Hypermobility Joint Syndrome

Hi, Is this the same as EDS? If so can anyone help with the treatment option my Rhuemy has offered as it has me confused. She has offered me Sulphasalazine, which doesn't seem to fit with her diagnosis. I do have Psoriosis and early stage osteo-arthritis, but I can't find this treatment being suggested for non-inflammitory arthritis anywhere. Any ideas? Thanks

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This question has always confused me. I was lead to believe it's the same thing. However even leading EDS experts are still handing out JHM/HMS diagnosis as well as HEDS. So they must have some clinical differentiation.

Here is an exctract from an article written by RODNEY GRAHAME
(HMS)... "has features that suggest that it may be part of an inherited connective tissue disorder similar to the hypermobile form of the Ehlers-Danlos Syndrome, formerly called EDS III. It probably is EDS. At the present time we simply do not know for certain..." http://www.hypermobility.org/painandhms.php

BUT here's another quote
"The Joint Hypermobility Syndrome (JHS) is a multi-system inherited connective tissue disorder thought to be caused by faulty fibrous tissue matrix proteins such as collagen. It is indistinguishable from Ehlers-Danlos Syndrome – Hypermobility type (previously known as Ehlers-Danlos type III). " Approved by RODNEY GRAHAME
http://www.dwp.gov.uk/publications/specialist-guides/medical-conditions/a-z -of-medical-conditions/joint-hypermobility-syndrome/ note at the b

So I guess the answer to this question is a big fat maybe?

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Thanks that helps. At least I maybe in the right place to try and get the second part of the question answered with regards to the treatment being offered.

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I'm in the process of getting my diagnosis changed from BJHS to EDS Type III. From what I can gather, they're considered to be from the same cause, but it's generally referred to as hms when it's mainly affecting the joints and EDS type 3 when there's other systemic issues. The main differences in the diagnostic criteria seems to be whether your skin is abnormally smooth or not. That said I think doctors with less knowledge of EDS are more inclined to give a diagnosis of bjhs/hms. The way mine acted you'd think type III didn't exist anymore, but he pretty much openly admitted he was looking up stuff as he went. He even said EDS wasn't in his field (rheumatology).

Below sources all make reference to either BJHS/HMS either being largely joint related and/or explicated placing it as a mild form of EDS Type III (I wrote a letter contested my diagnosis so I just pasted my sources regarding that).

Benign Joint Hypermobility Syndrome: Evaluation, Diagnosis, and Management
MAJ Michael R. Simpson, DO, MC, USA
US Army Health Clinic in Darmstadt, Germany

Joint hypermobility: What causes 'loose joints'?
Edward R. Laskowski, M.D.

Pain & the Hypermobility Syndrome
Rodney Grahame CBE, MD, FRCP, FACP
Emeritus Professor of Rheumatology, University College Hospital, London

Below outlines them belonging to the same phenotype and mentions their diagnostic criteria.

The Lack of Clinical Distinction Between the Hypermobility Type of Ehlers–Danlos Syndrome
and the Joint Hypermobility Syndrome (a.k.a. Hypermobility Syndrome)
http://www.ednf.org/images/stories/pdfs_medical/2009_11/2009_Tinkle_AJMG_Pa rtA.pdf
Brad T. Tinkle, Howard A. Bird, Rodney Grahame, Mark Lavallee, Howard P. Levy, and David Sillence

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Just had a thought.. perhaps your Rheumy thinks you might have psoriatic arthritis? Have you been tested for it? That might explain the meds?

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All my bloods come back negative, and she said the type of psoriasis I have is the wrong type to give arthritis. So I am a bit at a loss. Will ask why when I see them next week.

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