Pain management

How do you manage your EDS related pain? Share information and support here.

Discussions

Has anyone else had this weird reaction to meloxicam?

By Maddie50322 · New reply May 21, 2013
17 replies
Ever since i have been taking this medicine I have been so tired and no enrgy and at some points dizzy. Also I have have been having vision changes where the room looks fuzzy or the lights look really ...

the CEO of the foot sleeve company is giving us a 30 day discount code!

By cypipes · New reply May 20, 2013
34 replies
I know, I know, I sound like I work for them, but I don't. I don't benefit from this in any way. He just responded like a nice guy - and, of course, learning about us does open up a whole new market for ...

inexpensive compounding cream

By mrsgrampus · New reply May 19, 2013
11 replies
I thought I would share this... compound cream for our joints? Dr. Francomano prescribes, this lotion is usually made with 3% diclofenac, 2%baclofen, 2%cyclobenzaprine, 6% gabapentin, 2%lidocaine. Insurances ...

Should i stop taking Ibuprofen?

By angelXofXanimals · New reply May 19, 2013
5 replies
I am currently taking Equate ibuprofen for my headaches and when i'm on my period. It's day time and night time ( they're in separate bottles) I take two for night time and one for day time. No i'm not ...

TMJ pain relief?/need joint replacement

By mlynn129 · New reply May 12, 2013
5 replies
I have EDS and I've been experiencing jaw pain for 2 1/2 years now that started out on just the left side, and has now moved and become more severe on the right side but is still present on the left too ...

the FS6 compression foot sleeves work for me! No, I am not a shill!

By cypipes · New reply April 30, 2013
5 replies
I have another thread where you can see my email conversation with the man who runs the company. They arrived yesterday and I wore them for a while and they felt great, but today was the test. I walked ...

Cooling wraps & gloves

By mrsgrampus · New reply April 25, 2013
6 replies
Ok, when I have an EDS flare most of us have them do to heat! I am in despirate need to cool my joints down...I need Ice! I need the ice in and on my fingers, hands, wrist, elbows, shoulders, knees (especially ...

Unable to take any pain meds due to allergic reaction

By jjevergreen · New reply April 24, 2013
16 replies
Tramadol (Ultram) and NSAIDs are the only analgesic I can take. My body reacts with intense whole body itch and my blood pressure goes to 180/120 ( hypertensive crisis - 911). Over a year, we tried small ...

Unable to take any pain meds due to allergic reaction

By jjevergreen · New reply April 23, 2013
2 replies
Tramadol (Ultram) and NSAIDs are the only analgesic I can take. My body reacts with intense whole body itch and my blood pressure goes to 180/120 ( hypertensive crisis - 911). Over a year, we tried small ...

Unable to take any pain meds due to allergic reaction

By jjevergreen · Posted April 19, 2013
0 replies
Tramadol (Ultram) and NSAIDs are the only analgesic I can take. My body reacts with intense whole body itch and my blood pressure goes to 180/120 ( hypertensive crisis - 911). Over a year, we tried small ...

If you, or someone you love, have EDS - PLEASE READ!!!!!

By shannabell80 · New reply April 19, 2013
1 reply
If you, or someone you love, is suffering from EDS, I have something to share! First, let me explain. My son, AJ, is almost 12 and has been experiencing pain in his joints for years. A little over a year ...

Please sign my Ehlers Danlos Syndrome Petition

By GumbyDav · New reply April 12, 2013
21 replies
Anyone living in the US, please sign my petition to make Ehlers Danlos Syndrome recognized as a disability! https://petitions.whitehouse.gov/petitio n/proclaim-ehlers-danlos-syndrome-eds-di sability/yzvYyxGF ...

What Should I do?Please Help!

By lovleelife · New reply April 10, 2013
8 replies
Hello Friends, My pain doc put me on a long acting pain med,Nucynta about 6 months ago,it was working ok until winter came the pain started breaking through more and more so the doc put me on percocet ...

essay on mechanisms of pain

By MStratford · New reply April 6, 2013
4 replies
I thought this article was awesome in its description of acute vs chronic pain. They should really require this in medical school, with an exam! http://www.vulvodynia.com.au/articles/un derstanding-the-nature-of-chronic-pain ...

Solution for too hard foam roller

By mimi-71 · New reply March 31, 2013
7 replies
The concept of lying on a foam roller is great - the height & hardness is intolerable. Last night, I found a solution: I used my old yoga mat, rolled up. Fully rolled, it was still too stiff. I loosened ...

Progression of EDS

By Lanette · New reply March 28, 2013
1 reply
Is there any information about the progression of EDS and the likelyhood this will occur? As it seems to advance the pain is becoming debiliating ...

EDS Research in NC?

By tryingnottolosehope · New reply March 17, 2013
1 reply
Does any one know of an EDS research facility in NC ...

lamictal

By qanik1 · New reply February 28, 2013
3 replies
Anyone on here ever taken Lamictal? I have EDS 3 and hyper pots. I have had a very bad time with small fiber neuropathy as of late. I feel like i have a horrible sunburn throughout my legs/feet, abdomen ...

Gabapentin hangover?

By danlk · New reply February 24, 2013
11 replies
Recently, my rhumy put me on Gabapentin when I go to bed. It seems to help me sleep some but I wake with what feels like a hangover. The pharmacist said it takes awhile for the body to get use to this ...

Really good EDS doctor in New Jersey?

By rebecca1958 · New reply February 24, 2013
4 replies
HI there, I am in Colorado and am having a hard time finding a good EDS doctor to deal with pain management. Neck pain since 20 (am 54 now). Have a TMJ doc that I am working with which might relieve some ...

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