Exercise

Share information related to exercise and EDS.

Discussions

Dr Says Not to Lift More than 10 lbs

mrse2012
  • By mrse2012 · New reply April 14, 2013
  • 5 replies
  • I was diagnosed with JHS last year after being told I had fibro for 8 yrs and that any and all pain I have/had was due to fibro. I like to stay in shape and go to the gym every week. I have been lifting ...

Exercise Machine - Power Plate

aeryn
  • By aeryn · New reply March 21, 2013
  • 6 replies
  • I wanted to give everyone an update because I tried out an exercise machine called the Power Plate and I am utterly thrilled. I've only been to two training sessions so far. After each session, I felt ...

Dirt Bike Girl

ToniEDS
  • By ToniEDS · New reply March 19, 2013
  • 7 replies
  • Hey Everyone, So I am fully intending to go dirt biking this summer WHOOOT! Anybody think there are any reasons I shouldn't. I plan on wearing a dirt bike knee brace but other than that I amnot too worried ...

Article Profiling Athlete with EDS

MichelleKMedia
  • By MichelleKMedia · New reply February 14, 2013
  • 8 replies
  • Hi everyone, I'm a journalist and friend to someone dealing with EDS. I'm interested in profiling someone who is currently at a crossroads with the diagnosis and may have initially experienced athletic ...

Walking shoes

ElastiMom
  • By ElastiMom · New reply February 13, 2013
  • 10 replies
  • I need good tennis shoes for my unstable knees, ankles, hips, and pelvis. They would be used for when I "speed walk" in the mornings. Really, I'm just walking fast to get to my max heart rate. HELP! I ...

strenth training and EDS

shannabell80
  • By shannabell80 · New reply February 3, 2013
  • 2 replies
  • I am trying to find exercises that build and/or maintain muscle, but do not hurt the joints. If you have any suggestions or something that has worked for you, please let me ...

Sports

julianna1633
  • By julianna1633 · New reply December 13, 2012
  • 4 replies
  • most of you know about my EDS and all of its ailments. Well I am stubborn and I want to play varsity collegiate soccer this Spring. I amde the soccer team and I want to do it. That and cross country ...

Physical therapy recommendations

RiverJean
  • By RiverJean · New reply October 26, 2012
  • 1 reply
  • Hi, I am new to the forum. My 4-year-old daughter and I were recently diagnosed with EDS by experienced geneticist - either hypermobility or classical type since elements of both - more workup in progress ...

Tough Mudder Suggestions

ToniEDS
  • By ToniEDS · New reply October 22, 2012
  • 18 replies
  • hello, So before I say anything I have to say this -- DO NOT in any way, shape or form try to talk me out of this. I have made my decision and I'm very excited to do so. I have decided to not only do ...

to all athletes with EDS, please help!

ChildOfJobsGod
  • By ChildOfJobsGod · New reply October 20, 2012
  • 23 replies
  • I have been in so much pain and don't want to take pain meds plus PT seems to always emphasize techniques that hurt rather than help. I have a feeling that the only way I am going to survive this brutal ...

Horse riding and EDS

puppygurl21
  • By puppygurl21 · New reply October 6, 2012
  • 38 replies
  • Hi everyone, is there anyone else out there who has EDS and still rides horses? I own a horse and am finding it increasingly difficult to ride. Lately, I have had to cut short amazing rides because my ...

Personal Trainers for Weight Loss & Strength?

Sm335302
  • By Sm335302 · New reply October 5, 2012
  • 2 replies
  • I am thinking about getting a medical personal trainer to aid with weight loss and improve joint strength. Has anyone ever worked with a trainer and is it recommended? I have EDS / Hypermobile type and ...

Thigh pain

charlotte66
  • By charlotte66 · New reply October 1, 2012
  • 4 replies
  • I have a lot of thigh muscle pain and weakness(both sides) especially when rising from a chair or going up stairs. It doesn't matter if I am only sitting for a few minutes or an hour. A few times now ...

Bosu ball for exercise - anyone have feedback?

MaggieFaye
  • By MaggieFaye · New reply September 22, 2012
  • 2 replies
  • I recently had to stop doing Pilates because it was causing too much pain. My doctor suggested using a Bosu ball at home to do core strengthening exercises. I'd love to hear feedback from anyone with ...

Pilates modified for EDS

hunter_g
  • By hunter_g · New reply August 13, 2012
  • 5 replies
  • I'm at the EDNF conference in Kentucky/Cincinnati. yesterday there was a presentation given by a woman named Crystal Seamon. She is a PT and presented on Pilates modified for EDS. I had to leave the session ...

Muscle atrophy in shoulders?? Help!

shortstuffinalabama
  • By shortstuffinalabama · New reply August 6, 2012
  • 4 replies
  • Hi everyone, I have recently been diagnosed with severe muscle atrophy in my shoulders. If I don’t start re-building those muscles and soon I’m heading towards a wheelchair with very limited use of my ...

home vibration plates & exercise pecularities

theblondielou
  • By theblondielou · Posted August 2, 2012
  • 0 replies
  • I have two doctors who suspect I had EDS though I also have osteoporosis, fibromyalgia, reflux, irritable bladder, hypothyroidism, exercise and cold-induced asthma and "chronic intractable failed neck ...

Can I still row?

abazaba_06
  • By abazaba_06 · New reply July 25, 2012
  • 3 replies
  • While I haven't officially been diagnosed with EDS there is an extremely good chance that I have it, my uncle does(although were waiting to learn what type) and my mom has an appointment set to be tested ...

Exercise Induced Foot Pain

DKNY
  • By DKNY · New reply June 16, 2012
  • 2 replies
  • Does anyone out there suffer from bilateral foot pain on bottoms of feet that is brought on by exercise and goes away 20 or so minutes after stopping ...

Hope and Accomplishment

Bluebirdfly
  • By Bluebirdfly · New reply June 9, 2012
  • 6 replies
  • I just wanted to share with everyone that over Memorial Day weekend which was also over my thirtieth birthday I did something pretty cool. I participated in the Cottonwood 200. It was a 200 mile bicycle ...

Things you can do

Support EDNF

Help the Ehlers-Danlos National Foundation reach its goals and support people like yourself by making a donation today.

Donate to the Ehlers-Danlos National Foundation

Discussion topics

Community leaders