Diet and nutrition

Share recipes, tips and other information related to managing diet and nutrition with EDS.

Discussions

Histimine Intolerance? MAST Cell.

By dispatchninja · New reply 1:04 am
3 replies
Hi everyone, I have EDS 3 with on going circulation, nervous system, various other issues , and I strongly suspect MAST Cell to be behind a lot of this issues. Has anyone ever gotten tested specifically ...

MY Malabsorption and Weight Loss Treatments

By mae-queen · New reply May 9, 2013
6 replies
Hi, vEDS here- however, I know classic and hyper mobile both can have dysmotilty/malabsorption/etc. So, I thought I would share my various (many) treatments and which worked, and why. First, my stomach ...

Breakfast Ideas for Migraine Sufferer

By wstoll (Inactive) · New reply May 5, 2013
11 replies
Hello! I have chronic migraines & EDS. I have several food allergies & I'm struggling with only having 2 breakfast options. Currently, I eat Spelt bread/toast with coconut oil (sometimes with cinnamon ...

Will EDS Skew Numbers on Total Body Water Exam?

By Griepent · New reply May 1, 2013
4 replies
To try a different approach with my sleep, blood pressure and digestion issues I went to a nutrionist affiliated with my doctor. Part of the nutritionist's assessment included a set of three electrodes ...

Anti Candida Diet

By tryingnottolosehope · New reply April 8, 2013
14 replies
Caution: Please check with your doctor before changing your diet in any way. Allergy scratch tests do not take into account people who have sensitive or fragile skin. For several years I had about every ...

Diet - notice any connection?

By MStratford · New reply February 16, 2013
1 reply
Hi there, I have noticed that I only have really bad injuries and lots of minor aches and pains when I have been vegan or vegetarian for several years. Anyone else notice something similar? This could ...

Magnesium and EDS

By EDSerMark · New reply January 22, 2013
6 replies
Magnesium and Ehlers-Danlos Syndrome Part One: *Why* Persons With EDS Need To Know About Magnesium" from Heidi Collins, MD (EDNF Professional Advisory Network) http://bit.ly/V2ra6c and Magnesium and Ehlers-Danlos ...

obsorbstion

By raysrvs · Posted January 22, 2013
0 replies
If I take all of my pills for the day all at the same time will they all be absorbed into my body . obviously I know it would be better to spread them out , I can't remember to take them in the course ...

Jaw Surgery - foods

By stude1nm · New reply January 15, 2013
6 replies
I posted a new update on my EDS blog. I'm starting the process of trying foods to drink for after my jaw surgery and shrinking my stomach. I want to be able to compile as many recipes and liquid meal ...

EDS, Celiac...complete symptom list

By Kliza · Posted January 12, 2013
0 replies
Our family has celiac as well as HEDS and had improvement in many areas managing our diet. Gluten, nightshades, grains, dairy, sugar, soy and egg were all inflammatory foods that escalated our pain. As ...

Product

By herhighness6ft · New reply January 1, 2013
1 reply
I found a product that is beneficial to my EDS. It's from Advocare, Advocare MNS® Max 3, $45.95 for a 14 day supply Provides a comprehensive system for weight loss and weight- management* Supports advanced ...

I've heard somepeople have troubles eating, expand on that?

By ozia · Posted November 26, 2012
0 replies
So I've heard of some people who can't, who have EDSIII, have problems keeping there food down with out the help of an antispasmodic. I was curious about this, if any one has had it happen to them or ...

Nutritionist in the Philadelphia area

By aeryn · Posted November 24, 2012
0 replies
Hi all, I just saw a nutritionist for the first time today. My mom went with me for support. The nutritionist did not make me feel crazy for talking about my joint hypermobility which was a breath of ...

nausea 24/7

By julianna1633 · New reply October 19, 2012
22 replies
I have nausea 24/7 which I believe is from my EDS along with some other medical complications I have. I am on round the clock zofran and phegran, and I feel nausea all the time, regardless. When I get ...

Feeding Tubes and EDS --- Complications?

By shrabs · Posted September 28, 2012
0 replies
My daughter's gastroparesis is very bad and the meds we have tried so far aren't doing enough. She is getting to a weight where I feel she may need a feeding tube. Recent motility test showed good motility ...

Quinton marine plasma

By SEANJO · New reply August 9, 2012
2 replies
Does anyone knows any study about the Quinton marine plasma, ou does anybody has used this kind of supplement? I have a small child and I want to give her this Quinton marine plasma Isotonic. I’ve written ...

Losing weight

By millie57 · New reply July 28, 2012
7 replies
Does anyone have a problem with unintentional weight loss? I have lost 11 lbs in less than a yr while still eating quite a lot of food and supplements. I need a good diet to help me gain weight that could ...

Increasing collagen production?

By charlotte66 · New reply June 9, 2012
12 replies
I was reading through some old threads and came upon this response from SASO, and I have some questions. "...EDS is not a problem of low amounts of collagen...it's defective collagen. If it was just low ...

Why does/Does gluten cause pain?

By DedeKay · New reply March 24, 2012
45 replies
Can anyone please tell me how gluten could exacerbate pain symptoms and if they've had any reduction on pain by eliminating it? Also, if there any value to cutting way back in gluten, rather than eliminating ...

Vitamin regiment

By Nomayo · New reply February 29, 2012
4 replies
Is there a recommended vitamin regiment for EDS that helps with healing and bruising and vascular care ...

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