So many of us with Ehlers Danlos Syndrome have also been diagnosed with Chiari Malformation, brain settling, tethered cord, etc. As a newly diagnosed Chiarian (for lack of a better word) I was wondering who else is out there? I have met many of you via facebook and thought this would be a great way to meet others and offer support to each other. I am a patient of Dr. Fraser Henderson and trust him completely. He has spoken at the EDNF conference and will be performing my surgery when the time comes. Hope this small note finds everyone well. Looking forward to hearing from all of you!!!