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Active journals
A painful existence
- By jhewels2 · New reply 5:52 pm
- 3 replies
- I have chronic pain from several different condition but the main condition is Dercum's Disease type 3 which I have suffered from as a child until now. I am 44 yrs old and it wasn't until I was 42-43 ...
got my g-pact card!
- By my4heathens · New reply 5:34 pm
- 6 replies
- I got my g-pact card the other day. Already put it to use and saved a couples bucks when they tried to add $3 to my order for ordering off the kids menu. I'm like nope, got a card to order off the kiddie ...
Thrombosis
- By jalenboyce · Posted 4:03 pm
- 0 replies
- Jalen started not feeling well for a couple of days but with no major symptoms. So we thought this was just going to be a viral type of thing...ha. About a week later Jalen out of nowhere complains of ...
IS THERE A BETTER WAY TO GET THE BILE OUT OF MY PEG TUBE????
- By Rodeogrl02 · Posted 1:42 pm
- 0 replies
- I had a PEG tube put in last tuesday to use as a vent for air and drainage of bile that otherwise would not leave my stomach (there is a ton of it built up) While i was in the hospital for 3 days they ...
New MIC-KEY J-TUBE, and a traditional PEG TUBE??????CONFUSED!!!!!!!!!!
- By Rodeogrl02 · New reply 10:19 am
- 11 replies
- I finally got my new low profile MIC-KEY J-tube (just j-tube right into the jejunum) and the interventional radiology put it in, the surgeon special ordered it for me since it's a permanent residence ...
finally a small glimmer of hope!
- By dizzybee · New reply yesterday at 2:19 pm
- 7 replies
- went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...
Taking a moment for ourselves
- By nanascorner · New reply November 20, 2009
- 1 reply
- Chamomile Tea Outside the sky is light with stars; There's a hollow roaring from the sea. And, alas! for the little almond flowers, The wind is shaking the almond tree. How little I thought, a year ago ...
PEG Tube placement recovery ?
- By Rodeogrl02 · New reply November 20, 2009
- 13 replies
- I have a J-tube in place directly into my jejunum of my intestine (that was a huge hastle and required major surgery & exploratory anyways) Now on tuesday they are going to put a peg tube in (or g-tube ...
Digestive problems
- By Jason777 · Posted November 19, 2009
- 0 replies
- Many digestive problems are cause by an unbalanced pH in the digestive process. Clinical studies show at many disorders including GERD, Allergies, Diabetes, Cancer, Skin Diseases, Immune disfunction ...
my NIH experience
- By dizzybee · New reply November 17, 2009
- 40 replies
- THIS IS MY EXPERIENCE -- I HAVE TRIED TO LEAVE THE DOCTORS' INVOLVED NAMES OUT SO AS NOT TO CAUSE ISSUES -- AGAIN, THIS IS WHAT HAPPENED TO ME. Well, where to start--nurse took my vitals and some allergy ...
ANYONE HAVE A MIC-EY J-TUBE?????
- By Rodeogrl02 · New reply November 16, 2009
- 15 replies
- I asked my surgeon if there are any other options for J-tubes since mine is permanent for like my life. My j-tube is kinda long and hangs in the way of everything , also gets caught on tons of stuff and ...
Hope Prevails
- By nanascorner · Posted November 16, 2009
- 0 replies
- It’s easy to give up hope. Obstacles and daily living seem to beat hope out of the best of us at times. For me, dealing with the reality of a chronic illness has shaped and changed my life significantly ...
Modular feeds
- By HelenB8 · New reply November 15, 2009
- 3 replies
- Ben is going into Great Ormond Street hospital for a trial of modular feeds. He is doing better being fed into the jejunum but has not gained any weight for nearly 2 years! Our dr thinks he cannot tolerate ...
Does anyone have suggestions for Bile Reflux? Has anyone been to Mayo?
- By JeniMac · New reply November 14, 2009
- 30 replies
- Recently my bile reflux has gotten so bad that sometimes when I bend over, bile comes into my mouth & sometimes my nose. I finally bought bed raisers to help at nighttime, but this is ridiculous. Does ...
Does anyone have SOD?
- By Crystal1219 · New reply November 13, 2009
- 1 reply
- I am 23 and had my gallbladder removed back in November because of Nausea, Vomitting, and Epigastric pain. But the pain never went away. They thought it was Gastroparesis and found out that it wasn't ...
Could the foods you are eating be causing you pain?
- By nanascorner · New reply November 13, 2009
- 5 replies
- When dealing with the reality of living with chronic pain in my life, I never consider that some of the food items that I was consuming on a daily bases , could be a contributing factor in causing some ...
Gastroparesis after Nissen Fundoplication.
- By ajonesy · New reply November 12, 2009
- 19 replies
- Has this happened to anyone? Help ...
Bowel Obstruction from J-tube?????
- By Rodeogrl02 · New reply November 11, 2009
- 9 replies
- I had a colonoscopy and an endoscopy this past monday (the colon part because of having severe diarrhea for weeks), then before we started the procedure my dr asked if he could add on an endoscopy last ...
Still sick
- By shan789 · New reply November 11, 2009
- 19 replies
- It's been 3 weeks and Jake doesn't seem to getting better. He has been vomiting off and on since his Mickey button, for his cecostomy, was placed. We have been to the Dr. office and ER a lot in the past ...
Week 2 of diarrhea!!!
- By Rodeogrl02 · New reply November 9, 2009
- 15 replies
- So I've had my J-tube for severe gastroparesis since july 2nd, then 2 weeks ago I started getting severe liquid diarrhea, my gi dr. treated it w/ xifacin as a bacteria overgrowth in my gi tract, it kind ...
