Journals

non-stop headache

maxtaleni77
  • By maxtaleni77 · Posted yesterday at 11:25 pm
  • 0 replies
  • I am on here, because of sister who`s suffering (non-stop headache ...

It's Done- Now to a New Beginning

Jer_
  • By Jer_ · Posted yesterday at 11:52 am
  • 12 replies
  • The procedure, as planned, was done exactly a week ago today. I woke up feeling good and continued to feel good throughout most part of the next 72 or so hours with having a very minimum of pain medication ...

Frustrated and confused

Coopertr
  • By Coopertr · Posted May 23, 2013
  • 3 replies
  • I do also have Chiari type 1 along with a "mixed connective tissue disease" diagnosed in 2005. I've always been a little " weird" and an unusual case that the multiple doctors and specialist ( Mayo Clinic ...

braces

missmolly12
  • By missmolly12 · Posted May 20, 2013
  • 9 replies
  • I am looking for those finger braces that look like rings, does anybody know where I can find them ...

Just where I am at today.

NepheleColourful
  • By NepheleColourful · Posted May 19, 2013
  • 0 replies
  • So, I am in quite a good place at the moment (today I have experienced some really minor aches, particularly in my elbows and knee, a few bouts of pain and strange sensations in my left hip, pain across ...

The Shoulder

a1ouette
  • By a1ouette · Posted May 18, 2013
  • 4 replies
  • I didn't do anything to it. No trauma or incident. It just started hurting. My left shoulder subluxes all the time, but my right shoulder started hurting last Saturday after a grueling (hah!) day of lifeguarding ...

Decision

mADDyy
  • By mADDyy · Posted May 17, 2013
  • 2 replies
  • It's not luck; it's deciding ...

The World

mADDyy
  • By mADDyy · Posted May 16, 2013
  • 1 reply
  • The true, moral answer is not money. But the realistic answer is money. This world can be so unfair ...

"Embarrassed to be Sick" published on KevinMD

Zyp
  • By Zyp · Posted May 16, 2013
  • 14 replies
  • With a different title, this Inspire journal post I wrote was just published in the widely read medical blog, KevinMD: "In today’s society, chronic illness is viewed as a personal failing" http://www.kevinmd.com/blog/2013/05/toda ...

keystone tesing

lori326
  • By lori326 · Posted May 16, 2013
  • 0 replies
  • Anyone know about the new keystone tesing in pa and how to deal with EDS/disability and needing to test at a different time/day than the rest. My daughter is having trouble getting there to take AND FEELING ...

Hmm

mADDyy
  • By mADDyy · Posted May 15, 2013
  • 6 replies
  • I feel like I was born in the wrong generation ...

Flu-like Symptoms Caused an Emergency CT Scan and CBC Today.

Jer_
  • By Jer_ · Posted May 13, 2013
  • 18 replies
  • This morning began in a left inguinal lymph node being a little touchy during a shower. I passed it off for being out in the yard all weekend. However, when I drove to work and got out of the vehicle ...

introducing myself

ZebraStripedLlama
  • By ZebraStripedLlama · Posted May 13, 2013
  • 8 replies
  • Hi, i am zebra striped llama, and i only just started on here. I got my diagnosis last thursday, but i kind of new i had EDS before then. I also have irlen syndrome (which should explain the spelling ...

Hey guys

kyleezebra
  • By kyleezebra · Posted May 13, 2013
  • 1 reply
  • I'm just starting out here... Idk what I'm supposed to write or who can see it lol ...

I have EDS Type 3

Maddie50322
  • By Maddie50322 · Posted May 11, 2013
  • 3 replies
  • I was diagnosed with EDS Type 3 indefinitely. The Geneticist said that he is almost sure that I have EDS Type 3. I had venous pooling, migraines, a 7/9 on the Beighton Scale, abnormal skin healing and ...

Pro-opiate essay proposing "National Pain Day"

Zyp
  • By Zyp · Posted May 11, 2013
  • 10 replies
  • I recently wrote a quite strongly worded pro-opiate essay proposing a "National Pain Day" and it was published today on the Occupy Healthcare Blog: http://occupyhealthcare.net/2013/05/nati onal-pain-day ...

Improving

mADDyy
  • By mADDyy · Posted May 9, 2013
  • 2 replies
  • I'm beginning to see so much change in my joint flexibility...because I have decided my joints are going to stay in socket. Incredible because they are actually beginning to stay in place for once in ...

This Morning......

onedubiousdreamer
  • By onedubiousdreamer · Posted May 9, 2013
  • 13 replies
  • I was crying before I even managed to pull myself out of bed this morning. My five year old twins bounced onto the bed at 6:30am, wide awake and full of life. With all of the sweetness I could muster ...

The Mind vs. The Body

mADDyy
  • By mADDyy · Posted May 8, 2013
  • 7 replies
  • The will is stronger than the disability. So when the mind is in control, the body has no choice. I know this because I've done it ...

Ammunition for fight against PROP

Zyp
  • By Zyp · Posted May 8, 2013
  • 1 reply
  • In my campaign to fight PROP I've been trying to find references to back up the claims I'm making in my letters. I finally found what I was looking for in a very informative position statement from the ...

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