In a discussion regarding EDS awareness ideas with someone on the Chicagoland EDS Group's facebook page, I began to wonder whether we have trended too far toward the cute and humorous in how we present EDS; not just among ourselves, but to the medical community and the general public as well. We see many wonderful zebra-themed slogans, logos, and awareness ideas, and zebras have an important symbolic message. But let's face it: in general terms, a zebra is an inherently cute, positive, healthy image, and the message it sends about EDS is limited: it's not a symbol the public understands in any particular context and it doesn't speak directly to any issues beyond how we want to be perceived by doctors. I think many of us with EDS feel more like ROADKILL ZEBRAS (for want of a better image) most days and we don't always have an easy way to express that and don't see that feeling validated often enough. So let me ask this: are we too positive (particularly with symbols, logos, and slogans), and do you think that it takes away from the seriousness of our message and the overall perception of EDS? Do we need a better balance with messages and symbols that are more reflective of the serious nature of EDS - that it is life-altering, painful, crippling, and even deadly? Does that feel too negative and overwhelming, or should we find more awareness ideas to reflect our frustration, grief, rage, and worry? If so, what would you like to express and how would you want it see it done?
Thanks for your thoughts!