colonoscopy with vascular eds

Wondering about a colonoscopy in a veds patient. How does the risk of rupture from the traditional scope compare to the risk from the distention of the bowel in a virtual colonoscopy? Should a veds patient have a colonoscopy as an outpatient or should the risk of complications lead to test being done in hospital with anesthesia and surgeons nearby?

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Please contact Dr. Nazli B. McDonnell, M.D., Ph.D. at the National Institute of Health. Her email is mcdonnellna@grc.nia.nih.gov
She can give you recommendations. She really helped my husband in an emergency situation regarding a scope and the doctor listened to her recommendations. She is researching VEDS at NIH and is so knowledgeable. Here is her bio page: http://www.grc.nia.nih.gov/branches/lci/nmcdonnell.htm

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Thanks so much.

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We were told that invasive tests such as colonoscopy and angiogram should only be performed in absolutely necessary situations only. It was stated in the letter I received from U of W where my test was done.

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Quite right, they should be avoided if possible. The risk of bowel rupture is significant enough on it's own without adding extra risks. That said, I had a traditional one prior to my dx and had no issues. A friend had the virtual CT one and found it very painful and said she would never do it again.

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I have a colonoscopy every year with my vascular eds. I just take prophlatic DDAVP prior to any invasive procedure which has worked for me. I also have a platelet disorder.

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Hi Obitsfan,
May I ask ~ what is your platelet disorder?
Thanks,
Sandra

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