Gastrointestinal issues

Discuss gastrointestinal issues related to EDS here.

Discussions

Best GI for EDS?

By Cryptogramm · New reply May 19, 2013
4 replies
I posted previously about my specific case, but would like to ask a general question of everyone, can you tell me the names of gastroenterologists who would have significant experience seeing EDS cases ...

Bowel Resection, Surgeons- Experience?

By Cryptogramm · New reply May 19, 2013
5 replies
I am a 33 yr old male diagnosed a year ago with EDS HM, I have an area of redundant sigmoid colon (180 degree bend at times) due to sagging (actually on both sides but worse on the left) of the colon ...

Ana

By edsbabes · Posted May 11, 2013
0 replies
First off ana for three years has been 1:160 homogenous speckled pattern. Now I'm faced with all kinds of digestive issues. Can anyone reflect on this please? I need to know what's best diet and exercise ...

IVIG

By cinfur · New reply May 8, 2013
3 replies
Hello My 16 year old was diagnosed w classical type eds in August 2012. In January 2013 she started have major GI issues which led to a diagnosis of Gastroparesis. She essentially was unable to eat or ...

Pls help! New J-tube hurts too much to feed.

By fbrodya · New reply April 28, 2013
5 replies
My 21 year old daughter's going on her second week in the hospital after JTube surgery. She had stopped being able to eat and drink several weeks ago (vomiting everything) and was just getting IV saline ...

Stomach issues.. PLEASE HELP..

By hannahjmrzy13 · New reply March 29, 2013
17 replies
I have always had stomach issues but nothing like this.. I was in the hospital at the beginning of the month for serve migraines & they had to give me iv meds.. Anyways the day I got home from the hospital ...

Parenteral Nutrition

By Dawn_uk · New reply February 11, 2013
1 reply
My problems with VEDS have almost all been GI related. I have 3 aneurysms on my mesenteric artery and ischaemic bowel all diagnosed Jan 2012,along with the VEDS. I was managing to just about maintain ...

Sleep vomiters

By possums_rock · New reply January 26, 2013
13 replies
This may sound weird, but my vertigo has gotten worse, and with this, the urge to throw up. I've only ever been able to throw up in my sleep, or within the first minute of waking, and I was wondering ...

Bowel perforation, pending resection

By Kimbaby57 · New reply January 18, 2013
4 replies
Hi. I've was diagnosed with ED when I was 13... Am now 55. Probably type 1 or 2, but never fit neatly into one type or another. Had first diverticulitis attack 3 years ago... Several episodes since...and ...

Shaking my head...

By xxBrittany · New reply December 20, 2012
5 replies
Just wishing this horrendous pain would stop. No sleep is really getting to me.... The acid reflux is getting almost intolerable. I've been taking Zantac, Prilosec & Prozac for the acid reflux. As far ...

Having some GI issues...

By xxBrittany · New reply December 19, 2012
15 replies
Ok, so here's what is going on... Two weeks ago I went to my primary care doctor with GI issues. This may offend some people and may be a little graphic so this is your warning... I went to the doctor ...

Gallbladder Removal V.Soon I'd rather avoid - but may not be optional!

By Talitha_K · New reply December 17, 2012
26 replies
Hello all fellow EDSers! I'm an EDS Type 3 patient - but with issues with thin blood, low immunity, and a suspicious history of cardiac symptoms, but most of my probs. are as yet not looked into, simply ...

Small bowel obstruction?

By Dawn_uk · New reply December 16, 2012
6 replies
Well,I knew things HAD to be too damn good to be true. I've been pretty good for weeks,able to go out for lunch and dinner occasionally. Still being careful what I ate but my bowel has behaved....until ...

Never hungry anymore

By julianna1633 · New reply November 25, 2012
9 replies
I am never ever hungry. I have lost 10 pounds in the past 5 days for the record I am 5 foot 7 and 107 pounds now. I am losing and cannot help it. I try to eat but my stomach starts hurting very bad. I ...

Severe gastro issues poss. Slow transit

By thebuchans · New reply October 26, 2012
9 replies
Hi all. I have 5 boys with EDS (and ASD), type unknown as yet, assuming classical or hypermobile types. I also have EDS, as does my mother and brother. Husband is also being checked now due to similar ...

ppi's and too much or too little stomach acid?

By Mari22 · New reply October 8, 2012
12 replies
Since april I have been having heartburn and increased trouble swallowing, like my throat decided to close up completely right under my vitamin pill, sip of water or whatever. I often found myself walking ...

Could this be EDS related?

By Katie127 · New reply October 4, 2012
5 replies
I've never dealt with stomach problems other than acid reflex. The last few weeks, I've had a lot of different stomach issues including diarrhea, constipation and nausea. I get really bad stomach aches ...

study on malnutrition and joint hypermobility

By purpleplatypus · Posted September 25, 2012
0 replies
My family suffers from hypermobility EDS. I am much more hypermobile than my relatives. This is a study that might explain why I am. I suffered from malnutrition as a child. It also might explain the ...

Intestinal Surgery?

By Cryptogramm · New reply September 14, 2012
5 replies
It was suggested to me that I may have EDS by my gastroenterologist Mark Pimentel at Cedars after he saw a barium enema which showed serious visceroptosis, a diagnosis later confirmed by several doctors ...

CONSTIPATION

By besnres · New reply August 24, 2012
10 replies
Hi, my 13 year old son has been getting bowl clean outs monthly. Now the surgeon says he needs them every week for the next month to two months. I'm having mixed feelings. I'm worried about so much Anastasia ...

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