...

Overwhelmed!

By JackInTamarac · New reply 12:18 am
Discussion in Children and encephalitis · 9 replies
I am sitting in Miami children's Hospital with my son. I am a basket case...not really knowing what to do or what to expect. My son was diagnosed with Limbic Encephalitis in February. We did really well ...

Trying to process all that has changed

By KD1916 · New reply yesterday at 8:49 pm
Discussion in Introduce yourself · 3 replies
My mother age 70 was diagnosed with HSV-1 E on April 30th 2012. She was in the hospital for 11 days and has been at home with me for 5 days now. At the onset of E she never went into a coma or had a seizure ...

Filing for SSDI: get an attorney or go it alone?

By picklesm · New reply yesterday at 7:22 pm
Discussion in Medical insurance and returning to work · 12 replies
My dr suggested using an attorney. I looked at the site: it seems quite complex. Not sure if I could do it by myself. Any comments ...

Welcome LakeOGeorgia!

By WendyStation · Posted yesterday at 6:39 pm
Discussion in Introduce yourself · 0 replies
Welcome to Encephalitis Global, LakeOGeorgia. Will you please introduce yourself? How does this topic touch you ...

Such a relief

By fredtaz · New reply yesterday at 11:16 am
Discussion in Life after encephalitis · 3 replies
I so look forward to reading the discussions on this site. I live in the rural South and there are no support groups about this disease or really anyone who can relate. I wake up and get the email link ...

Could Parasites in the Brain Cause Encephalitis?

By TigerWiger · New reply May 13, 2012
Discussion in Diagnosis of encephalitis · 2 replies
Invasion by both the pork tapeworm and blood fluke can cause neurological problems, like seizures, loss of sensation or motor control, cognitive difficulty and impaired speech. This can be due to either ...

What would YOU like to discuss?

By WendyStation · New reply May 13, 2012
Discussion in Life after encephalitis · 11 replies
The planners of the 2012 FACES Encephalitis Conference wish to ask YOU what you would like to see / view / experience at this year's Conference. The Conference will be held November 16th through 18th ...

Neuropsychological assessment

By HeatherMc6 · New reply May 13, 2012
Journal · 12 replies
What an exhausting day. I feel brain dead..ha,ha. I will not get results for another few weeks. i am traveling down to Ann Arbor this weekend and staying for the week. Excited to see my friends and places ...

Here's something we can all do close to home!

By Ingridrg · New reply May 13, 2012
Discussion in Life after encephalitis · 2 replies
Why don't we all register and have our own picnics? Fill out the form and put Encephalitis Global as your organization! http://biglobalpicnic.org ...

anyone get Epilepsy after E?

By brigitteweber67 · New reply May 12, 2012
Discussion in Life after encephalitis · 19 replies
Hi Everyone! Thanks for all the great responses. Aside from that creepy Woody guy :o) I was wondering if anyone now has epilepsy? Or had epilepsy from E and it now has gone away ...

No, it's not depression Dr Neurologist

By picklesm · New reply May 12, 2012
Discussion in Diagnosis of encephalitis · 25 replies
Let me throw my case in to the mix. I saw a neurologist last Friday. It looks like I probably have HE and Hoshimotos thyroiditis. The dr tried to play the "depression" card at first but when I pressed ...

meds and typical seizures

By jancun · New reply May 11, 2012
Journal · 9 replies
In 1989 age 42 Dave had his first seizure. He was brought back by a farmer in a landrover after being found in a field on a frosty day walking the dog. His second 8 months later (looking back) was a focal ...

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The Encephalitis Global Support Community connects survivors and caregivers to share information and support, raise awareness and alleviate unnecessary suffering. This community is sponsored by Encephalitis Global, an Inspire trusted partner.