Neurologic issues

Discuss neurologic issues related to EDS here.


Pinching in spinal chord/Cervical Spondylosis

  • By joannaemery · New reply 8:40 pm
  • 28 replies
  • Does anyone know anything about the neck? I just had an upright MRI and the Neurologist said I have pinching in the spinal chord on multiple levels and Cervical Spondylosis. He said no Chiari. This would ...

Is there a relation between dysautonomia and pseudo-seizures?

  • By dreamn-jane · New reply April 20, 2014
  • 87 replies
  • I just experienced a seizure-like experience for the first time ever. For about a minute, I lost all control over my arms, legs, and hands. It was terrifying. I was told by a physician that this was likely ...

Chiari malformation?

  • By Trayc757 · New reply April 2, 2014
  • 13 replies
  • I was diagnosed with Ehlers Danlos on December 10, 2013. In January I was hospitalized for TIA symptoms. My left arm and leg fell asleep and I could not get the feeling to return. I also experienced confusion ...

ADD/ADHD in adults & children

  • By Bluebirds_8 · New reply March 27, 2014
  • 3 replies
  • This isn't a scientific journal article, but I thought it was really interesting how they broke down the causes & types of ADHD with brain scans & symptoms, and gave suggestions for supplements and meds ...

EDS and Non-epileptic seizures

  • By zebragurl21 · New reply March 27, 2014
  • 15 replies
  • Hi My name is Molls and I have HEDS with Dysautonomia and I have horrible grand mal seizures and even staring seizures. The doctor told me that the were NEP I have full on grand mal seizures where my ...

Headache Clinics/ Diagnosis/ Etc.

  • By ms764290 · New reply March 7, 2014
  • 3 replies
  • Hi all, Although not formally diagnosed, there is a high probability I have Ehlers-Danlos (mostly hypermobility). I have chronic migraine and after reading posts on this site, I definitely want to explore ...

What sort of dizziness do you experience?

  • By ZebraGirl617 · New reply March 6, 2014
  • 13 replies
  • I know many EDSers, including myself, suffer from various forms of dizziness. I seem to notice a difference between the dizzy sensations I experience. For example, I experience a very distinct type of ...

Anyone with Ehlers Danlos and Myasthenia Gravis...?

  • By HastobeKatt · New reply March 4, 2014
  • 3 replies
  • If anyone has EDS and myasthenia gravis there is a new Facebook group: 4575019 ...

Nice POTS article in Detroit News

  • By kathygeorge · New reply February 22, 2014
  • 5 replies
  • Written by Marney Rich Keenan, in the Homestyle section, February 21, 2014. She gives the story of an ER nurse who had extreme trouble getting diagnosed with POTS, ending with a smaller description of ...

Fluttering/Vibrating Sensation in Leg

  • By JPLonghorn · New reply February 12, 2014
  • 42 replies
  • I have had a fluttering sensation in the back of my leg for the last 24 hours. It is the craziest things. It feels like a cell phone is on "vibrate mode" or that a butterfly is trapped beneath my skin ...

FL-41 tinted lenses for prevention of migraines

  • By mazinoz · New reply January 28, 2014
  • 11 replies
  • Came across an article recently on the use of FL-41 tinted lenses to relieve migraines in UK school children. The tint is a rosy brown one at 50%. It is also used in Computer Vision Syndrome. Glare from ...

Trigeminal Neuralgia

  • By gerberadaisy · New reply January 6, 2014
  • 7 replies
  • I am new to this forum, but I am not new to EDS Type III, POTS and all sorts of other medical conditions associated with EDS Type III and dysautonomia. A couple of years ago I started to have random pains ...

random crying spells.

  • By angelXofXanimals · New reply January 6, 2014
  • 3 replies
  • All week, i've been crying for no known reason. Sometimes i crying for 1 minute or more. Like out of nowhere, i start crying and sometimes it's hard for me to stop crying. A few minutes ago, i was crying ...

Tarlov cysts?

  • By adoucette74 · Posted January 5, 2014
  • 0 replies
  • Anyone else have Tarlov (perineural) cysts? I just had cervical and thoracic MRIs done and there were several cysts. I've read the cysts can be related to EDS and they're not as common in these areas ...


  • By momsfight · New reply December 31, 2013
  • 4 replies
  • I have a question are Vertigo and headaches more common for those with EDS? For years, I have had severe vertigo episodes that sometimes last weeks. I did read about the brain fog ( feeling like your ...

brisk reflexes

  • By pplady · New reply December 27, 2013
  • 5 replies
  • Does anyone have brisk reflexes? I never had them in the past, but last week at my rheumotologist appointment my legs shot out when my knees were tapped. My rheumotologist asked if my neurologist said ...

Has anybody been diagnosed with visual processing problems

  • By melissa710 · New reply December 5, 2013
  • 15 replies
  • Hi ive just found out that a lot of my cognitive symptoms are due to poor visual processing. Which I assume is because your eyes are largely connective tissue. My visual processing symptoms are poor visual ...

tethered cored

  • By pplady · New reply November 23, 2013
  • 13 replies
  • Hey Everyone, I saw Dr. Henderson and he diagnosed me with tethered cord. He recommends surgery to fix it and to treat my Tarlov cysts. Any thoughts ...

EDS and Intercranial Pressure

  • By Medina2 · New reply November 21, 2013
  • 19 replies
  • My wife (now 42) has suffered from hypermobility since her teens, and was diagnosed with Hypermobile EDS (then type 3) about 15 years ago. About 10 years ago she started suffering from headaches and narrowed ...


  • By coetzeegisela · New reply November 6, 2013
  • 4 replies
  • Has - and does - the Epley Manouver - work for anyone's injury and clinical vertigo? How long and intensive ...

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