Share information related to exercise and EDS.
Discussions
- By mrse2012
· New reply April 14, 2013
- 5 replies
- I was diagnosed with JHS last year after being told I had fibro for 8 yrs and that any and all pain I have/had was due to fibro. I like to stay in shape and go to the gym every week. I have been lifting ...
- By aeryn
· New reply March 21, 2013
- 6 replies
- I wanted to give everyone an update because I tried out an exercise machine called the Power Plate and I am utterly thrilled. I've only been to two training sessions so far. After each session, I felt ...
- By ToniEDS
· New reply March 19, 2013
- 7 replies
- Hey Everyone, So I am fully intending to go dirt biking this summer WHOOOT! Anybody think there are any reasons I shouldn't. I plan on wearing a dirt bike knee brace but other than that I amnot too worried ...
- By MichelleKMedia
· New reply February 14, 2013
- 8 replies
- Hi everyone, I'm a journalist and friend to someone dealing with EDS. I'm interested in profiling someone who is currently at a crossroads with the diagnosis and may have initially experienced athletic ...
- By ElastiMom
· New reply February 13, 2013
- 10 replies
- I need good tennis shoes for my unstable knees, ankles, hips, and pelvis. They would be used for when I "speed walk" in the mornings. Really, I'm just walking fast to get to my max heart rate. HELP! I ...
- By shannabell80
· New reply February 3, 2013
- 2 replies
- I am trying to find exercises that build and/or maintain muscle, but do not hurt the joints. If you have any suggestions or something that has worked for you, please let me ...
- By julianna1633
· New reply December 13, 2012
- 4 replies
- most of you know about my EDS and all of its ailments. Well I am stubborn and I want to play varsity collegiate soccer this Spring. I amde the soccer team and I want to do it. That and cross country ...
- By RiverJean
· New reply October 26, 2012
- 1 reply
- Hi, I am new to the forum. My 4-year-old daughter and I were recently diagnosed with EDS by experienced geneticist - either hypermobility or classical type since elements of both - more workup in progress ...
- By ToniEDS
· New reply October 22, 2012
- 18 replies
- hello, So before I say anything I have to say this -- DO NOT in any way, shape or form try to talk me out of this. I have made my decision and I'm very excited to do so. I have decided to not only do ...
- By ChildOfJobsGod
· New reply October 20, 2012
- 23 replies
- I have been in so much pain and don't want to take pain meds plus PT seems to always emphasize techniques that hurt rather than help. I have a feeling that the only way I am going to survive this brutal ...
- By puppygurl21
· New reply October 6, 2012
- 38 replies
- Hi everyone, is there anyone else out there who has EDS and still rides horses? I own a horse and am finding it increasingly difficult to ride. Lately, I have had to cut short amazing rides because my ...
- By Sm335302
· New reply October 5, 2012
- 2 replies
- I am thinking about getting a medical personal trainer to aid with weight loss and improve joint strength. Has anyone ever worked with a trainer and is it recommended? I have EDS / Hypermobile type and ...
- By charlotte66
· New reply October 1, 2012
- 4 replies
- I have a lot of thigh muscle pain and weakness(both sides) especially when rising from a chair or going up stairs. It doesn't matter if I am only sitting for a few minutes or an hour. A few times now ...
- By MaggieFaye
· New reply September 22, 2012
- 2 replies
- I recently had to stop doing Pilates because it was causing too much pain. My doctor suggested using a Bosu ball at home to do core strengthening exercises. I'd love to hear feedback from anyone with ...
- By hunter_g
· New reply August 13, 2012
- 5 replies
- I'm at the EDNF conference in Kentucky/Cincinnati. yesterday there was a presentation given by a woman named Crystal Seamon. She is a PT and presented on Pilates modified for EDS. I had to leave the session ...
- By shortstuffinalabama
· New reply August 6, 2012
- 4 replies
- Hi everyone, I have recently been diagnosed with severe muscle atrophy in my shoulders. If I don’t start re-building those muscles and soon I’m heading towards a wheelchair with very limited use of my ...
- By theblondielou
· Posted August 2, 2012
- 0 replies
- I have two doctors who suspect I had EDS though I also have osteoporosis, fibromyalgia, reflux, irritable bladder, hypothyroidism, exercise and cold-induced asthma and "chronic intractable failed neck ...
- By abazaba_06
· New reply July 25, 2012
- 3 replies
- While I haven't officially been diagnosed with EDS there is an extremely good chance that I have it, my uncle does(although were waiting to learn what type) and my mom has an appointment set to be tested ...
- By DKNY
· New reply June 16, 2012
- 2 replies
- Does anyone out there suffer from bilateral foot pain on bottoms of feet that is brought on by exercise and goes away 20 or so minutes after stopping ...
- By Bluebirdfly
· New reply June 9, 2012
- 6 replies
- I just wanted to share with everyone that over Memorial Day weekend which was also over my thirtieth birthday I did something pretty cool. I participated in the Cottonwood 200. It was a 200 mile bicycle ...