Ehlers-Danlos National Foundation Support Community

Ehlers-Danlos National Foundation (EDNF) creates resources for those affected by the connective tissue disorder Ehlers-Danlos syndrome (EDS). Established in 1985, we are a 501(c)(3) nonprofit organization with thousands of members from the Americas and abroad. By leading the charge for knowledge and awareness about EDS, we are building a community of people who work together to create change.

Individuals with EDS have a genetic defect in the connective tissue that provides structural support to most of the body, including skin, muscles and ligaments. Collagen is the protein that acts as a sort of glue that gives strength and elasticity to connective tissue; the fragile skin and unstable joints found in EDS result from faulty collagen. EDS is a varied group of heritable connective tissue disorders that are characterized by articular hypermobility (joints that move or bend more than normal), skin softness and stretchiness, and tissue fragility. There are at least six major types of EDS which are classified by their manifestation of distinct signs and symptoms. Each EDS type is thought to involve a unique defect in connective tissue, although not all of the genes responsible for causing EDS have been identified. EDS affects men and women of all racial and ethnic backgrounds. To learn more about EDS, please visit our Website at www.ednf.org.

In conjunction with EDNF's mission, we are pleased to provide you with some of the most comprehensive resources for those affected by EDS. As developments are made toward a better understanding of EDS, we dedicate ourselves to maintaining dynamic and practical content on this site. We encourage you to participate so others may learn and feel connected.

About this community

The Ehlers-Danlos National Foundation Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration. This community is sponsored by the Ehlers-Danlos National Foundation, an Inspire trusted partner.