Journals
- By dizzybee · Posted November 19, 2008
- 10 replies
- I finally got an appt with a geneticist on 1/13. This is just a meeting to see if I need genetic testing, but at least it's a start ...
- By 4feet · Posted November 16, 2008
- 1 reply
- I get severe abdominal cramps when I eat and also nausea and sometimes vomittting. Does anyone know how to relieve these symptoms? I have short bowel syndrome (had most of my small intestine removed ...
- By dizzybee · Posted November 14, 2008
- 6 replies
- Has anyone had a PET & CT with contrast and radioactive tracer and felt sick afterwards? I had one done on 10/24 and every since then I've been very weak, nauseous and just don't feel well. I thought ...
- By 4feet · Posted November 10, 2008
- 3 replies
- Looking for a good GI doctor in the Phoenix, AZ area ...
- By 4feet · Posted November 10, 2008
- 0 replies
- I have short bowel syndrome and am looking for anyone who may know of a good GI doctor in the Phoenix, AZ area. 4feet ...
- By shan789 · Posted November 7, 2008
- 7 replies
- So we ended up at the ER last night, with a very clogged NG tube. The dr. had a nurse try to unclog it, but it wouldn't budge. So they ended up putting in a new one. This one is a little bigger, and last ...
- By mom1993 · Posted November 5, 2008
- 3 replies
- Does anyone suffer from mitochrondrial disease? My daughter is having a cecestomy done. This problem can be related to mitochrondrial disease. Looking for others going through the same thing as us. Theresa ...
- By ROOIES · Posted November 2, 2008
- 1 reply
- Wow! What a emotional roallercoaster ride! Today i am feeling so happy! Went to church this morning to say goodbye as i am departing for South Africa on Friday. I am so thankful for the emotional support ...
- By shan789 · Posted October 29, 2008
- 10 replies
- We only had one good night with the tube not getting plugged. It just seems to get plugged 4 hours into the feed. I have started watering down the formula, and flushing with soda, and running 100cc through ...
- By shan789 · Posted October 23, 2008
- 10 replies
- We saw his surgeon today, not real good, he lost a lb. So he added a feed during the afternoon, so he's getting 1000ML of formula a day. He told Jake the NG tube stays in until, he reaches 110lbs( he's ...
- By KatWood · Posted October 21, 2008
- 0 replies
- Learn more about a clinical research trial that may help. http://www.pursuitstudy.com/post.aspx ...
- By shan789 · Posted October 20, 2008
- 8 replies
- Hi, Jake is still not eating much at all. He is eating about 200 to 400 caloeies a day. He's still getting what he needs through his NG tube. The only problem is that his NG tube keeps getting clogged ...
- By ROOIES · Posted October 16, 2008
- 3 replies
- I phoned the gyno for the results from the colposcopy on Wednesday. He didn't get back to me until 17h30 and off course knowing he was going to call me didn't help at all..... It is so sad that a Dr ...
- By shan789 · Posted October 12, 2008
- 4 replies
- I took Jake to see the surgeon on Wednesday, and he admitted him to the hospital right away. After many test, the upper scope showed he had sever gastritis, and a very bad stomach infection. He ended ...
- By ROOIES · Posted October 10, 2008
- 4 replies
- I went to the gyno for the colposcopy which was an anxious wait on its own.. Now I have to wait till the 22nd to get the results. The gyno didn't realy give me an opportunity to speak - he asked questions ...
- By shan789 · Posted September 18, 2008
- 3 replies
- Jake hasn't gotten better. The phenagren seems to have stopped working. He vomited most of yesterdsy, and is having more drainage from his cecostomy. So, I called yesterday, and lied a little I told them ...
- By shan789 · Posted September 12, 2008
- 12 replies
- It's been 3 weeks and Jake doesn't seem to getting better. He has been vomiting off and on since his Mickey button, for his cecostomy, was placed. We have been to the Dr. office and ER a lot in the past ...
- By KathyG · Posted September 9, 2008
- 6 replies
- Today we went to see his specialist. We found out today that he IS NOT going to send him to Duke University afterall. He is going to talk to a CF Pulmonary Doctor and try to get the DNA screening for ...
- By shan789 · Posted September 6, 2008
- 3 replies
- Jake has been sick for over a month. He was seen at the Er last Monday and we found out that he had an unusal bowel infection in his cecostomy site. They started antibiotics, flagyl and k-flex, and said ...
- By KathyG · Posted September 3, 2008
- 9 replies
- Today I had to take my 6 yr old grandson to the emergency dept. He has been sick for 2 days. In my earlier post I explained that he has a pancreas problem and is taking enzymes. About 5 weeks ago the ...
