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"Building Bridges for Down Syndrome” 4th Biennial Research & Awareness Co

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June 10, 2009 - Parents of children with Down syndrome (DS) are universally concerned about the wellbeing of their child’s health, future, and ability to connect with other DS families. The Down Syndrome Association of Greater Cincinnati (DSAGC) hosts “Building Bridges for Down Syndrome”: the fourth biennial research and awareness conference presented by the International Mosaic Down Syndrome Association (IMDSA).



The term Down syndrome (DS) was named after Dr. Langdon Down, a British doctor who first described the condition in 1887. This year marks the 50th Anniversary of the discovery of the extra 21st chromosome that causes Down syndrome. DS is a genetic condition that occurs in one in every eight-hundred (800) births. There are four types of Down syndrome: Trisomy-21, Translocation, Mosaic, and Mosaic-Translocation.



The Down syndrome community has leapt many hurdles in paving the way for future generations, but there is still a lot of work to do. The attendees of this biennial research and awareness conference are empowered with information, hope for the future of all individuals with DS, and are given the opportunity to participate in various research studies being conducted onsite during the conference. Teens and adults with DS, along with their siblings, will learn everything from how to manage a budget to relationships and friendships in the "Teen and Adult Conference.” Children ages 2-12 with DS will learn a variety of subjects: Acting and Puppetry to Bullying to Stranger Danger in the "Kid Konference.” Students interested in professional careers pertaining to DS will supervise these youngsters; giving them a better understanding of what DS really means for these individuals. Together, families and professionals will enjoy the "Friday Night Family Reunion & Silent Auction" with entertainment from The Amazing Portable Circus and self-advocates Sujeet Desai, Tim Colvin, and Casey Morton.



Some attendees of the 2007 conference held in Richmond, VA said, "At the IMDSA's Conference, there's a sense of family the moment you step through the doors, everyone is welcoming. I've learned so many things from all the speakers!"



Join IMDSA and DSAGC Friday, July 10 through Sunday, July 12 at the Sheraton Cincinnati North Hotel and Indoor Water Resort in Sharonville, Ohio for a fully scheduled weekend of information, family fun, socialization, and entertainment by Sujeet Desai, Dan Kulp, Tim Colvin, and Casey Morton. Over 30 experts will discuss various topics that will beneficial to the betterment of all families of children and adults with DS. This is a life-span conference with topics pertaining to all ages of people with DS. Researchers and professionals will also benefit greatly by attending. There will be many great activities, workshops, and sharing of information. A sure highlight of the weekend will be the "Family Awards and Celebration Banquet and Dance" with self-advocate Jennifer Katz and comedian/musician Dan Kulp.



Reservations are filling fast and space is limited, so register and reserve your spot today! For more information on how to register, visit www.imdsa.org





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The International Mosaic Down Syndrome Association (IMDSA) provides support, information, and research to any family, individual, or professional whose life has been affected by mosaic Down syndrome and Down syndrome.


Contact:

Kristy Colvin

IMDSA President

Email: president@imdsa. org

Toll free: 1-888-MDS-LINK

Web: www.imdsa.org

Explore topics in this discussion:

Down syndrome

2 replies

the research and work you are all doing is wonderful! I feel like i am in a class all by myself because my 33 yr. old brother has downs and my mom died and now i am big sister/mommy. Do know any others out the like myself??

I know of many siblings out there and this is just beginning to be a growing group for sure! We are big with Yahoo groups, I am not sure if there is a Sibling group on there, but if there isn't you should start one! I bet people would pile in!

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