I was diagnosed with Fibro three years ago. I'm 23 now. It began with Brachial Plexitis and went downhill from there. None of the doctors I've seen have checked my tender points which I'm pretty sure by now is the standard way to diagnose Fibromyalgia, in addition to all the other symptoms of course. My recent MRI was clean for Ankylosing Spondylitis. And all bloodwork has also been negative for Rheumatoid Arthritis, Lupus, etc.
I feel the only reason I was told I have Fibro is coz they all just assumed I'm depressed and because the tests didn't show anything. i say this because they barely heard me when I talked about my joints and declared that i just "feel" that its in my joints (since the tests were normal) whereas its actually in my muscles.
It's been three years and the condition of my joints has been getting worse which leads me to believe that I may have been misdiagnosed.
My muscles are not as much of a problem as my joints are although i do have chronic pain (presumably coz they get overstressed). Joints are very unstable because i which I fall a lot. My physiotherapist cum Yoga instructor tells me that my joints (ankles, knees, hips, shoulders, elbows) are too loose and in fact move way beyond the normal range of motion making me super flexible. Yet no doctor has ever checked me for joint hypermobility. My joints pop out and back in (I don't know how to explain it but it's not the way other people dislocate their joints. It happens spontaneously and they go back in with relative ease). Even so, the chronic pain is unrelated to the joint "dislocations". And since starting Yoga my joints have become even more loose leading to more instability.
Fibromyalgia sucks but from what I'v read, it doesn't progressively get worse. And unstable (that sounds like an understatement now) joints feature nowhere in the diagnostic criteria. My condition on the other hand is definitely getting worse. Last night my left hip came out simply because I bent a little to pick up something from the floor.
Does any of this sound familiar to anyone? And also I do have very soft, stretchy skin which i previously thought was a good thing but apparently it isn't! Get bruised a lot but I'm not anemic. And stretch mark like white scars everywhere even though I've never gained weight. By everywhere i mean even in places like top of the thighs where even heavy people don't have them. I'll never be caught in a bikini for sure!
If anyone likes I could provide more symptoms..Got lots where these came from!