I have CCI and a retroflexed odontoid.
I have a strange question - has it been anyone's experience that their odontoid moves? One doctor says that my odontoid isn't that far from my C1 but . . . I tried explaining that it moves around and that maybe on the day of the MRI it was in a different position. But they just don't get it.
I tried explaining to the doctor that I have good days and really, really bad days. But they just don't get it.
Maybe I'm the only one . . .