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K Laser

smitty02
  • By smitty02 · New reply 12:23 am
  • Discussion in Neurologic issues · 21 replies
  • A friend heard about K Laser light therapy. She uses it for neuropathy in her foot and claims it has helped a lot. Interest in hearing from any knowledge about this procedure ...

Costochondritis

veg954
  • By veg954 · New reply 12:12 am
  • Discussion in Hypermobile EDS (Type III) · 1 reply
  • Have been getting one attack of Costochronditis after another. The pain is really tough to handle. Have tried almost everything to get some relief. Have been up since 2 am and no relief in sight. I don't ...

Type 2 and 3

behlbe
  • By behlbe · Posted 12:00 am
  • Discussion in Other types of EDS · 0 replies
  • Is there a way to know for sure what your type is? My geneticist thought I was a type two and type three but said there wasn't a for sure way to know. Need some guidance ...

EDS or Hypermobile Syndrome?

Terrien90
  • By Terrien90 · New reply yesterday at 10:09 pm
  • Journal · 25 replies · Photos
  • Hello! I am a nearly 25 year old girl, who lives in Norway. I am not shure about my diagnosis... An orthopedic doctor just put the diagnosis "Ehler Danlos Syndrome, hypermobile" in my journal last spring(2014 ...

EDS type 3 and Borderline hip dysplasia

Terrien90
  • By Terrien90 · New reply yesterday at 7:17 pm
  • Discussion in Bones, joints and muscles · 8 replies
  • Hello! Anyone here who have any experience with hip dysplasia in combination with hypermobility? I got bilateral borderline hip dysplasia (CE angles, right: 23 degrees, left: 20 degrees), and my surgeon ...

Am calf pain

e18harmelech
  • By e18harmelech · New reply yesterday at 7:00 pm
  • Discussion in Pain management · 3 replies
  • Does anyone else wake on the morning with their calf muscles being really tight and sore? This has been happening every for the last week or so for me. Erica ...

Suggestions for the best pillow to buy

momsfight
  • By momsfight · New reply yesterday at 6:49 pm
  • Discussion in General discussion · 16 replies
  • I have not been able to find a comfortable pillow that doesn't aggravate my neck issues and cause me to have pain and headaches. I thought before I purchased one would like to research here ...

Temporal Artritis Symptoms etc?

mywackybody
  • By mywackybody · Posted yesterday at 6:42 pm
  • Discussion in Neurologic issues · 0 replies
  • I had a very strange thing happen to me a couple years ago. I have photos of it happening. My temples especially my right one suddenly started to waste away. It started at my temple and worked all the ...

What can I do?

Come_alongpond
  • By Come_alongpond · New reply yesterday at 5:19 pm
  • Journal · 6 replies
  • I was just diagnosed with EDS type 3. I feel extremely limited now. I'm 16, and now I have to worry about medication, managing pain, doctor's appointments... I can no longer accomplish my goals that I ...

pain and sex

amyj24
  • By amyj24 · New reply yesterday at 4:12 pm
  • Discussion in Newly diagnosed · 4 replies
  • My Partner was just Diagnosed With EDS. She is in a lot of pain and trying to find the right medications to make things livable. We had a healthy sex life 3 or 4 times a week. We currently have put sex ...

Swollen Uvula

romeyrider
  • By romeyrider · New reply yesterday at 7:12 am
  • Discussion in Eyes, ears, nose and throat · 1 reply
  • Sometimes my uvula becomes swollen. I always chopped it up to being allergies but I thought I would ask to see if this phenomenon has happened or happens to anyone else ...

Flying with craniocervical instability

Soxgirl
  • By Soxgirl · New reply yesterday at 6:59 am
  • Discussion in General discussion · 5 replies
  • I have noticed that the pressure in my head greatly increases with flying and can last for weeks after. Do others experience this? Besides wearing the cervical collar is there anything else to try? Is ...

Are there any other people with type 3 that suffer from Gastroparesis?

romeyrider
  • By romeyrider · New reply yesterday at 5:31 am
  • Discussion in Hypermobile EDS (Type III) · 4 replies
  • I have really bad Gastroparesis due to my eds. I had a pacemaker put in but that didn't help so I ended up getting a subtotal gasterectomy. That was about a year and a half ago. Has any one gone through ...

National Doctor's Day

cwmom24
  • By cwmom24 · New reply yesterday at 12:43 am
  • Discussion in General discussion · 8 replies
  • Today is National Doctor's Day. Let your doctor know he is appreciated. Have a good day ...

Can someone explain mast cell?

Peaceloveabby
  • By Peaceloveabby · New reply yesterday at 12:31 am
  • Discussion in General discussion · 16 replies
  • I know a lot of eds people also have the mast cell activation issues and I've tried to research it but I just keep coming up with these super scientific definitions. I was wondering if anyone could explain ...

spine congenital defects

e18harmelech
  • By e18harmelech · New reply March 30, 2015
  • Discussion in General discussion · 1 reply · Photos
  • Does anyone have an unfused posterior arch of the c1 or know what that means ...

Are you on disability?

romeyrider
  • By romeyrider · New reply March 30, 2015
  • Discussion in General discussion · 1 reply
  • I have been trying to get on for the last 2 years with no luck. Now I have a court date that I have to prepare for. Any suggestions? Thanks ...

Struggling for Confirmed Diagnosis

Lcosta
  • By Lcosta · Posted March 30, 2015
  • Discussion in Hypermobile EDS (Type III) · 0 replies
  • Brief medical history. Was a gymnast most of my childhood so frequent dislocations were just part of game. At 18 I had my first cervical and lumbar MRI. Cervical showed cervical kyphosis and lumbar showed ...

TMJ completely unstable

Ragdoll88
  • By Ragdoll88 · Posted March 30, 2015
  • Discussion in Hypermobile EDS (Type III) · 0 replies
  • A recurring pattern in my joint issues is that once a trauma occurs, the joint is forever compromised. This has happened with notably with my ankles, wrists, most of my spine (particularly c-spine), and ...

Connective Tissue, EDS and Head and Cervical Pain

KellieMeckes
  • By KellieMeckes · New reply March 30, 2015
  • Discussion in EDS awareness · 7 replies
  • A R T I C L E American Journal of Medical Genetics Part C (Seminars in Medical Genetics) 9999:1–14 (2015) Connective Tissue, Ehlers–Danlos Syndrome(s), and Head and Cervical Pain MARCO CASTORI, SILVIA ...

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About this community

The Ehlers-Danlos National Foundation Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration. This community is sponsored by the Ehlers-Danlos National Foundation, an Inspire trusted partner.