I am writing this because there are so many people (and by people I mean your doctors, educators, and fellow EDS's) that are uneducated about and have no experience with Prolotherapy . (There are doctors out there doing these treatments that are NOT specialists and I'm sure some have unfortunately been treated by them and had no results but there are SPECIALISTS in Regenerative Medicine [find a doc at getprolo.com ] this is ALL they do [Dr. Ross Hauser in Chicago is a leading doc in the field: http://www.caringmedical.com/about/prolotherapy_doctor.asp. His website has a great search engine of articles and you can watch it done on youtube]. That's who you want to see!!! There are crappy doctors just like their are crappy hair dressers.
(links to articles concerning EDS/Hypermobility and Prolotherapy at the bottom)
I feel like it is completely irresponsible and unethical of the medical community to discount a treatment that is far less painful, expensive, and dangerous than your average surgery AND might truly help you. Thankfully more and more top athletes are using Prolotherapy and it is finally getting recognized for healing injuries. Just because your doctor doesn't know about this doesn't mean it doesn't work. Options include Prolotherapy, PRP: platelet rich plasma, and stem cell injections.
I was extremely active and athletic until my late 20's. Multiple injuries started to cripple me; not realizing that I had EDS, I didn't know that was a huge part of why I was getting injured and why I wasn't healing. The surgeries made me worse. I suffered with unbearable pain at times in my neck, low back, hip (subluxed at 25 and had surgery), knees (3 surgeries: ACL, lateral collateral, meniscus, cartlidge damage: by the time I was 26) and eventually my ankles and feet. I have had an uncountable number of injuries: subluxation in the cervical and lumbar spine, hip, shoulder, knees, ankles, wrist and fingers. I could "blow" a knee or ankle just walking from the house to the car if I stepped on a rock wrong. That's how loose my joints had become. I tore my shoulder taking off my shirt.
So we are talking about head to toe joint damage over the years. I was told by orthopedics I needed surgery on ALL of those joints in the last two decades. Even though my ACL reconstruction was unsuccessful and damaged the Patella ligament and tendon that was healthy and undamaged. The hip surgery- crippled me. I was in my 20's, a personal trainer, in incredible physical condition, training for Miss Fitness USA. Some of the top docs had no answers. I struggled for years trying to rehab myself. I seriously tried it all. I had a great doc that started the rebuilding process for a year and then I moved. I went through two crappy docs that were not PRO's at doing Prolotherapy (thankfully I had the best already and knew they sucked) A year and a half ago I found a great doctor here in Austin : Dr. David Harris [www.charmaustin.com] He took me from suicidal pain, walking braced on my ankles and knees with a walker or cane to being able to walk my dogs for 20 minutes (freely) and starting to exercise with weights and short biking in a year and half!! Did I mention I do massage 5-6 days a week to pay for these injections? I'm not saying I'm pain free (i wish) but it is SOOOO much better than it was!
No my life will never go back to pre-surgery and injury condition. There is way too much damage to all my ligaments and tendons. But the cervical pain- the difference is amazing. I was sliding out in my sleep, my shoulder and hip too. My ankles couldn't bear my weight any more they were so loose. He has made my hip more stable. It doesn't snap out all the time and get stuck like it used to. My knees don't slide out, my ankles don't fold constantly. I had a bone spur in my heel from so many years of blown ankles, knees, a horrible gait pattern that no PT can fix- he stabilized the ankle and the bone spur is almost completely gone. I wasn't able to walk barefoot, I could barely walk in shoes anymore... I'm so grateful for the changes that have been made with Prolotherapy.
I really just want people to have a chance and a choice... any chance at having less pain and a little bit of a life back should be discussed and researched.
Good luck with whatever you choose but at least take the time to read about it and make your own choices. "they" don't always know what is best for YOU!!! I have also found massage and acupuncture to be a great part of this healing process.
Organizations that support Prolotherapy: American Association of Orthopedic Medicine (AAOM), American Osteopathic Academy of Sports Medicine (AOASM) :