Pain management

How do you manage your EDS related pain? Share information and support here.


How to explain pain from hypermobility to friends.

  • By meggles_57 · New reply 6:04 am
  • 5 replies
  • I was newly diagnosed with hypermobility syndrome. With this came lots of excitement as my whole life makes sense now. I don't have it near as bad as many people on here talk about, so I feel a bit selfish ...

How To - Make Zap Bags

  • By CentaurInaChinashop · New reply yesterday at 1:22 pm
  • 15 replies
  • So, I made Rache another batch of Zap-bags (I think the original version that we bought were called Magic Bags), and thought it might be worthwhile to put together a how-to page for those who may be interested ...

Pain Clinic in Bath, England

  • By JustMe29 · New reply April 20, 2014
  • 6 replies
  • Anyone from the UK? I was listening to the radio show about chronic pain on BBC 5 Live this morning and heard them talking about the pain clinic in Bath. I was just wondering if anyone had been to it ...

Future Pain Medication from Snail Venom

  • By CentaurInaChinashop · New reply April 16, 2014
  • 3 replies
  • Came across this article, describing a breakthrough in pain medicine research, using the venom of Cone snails. Apparently it could be 100 times more effective than morphine or gabapentin for nerve pain ...

Pain, obviously

  • By autdrew · New reply April 10, 2014
  • 3 replies
  • Hello, I am a 40 year old woman who was diagnosed with Classical type EDS last spring. I had been seeing my primary care doctor for a long time for neck, shoulder, upper back pain. It wasn't until I was ...

Arthritis and Hemroids?

  • By sierralynn4303 · New reply April 7, 2014
  • 6 replies
  • So I am an 18 year old girl with arthritis in my hands, feet, and knees. I also get Hemroids that come and go, but I won't go into detail on that I promise. But anyways, unusual for an 18 year old right ...

Current chronic pain theory--I am mystified/can anyone help me understand?

  • By LorrieL · New reply April 6, 2014
  • 5 replies
  • These days when I read about chronic pain theories, I keep feeling like common sense has gone out the window...they go on and on about people having brains that may process acute pain differently, and ...

Snail venom may lead to potent new pain medication!

  • By cypipes · New reply March 20, 2014
  • 5 replies
  • -venom-may-lead-potent-new-pain-medicati on#.Uyi-95K9KK3 So you don't have to click: Snail venom may lead to potent new pain medication 03/17/2014 | Sydney Morning ...

What to look at in a weather report?

  • By Redundant · New reply March 13, 2014
  • 11 replies
  • I've noticed pain spikes even when there is no precipitation, just changes in weather. So my question is ; What weather statistic should I watch to anticipate pain spikes? Sorry if that's unclear, I can ...

Hydrotherapy Jacuzzis??

  • By joannaemery · New reply March 10, 2014
  • 1 reply
  • Good Morning, Does anyone know anything about Hydrotherapy Tubs/Jacuzzi' s?? I am blessed to have my husband get me a jacuzzi tub to help sooth my pain. I was wondering if anyone had any recommendations ...

I wish my headache would go away!!!!

  • By jgabbard23 · New reply March 2, 2014
  • 6 replies
  • So this is week 3 of a horrible headache! I have never had one this long nor painful. I have literally had barely two days of non headache in 23 long days!!! I shouldn't complain but dangit. My dr has ...

Frozen shoulder after surgery

  • By aussiecazza · New reply February 28, 2014
  • 8 replies
  • Hi there, In 2009 I underwent a shoulder stabilization procedure with three of my ligaments in my shoulder being shortened and reattached via plugs. I also had a bursa removed, acroplasty reshaping the ...

Hospital visit

  • By jgabbard23 · New reply February 14, 2014
  • 5 replies
  • So I am sitting in the hospital as I write this. Was admitted 24 hours ago and still have yet to get a clear answer as to what the heck I am in here for! I have had headache for the past 5 days I was ...

AMA Pain Management CME series

  • By Cotntail · Posted February 12, 2014
  • 0 replies
  • Here is a link to the American Medical Association's Pain Management Continuing Medication Series. This a FREE course for physicians where they can learn and earn CME hours for their maintenance of their ...

Managing my Family- Lets discuss meds,understanding etc.

  • By morethanazebra · New reply January 30, 2014
  • 4 replies
  • Hey guys, Here's the issue, I was & am struggling w/explaining the use of pain meds, muscle relaxants etc long term to family. Can you help me by explaining what your life would be like without your pain ...

Chronic S.P.D.(Non-Pregnancy)

  • By CritterLC · New reply January 23, 2014
  • 5 replies
  • Have moderate pain from back of hips down & around sides(of hips) into front pelvic area[due to laxity of sacro-illiac joint(ie where "dimples" are on butt)]: having VERY severe pain since yesterday ...


  • By MDF58 · New reply January 23, 2014
  • 24 replies
  • Has anyone tried Arnica? It comes in tablet and lotion form. A friend had a surgical issue and her doctor insisted she take it for healing and inflammation. Another friend was told to take for RA. Any ...

Dry Needling and Trigger Point Info from PubMed

  • By Zyp · New reply January 11, 2014
  • 2 replies
  • Because there's been interest and some questions about dry-needling on this forum, I did some research on it. I've posted summaries of 5 PubMed articles about the dry needling of trigger points. They ...

Medication management.

  • By callmesmilez99 · New reply January 5, 2014
  • 8 replies
  • Hi everyone! I really need help finding out how to talk to my doctor about my medication. I'm currently on tramadol and tizaniden and I'm still in SSOO much pain. I can't take the tizaniden unless I have ...

I need chronic pain help.

  • By houswoea · New reply December 31, 2013
  • 11 replies
  • Hello everyone. I'm asking for help again. I'm having trouble with pain. I am on gabapentin for the pain, which is a lot of chest pain but also just all over pain. I had access to tramadol but they took ...

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