Artery / heart / cardiovascular issues

Discuss artery, heart and cardiovascular issues related to EDS here.

Discussions

POTS and Ritalin vs Adderall

By kschu58 · New reply May 17, 2013
9 replies
(Notice: I use abbreviations - pcp = primary care provider, rx=prescription or prescribe, appt=appointment) I have POTS with the usual extreme fatigue and was told by one doc, a specialist to start Ritalin ...

POTS and High Blood Pressure

By kschu58 · New reply May 15, 2013
7 replies
Has anyone with POTS ever experienced bouts of high blood pressure? Last week for one day, my b/p stayed in the 150/100 range. Then went back to normal for one week. Yesterday and today, spiked to same ...

Cardiologist question

By cindyluwho · New reply May 1, 2013
2 replies
Hi, My son's aortic root measurement has increased 4 mm in 2 years and his now valves are trace leaking, does anyone know a good Cardiologist in the York, Pa area? His geneticist wants a cardiologist ...

hypertensive and POTS

By ChildOfJobsGod · New reply March 23, 2013
12 replies
I have POTS but have developed hypertension. For some reason I do not understand, I still have POTS symptoms and hypertension. I am not sure what to do because my bp is 137/94 and so is dangerously high ...

Inappropriate Sinus Tachycardia

By stude1nm · New reply March 18, 2013
3 replies
Howdy howdy. So, I was diagnosed with pots. Which led to Inappropriate Tachycardia. Just got the diagnosis yesterday. He gave me a couple tips but does anyone else have any? I'm thinking about asking ...

joint hyermobility and mitral valve prolapse

By suret1 · New reply March 17, 2013
5 replies
Hi everyone ....I stumbled upon this article today and thought I would share it...I thought it was very interesting! http://www.scielo.br/scielo.php?pid=S006 6-782X2009000900016&script=sci_arttext&t lng=en ...

Do vascular issues always mean VEDS?

By SusanAZ · New reply March 7, 2013
7 replies
My 8YO daughter was recently flagged for HMS & I am concerned about EDS because of her medical history (congenital diaphagmatic hernia with re-herniation, perforation, reflux aspiration, volvulus, collapsed ...

Mitral Valve repair/replacement

By kevindwalters · Posted February 19, 2013
0 replies
Hello fellow EDSers, I am a 49 year old, father of 3. I have Classical & Hypermoble EDS. Chiari 1 Hydrocephalus with PV Shunt tethered cord Mitral valve prolapse the valve needs to be replaceced/repaired ...

Costochondritis or Precordial Catch Syndrome?

By angelXofXanimals · New reply February 2, 2013
5 replies
Lately, I've been having chest pains. The pain sometimes spread to my back and stomach. It occurs on the right side of my chest also. It's a numb feeling and it hurts a lot when breathing. Sorry i couldn't ...

POTS

By stude1nm · New reply January 30, 2013
2 replies
Hey everyone! I'm newly diagnosed with POTS and have a question. I understand that it has a lot to do with posture but my heart rate spikes when I walk up the stairs and gets rapid if I have to walk any ...

Floppy Blood Vessels?

By JPlace · New reply January 14, 2013
9 replies
Hey - I have a daughter that has both pulmonary and circluation issues. She has difficulty taking a full breath for over 2 years now. Though we've been through all the drugs and exercises with a pulmonologist ...

Saline therapy?

By PurpleKorat · New reply January 8, 2013
1 reply
I've read in a couple of places that having IV saline therapy can greatly help with POTS dizziness and lessen incidences of fainting. Apparently you can have a PICC line put in and have saline intravenously ...

POTS

By stude1nm · New reply December 29, 2012
2 replies
Got my diagnosis. Fun. Any suggestions or things to look out for ...

POTS and hypertension?

By jamiewithtwins · New reply December 16, 2012
10 replies
Quick question for those more experienced than I. Is it common for those with POTS to have hypertension and tachycardia? I know that the symptoms are traditionally orthostatic hypotension and tachycardia ...

POTS

By stude1nm · New reply December 13, 2012
3 replies
I just got my diagnosis today. Any suggestions ...

which midodrine is the good kind? brand or appearance description help

By ChildOfJobsGod · New reply November 9, 2012
2 replies
I saw the discussion on POTS and midodrine where a lot of people were saying there is a certain brand of midodrine that is good and all the rest are lousey. I know that many of you didn't know the brand ...

Have Vascular Issue but am not"Vascular Type"?

By Strege-Mims · New reply November 5, 2012
21 replies
I was diagnosed over 30 years ago with EDS-Hypermobility Type. I am now 64 years old and am developing some significant vascular issues. My Dr says they are EDS related but I do not think the problems ...

Aortic root measurement growth

By silverlining7 · New reply October 19, 2012
4 replies
I do have hypermobile feet, hands, and some stretchy skin but don't know if I have EDS, but I suspect a mild version. I have had some weird symptoms in the last two years, but nothing terribly serious ...

Aortic root enlarged for child with EDS Hypermobility

By nayna · New reply October 17, 2012
2 replies
My child has EDS hypermobility and had a recent cardiology appointment during which they did an Echo and EKG. Then the doc mentioned that the aortic root was enlarged, but at 2.0 which is the max of the ...

Celiac and SMA artery Dilation

By Momofeds · Posted October 6, 2012
0 replies
Our son just completed his MRA from head to pelvis. He has a dilated aorta and this showed that dilation plus a dilated celiac artery and a dilated SMA. Has anyone else had this? Is this related to the ...

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