Such a big feeling that comes with having children with EDS is helplessness. Sometimes when one of my kids have a symptom I feel like I am in a dark room, the answer is right in front of me but I am grasping in the dark. My 17yr old has been having headaches for a very long time now. Sometimes they are in her temples but more often they are in the base of her neck. At one time a chiropractor took an x ray and told us that her neck is broom stick straight. I feel like that is the connection but I don't know what can be done about that, nor do I know which type of Dr to pursue this with. Does anyone have a direction to put me in?