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A little forum humour

CentaurInaChinashop
  • By CentaurInaChinashop · New reply 9:16 pm
  • Journal · 15 replies
  • I've been noticing some posts over the last little while that seemed to have a degree of negativity. Either in the post itself, or in the replies. I am usually very impressed with the degree of helpfulness ...

Any one tried Sarapin injections ?

barna-bob

essential oils, anyone have experience using these for EDS symptoms?

kmfleet
  • By kmfleet · New reply 8:41 pm
  • Discussion in Pain management · 9 replies
  • I have HEDS, and am 43 years old......this time of the year my pain seems to get worse. Cold weather really wreaks havoc on most of my body, but especially my hands, hips, shoulders and neck. I have more ...

friday

shore1
  • By shore1 · New reply 8:15 pm
  • Journal · 3 replies · Photos
  • good morning everyone, i hope you are doing well as can be today. getting shocked with my tens unit on my r/shoulder. it's been acting up and sleeping on that side does not help. looks like i missed another ...

EDS and aging

Gmmharris
  • By Gmmharris · New reply 8:08 pm
  • Discussion in Hypermobile EDS (Type III) · 2 replies
  • Greetings all, I saw a discussion on this site as to if EDS is degenerative. I am living proof that it is! I started surgery at 3 months old for Hip Dysplasia. My joints became more and more unstable ...

Collapse - has this happened to you?

Jenny1993
  • By Jenny1993 · New reply 7:57 pm
  • Discussion in Hypermobile EDS (Type III) · 18 replies
  • Good morning. Hope everyone feels their best today. So I've had a couple of episodes when my legs basically become like rubber and I feel unable to control them. It begins with the general feeling of ...

need ophthalmologist

j3ssed5
  • By j3ssed5 · New reply 7:36 pm
  • Discussion in Hypermobile EDS (Type III) · 4 replies
  • My daughter has EDS. She is in her late 20's and was diagnosed just a few years ago. Recent, she has been having a recurrent burst bod vessel in one eye. We're concerned it may be EDS related but haven't ...

Disability Denial #2

hails1115
  • By hails1115 · New reply 5:10 pm
  • Discussion in General discussion · 7 replies
  • I have just been denied disability for the second time..I am so down and depressed with these results...I can't possibly work with all the appointments, pain, and heart complications...even with tons ...

ARTICLE: Studies Indicating Losartan treatment for Marfan

Cotntail
  • By Cotntail · New reply 3:59 pm
  • Discussion in Artery / heart / cardiovascular issues · 6 replies
  • Yeah, I know it says Marfan, but I think it's possibly applicable with other CTDs that affect the cardiovascular system. Besides, there are folks on here with Marfan and I thought that it was an interesting ...

Coping with work

CarolineG
  • By CarolineG · New reply 2:55 pm
  • Discussion in Hypermobile EDS (Type III) · 4 replies
  • I'm a psychiatric nurse with many years experience under my belt. I used to be an associate manager dealing with the most acutely ill patients. Now, due to chronic back pain and accompanying sciatica ...

Possible relief for neuropathy or burning feet

h_wallace
  • By h_wallace · New reply 1:15 pm
  • Discussion in Neurologic issues · 13 replies
  • I am writing this to hopefully help anyone out there dealing with neuropathic pain. I started battling it in my late twenties and tried every type of medicine out there for it. I saw 4 neurologist, all ...

Dr. Henderson

newcode
  • By newcode · New reply 12:07 pm
  • Discussion in General discussion · 4 replies
  • I am trying to make an appointment with Dr. Henderson, (Chevy Chase) MD.) The person who answer the phone said he was no longer seeing new patients, and please call Dr. TYE. Anybody had surgery with him ...

Confused

ShaneD
  • By ShaneD · New reply 6:32 am
  • Discussion in Newly diagnosed · 3 replies
  • I was seeing a Rheumatologist for Floriquinalone Toxicity and through my medical history and evaluation and test have been diagnosed with ED Hypermobility. Quick history, 45, 9 arthroscopic knee surgeries ...

Working link to loose-connections article?

Jake_Zero
  • By Jake_Zero · New reply 12:44 am
  • Discussion in Pain management · 2 replies
  • Hi. I'm new to the boards. I was diagnosed with EDS type IV (vascular) when I was young through genetic testing. Lots of great info on these boards!! One bit of info that is referred to a few times is ...

I need some direction, please?

jewelrymkr1
  • By jewelrymkr1 · New reply yesterday at 9:08 pm
  • Discussion in Local support groups · 3 replies
  • Hello, My name is Suzanne and I have been Dx with full body RSD/CRPS and I have Chiari I, multiple herniated and bulging discs in my neck and back, Deg. disc disease, R.A., Atrial fibrillation, a pacemaker ...

Don't know where to turn?

jewelrymkr1
  • By jewelrymkr1 · New reply yesterday at 5:38 pm
  • Journal · 5 replies · Photos
  • Hi, I am a chronic pain patient with diagnosed full body RSD/CRPS, Dysautonomia/POTS and I'm just as sure as I can be that I have EDS. My GP said that I shouldn't bother going to another Dr. with all ...

Increasing Severity in Later Generations?

themastertactician
  • By themastertactician · New reply yesterday at 1:46 pm
  • Discussion in Parents of children with EDS · 5 replies
  • New here, but not really in the mood to type out my medical history right now haha (I have to say, finding a community where that's something I'm not only free to talk about, but encouraged to talk about ...

Newly Diagnosed

JaniClark
  • By JaniClark · New reply yesterday at 11:29 am
  • Discussion in Hypermobile EDS (Type III) · 1 reply
  • My middle and eldest child and I have been diagnosed with Type III as of the beginning of October. My youngest probably is also there, since she has had problems with her feet, ankles, knees and hips ...

My heart was beating fast and loud but i wasn't being active.

TeddehBear
  • By TeddehBear · New reply yesterday at 10:43 am
  • Discussion in Artery / heart / cardiovascular issues · 4 replies
  • Today in class, I was just sitting at my desk, listening to music, when I noticed that my breathing has gotten a little shallow and my heart was beating a little fast and loud. The next thing that made ...

Possible relief for neuropathic pain or burning feet in Ehlers patients

h_wallace
  • By h_wallace · Posted yesterday at 7:21 am
  • Journal · 0 replies
  • I am writing this to hopefully help anyone out there dealing with neuropathic pain. I started battling it in my late twenties and tried every type of medicine out there for it. I saw 4 neurologist, all ...

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The Ehlers-Danlos National Foundation Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration. This community is sponsored by the Ehlers-Danlos National Foundation, an Inspire trusted partner.