I have always had this creeping suspicion that i have EDS. One of my pupils is off - the one on my right. It's very slight, but my girlfriend can notice it. I can dislocate my shoulders:
Here's a picture:
That's it dislocated
Here's it normal:
Note:I can do this with both shoulders.
Also, my elbow has always made a crunch sound, and hurts sometimes. I have normal mobility in all my joints though - I can't hyper extend it.
I have also been diagnosed with a hiatal hernia. Which doesn't bother me too much. I have always been excessively skinny. I'm 6'3 and only weigh 135. Although before i got terribly sick with the stomach flu i was 155.
As you can notice, my body is slightly slanted. I don't have scoliosis, but my right rib cage i think is slightly bigger.
And my skin is kinda stretchy.
Here's another pic:
My doctor thinks i'm fine, but i disagree with him. I want to ask if i can get tested, but i don't think he'll let me. I asked him about marfan symdrome because i thought i had that, and he said i was fine.
I have no family history of a connective tissue disease, which makes it harder to get tested.
Please, no immature comments about how i look grotesquely skinny, or if i'm ugly. I just want help.
Thanks for reading and for any help!
Edited April 12, 2013 at 7:38 pm