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Any good pain and EDS doctors in Treasure Coast? [SE, Florida 34950]

  • By kirlog · New reply 12:41 am
  • Discussion in Pain management · 1 reply
  • I was diagnosed with EDS over five years ago, and have been unable to work due to it for several, so only now am I able to get insurance and see specialists. So far I have referals for Pain Management ...

FDA issues warning over corticosteroids injections in spine

  • By Cotntail · New reply 12:15 am
  • Discussion in General discussion · 5 replies
  • Today's AMA Morning Rounds newsletter had these links (below) regarding new warnings issued by the FDA. So many of us have spinal issues that I thought it might be useful to discuss this with your doctor ...

My Doctor

  • By BekieBoots · Posted 12:07 am
  • Journal · 0 replies
  • I went to see my doctor to talk about having EDS and how she could support me in my journey to finding out just what is wrong with my body and why it hurts. My sister came along with me and she got the ...

Two Heart Transplants & a Kidney Transplant

  • By doncoover · New reply yesterday at 11:21 pm
  • Journal · 3 replies
  • I was born almost 70 years ago with Ehlers-Danlos Syndrome. I knew as a child I had hyper-elastic skin which would bruise, cut, tear, and traumatize very easily. I knew what to expect due to the fact ...

EDS pain and arthritis pain? locked spine is surgery worth it?

  • By DUDLMOM · New reply yesterday at 10:47 pm
  • Discussion in Hypermobile EDS (Type III) · 1 reply
  • I have had pain for so much of my life and so many injuries I'm a bit confused. Have my joints been subluxing all the time which is the pain I'm feeling or is it arthritis pain? I live in pain everyday ...

Edler-Danlos Medical Bracelet

  • By GingerRose · New reply yesterday at 9:24 pm
  • Discussion in Hypermobile EDS (Type III) · 8 replies
  • Someone close to me has EDS type 3, it took eight years to find out exactly why she had these medical problems. About five years ago a Dr. at the Cleveland Clinic knew what was wrong with her. Since then ...

How to explain pain from hypermobility to friends.

  • By meggles_57 · New reply yesterday at 7:51 pm
  • Discussion in Pain management · 7 replies
  • I was newly diagnosed with hypermobility syndrome. With this came lots of excitement as my whole life makes sense now. I don't have it near as bad as many people on here talk about, so I feel a bit selfish ...

walking out in faith,and obedience

  • By assurance · New reply yesterday at 6:53 pm
  • Journal · 1 reply
  • My dear sisters out there. I know it is a,reality that we live daily with ain and uncertainties of what the future will hold for us but please do not let this crazy EDS get the best of you, especially ...

we have to make this known

  • By jenbowhay · New reply yesterday at 6:27 pm
  • Journal · 7 replies
  • My daughter diagnosed herself and all her doctors told her she was crazy- she was TOO pretty. Alas, this disease took her mind, her spirit, her beauty, her friends: so fast. We just had a positive diagnosis ...

Guys I don't even know :P

  • By KristyKit · New reply yesterday at 4:41 pm
  • Discussion in Hypermobile EDS (Type III) · 4 replies
  • Hello. So I'm super new to this website and don't know a lot about this, so bare with me xP I have know that I have EDS for about 5+ years now, but I've had the pain for even longer. I don't really know ...

Passing it on to children...

  • By CijiS · New reply yesterday at 4:01 pm
  • Discussion in General discussion · 1 reply
  • I have not been officially diagnosed but I meet both the major and minor criteria for Vascular EDS. I have been waiting for my genetics appt since October and it is in about 5 weeks. I have a question ...

Organ failure

  • By doncoover · Posted yesterday at 3:41 pm
  • Journal · 0 replies
  • I would be interested to know how many people like myself have had organ failure due to Ehlers-Danlos Syndrome & have received a donated organ ...

Ortho surgeon in Boston area that understands EDS

  • By Dicon · New reply yesterday at 2:46 pm
  • Discussion in General discussion · 2 replies
  • Can anyone recommend an Ortho Surgeon in the Boston area who understands EDS? I am having difficulty with an unstable shoulder that is causing significant vascular issues. Any help is greatly appreciated ...

Too much for friends?

  • By Mander9888 · New reply yesterday at 2:43 pm
  • Discussion in EDS awareness · 6 replies
  • Just recently my best friend broke up with me. I say it this way because we weren't just friends... We were sisters, bosom buddies, absolutely connected. My daughter looked to her as a second mother ...

EDS and Dysgraphia

  • By Benningtonclan · New reply yesterday at 12:55 pm
  • Discussion in Parents of children with EDS · 13 replies
  • I was just wondering if there has actually been a scientific link between EDS and people with dysgraphia? If so, where might I find that info? Both of my son's have EDS. As well as myself. My eldest son ...

TMJ and hard cervical collar

  • By loosiegoosie · New reply yesterday at 9:27 am
  • Discussion in General discussion · 1 reply
  • I have had severe TMJ problems for about 30 years now. I now also have a c2 vertebra that does not play nicely with others (it subluxes and I have a c3-c6 fusion), and a soft collar is no longer enough ...

Pinching in spinal chord/Cervical Spondylosis

  • By joannaemery · New reply yesterday at 12:54 am
  • Discussion in Neurologic issues · 36 replies
  • Does anyone know anything about the neck? I just had an upright MRI and the Neurologist said I have pinching in the spinal chord on multiple levels and Cervical Spondylosis. He said no Chiari. This would ...

Must See! Google's: My Beautiful Earth pictures!

  • By Rache · New reply April 23, 2014
  • Discussion in General discussion · 5 replies
  • sorry, folks I meant to post this yesterday (I forgot) This link available to click on, just below where you would type 'into' Google (apparently they have already changed what is in that spot) For those ...

Bilateral Flank Pain

  • By kellygremlin · New reply April 23, 2014
  • Discussion in General discussion · 11 replies
  • Hi. My 16 yr. old son was outside kicking the football and running and catching it for hours on end (as usual)! All the sudden his sides started hurting really bad. He came inside and sat down which helped ...

Abdominal Aortic Aneurism

  • By suncloud · New reply April 23, 2014
  • Discussion in Hypermobile EDS (Type III) · 11 replies
  • Hi everyone. I wondered if anyone here has had an abdominal aortic embolism due to eds or otherwise. I would be very grateful for any replies or advice on this. Thank you in advance xxx ...

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The Ehlers-Danlos National Foundation Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration. This community is sponsored by the Ehlers-Danlos National Foundation, an Inspire trusted partner.