Brighton Score

Hope I spelled that right. I keep seeing different numbers for a minimum to be classified as hypermobile. I've even seen as low as a 1/9 on a hypermobility web site. Anybody know the lowest number to qualify as Classical?

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It's the beighton scale....I don't know the lowest number but I think to be classified hyper mobile you have to at least be a 5 or more...I was a 8 out of 9.......it may vary I'm not a dr so I'm not exactly sure but I'm sure if you google it there's a bunch of stuff on it. Good luck.

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Oops, I keep doing that. Beighton! I even read about how people confuse it and i still do it! Thanks for the reply. I was reading about a 7 yr. old who only scored 2/9 but had so many other manifestations they classified him as classical. Who knows.

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There's the Beighton Scale and the Brighton Score. They work hand in hand, but they do both exist.

http://www.hypermobility.org/diagnosis.php

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The score itself only indicates hypermobility. It doesn't indicate the type of EDS a person has.

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jessi311 - thanks for the link! Lots of good information there.

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Lol, I am not sure even the professionals are quite sure. The beighton is 5/9 but I scored 4/9 (not sure how) and the geneticist told me he was pretty sure I have EDS hypermobility. Ok, so the score confusion. My thumbs can be easily pulled down to touch my forearm, 2 points, I can touch the floor flat palmed (hard though due to knee injury), 1 point, my pinky fingers can be bent back a little past 90 degrees, 2 points? No, I only received 1 point, why? No, idea. I asked a different doctor and she said that you should be able to flop your pinky easily backward with 1 finger.... well then, seems to me that since both of my finger joints are the same, I should have no points.

This is the test that is holding me back from a definite diagnosis. What I find funny is that every professional I have seen, comments on my joint laxity (I can fully disclocate my left hip and it regularly rearranges itself,Ouch!) How is it that I can have all of this pain causing laxity but not be hypermobile? Tell that to my wobbly knees, fingers and wrists!

Ok, sorry to rant but this is a real sore point for me....

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@HKfan - sorry to hear you've been having difficulty with diagnosis. But it's not just the Beighton criteria that diagnoses EDS (as people get older many of their joints actually start to be less hypermobile), but it seems to me that your hip issue (and your wobbly knees, fingers and wrists) would at least warrant additional evaluation/consideration to see what is going on. if you haven't read it yet, Dr. Tinkle's book "Joint Hypermobility Handbook- A Guide for the Issues & Management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome" it might be a good place to start to get information so you are able to communicate your concerns to other doctors/specialists.

@KellyGremlin - 1/9 is pretty low, but as stated above, some people start out hypermobile in some joints and then are not as hypermobile as they age. That is why geneticists and other doctors take a family history (parents/grandparents/aunts/uncles) to see what other characteristics are seen within a family.

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Wow, I thought I was the only one with a high (for my age) Beighton score who was told by a geneticist that she didn't have EDS! Of course, he specializes in Marfan's, and anyone with functioning eyes can tell I don't have that. Big feet (9 1/2 or 10, depending on the shoe style), which run in the family (groan), and, apparently, unusually large eyes, but the rest...nope, not tall. Slender, yes; prominent veins almost everywhere (not in the feet, due to primary lymphedema); that disgusting but handy ability to touch the nose with the tongue; and until I decided to stop doing those "party tricks"--because they started to hurt, especially in the hands--a Beighton score of 7/9 on a good day and 5 or 6 on a bad one. That was a year or two ago and I'm 60. Oh, and despite three eye-muscle surgeries, I still have congenital strabismus. Double vision with my right eye, fuzzy with my left, and I can't fuse images. The last two surgeries were in '06 and '08, the first in 1954. My eyes look good except when one or both decide to turn in (before '06, both turned out for many years); the last surgery left my right eye with some visible scar tissue that makes it look red sometimes. However, I have some depth perception now and it's very nice indeed!

So...I know I have HMS (hypermobility syndrome) and my doctors attribute the nasty trouble with my teeth to it...and, yes, I have Brad Tinkle's book, and perhaps in a few years some doctor who's been studying such conditions will tell me I do have EDS! At least I have very young-looking skin, or so people tell me. No one believes me when I tell them how old I am. That used to bother me, but believe me, you reach an age at which you're grateful for things like that! My paternal grandmother (who also had strabismus...actually, they both did...and who (my dad's mother) had primary lymphedema, as does my uncle) had gorgeous skin. Evidently her mother and two sisters did as well. I only knew my grandmother but my dad's cousin remembers them all.

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Something to keep in mind too...is that you need a dr familiar with hypermobilityto access you on the beighton scale. Because for instance my case is they had to take into account what my joints were before the surgery.....because I've had so many injuries and surgeries some things aren't as hyper mobile as they were...

Also In my opinion one of the best Drs to access this would be an orthopedic surgeon...they recognize joint hyper mobility very easily and understand what is normal or not. My orthopedic surgeon is the one who first diagnosed ehlers Danlos because he deals in joints very day and knows how much range of motion each joint should have. I would try to go to an orthopedic dr to be re asseced if you dont have an eds dr close.

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@Fightin2survive -- one would think that orthopaedic doctors should be well versed in EDS, however, like all specialists, it depends on the doctor, not the speciality. After my son was DX'd, we got a base-line spine x-ray because he has a very slight scolosis, and this would give us a beginning point if we ever needed it. The doctor, in a teaching hospital, completely discounted the EDS diagnosis ("I don't care what those doctors in genetics say" (both specialities in the same hospital)) - Interns and the doctor bent my son in every position imaginable, Dr. said DS had "benign joint hypermobility syndrome" that pain without redness or inflamation was "in the head" - and "for attention" (for what it's worth, my DS started waking up with pain issues when he wasn't even talking yet - and continued throughout the years -- kids don't wake up at 2:00 with screaming pain for "attention"). As he was talking to me, DS played tiddly-winks with his knee-caps and giggled, and giggled (something he has never done again). The doctor's report, that I only read 2 years later after I changed pediatricians and got all of my son's records, stated that his professional opinion was that my son Did Not have Ehlers-Danlos Syndrome. That doctor is now concentrating more on spine issues, so hopefully I won't have to run into him again. When DS dislocated/subluxed his shoulder last July we did end up with a doctor in that department who did have more knowledge of EDS, and who I will ask for if we end up in Orthopaedics again.

It doesn't hurt before an evaluation somewhere to ask how many patients who have EDS the doctor has had experience with. Even PTs, OTs, and Rheumatologists have hit and miss with patients who have EDS.

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