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Why are we here?

Brian
  • By Brian · New reply 5:25 pm
  • Journal · 107 replies
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

Nuclear Medicine Scan?

miahmj
  • By miahmj · New reply 4:52 pm
  • Discussion in Lower digestive tract disorders · 3 replies
  • Hi Everyone, I am scheduled to go to Mayo Clinic in Rochester at the end of October. My local doctor thinks that I have pseudo-obstruction. Today I just received a schedule of the tests that the doctors ...

Still sick

shan789
  • By shan789 · New reply October 5, 2008
  • Journal · 12 replies
  • It's been 3 weeks and Jake doesn't seem to getting better. He has been vomiting off and on since his Mickey button, for his cecostomy, was placed. We have been to the Dr. office and ER a lot in the past ...

Waiting...

caletham28
  • By caletham28 · New reply October 2, 2008
  • Journal · 9 replies
  • I just received and email from one of my surgeons letting me know he tried the best he could to get me in sooner to see a colorectal surgeon. I have been bounced around to so many doctors that I am at ...

Finally an appt. at surgeons office

shan789
  • By shan789 · New reply September 19, 2008
  • Journal · 3 replies
  • Jake hasn't gotten better. The phenagren seems to have stopped working. He vomited most of yesterdsy, and is having more drainage from his cecostomy. So, I called yesterday, and lied a little I told them ...

Update on William with the pancreas problem

KathyG
  • By KathyG · New reply September 13, 2008
  • Journal · 6 replies
  • Today we went to see his specialist. We found out today that he IS NOT going to send him to Duke University afterall. He is going to talk to a CF Pulmonary Doctor and try to get the DNA screening for ...

another ER visit

shan789
  • By shan789 · New reply September 7, 2008
  • Journal · 3 replies
  • Jake has been sick for over a month. He was seen at the Er last Monday and we found out that he had an unusal bowel infection in his cecostomy site. They started antibiotics, flagyl and k-flex, and said ...

UPDATE.....URGENT...NEED INFO ON 6YR OLD WITH PANCREAS PROBLEM

KathyG
  • By KathyG · New reply September 4, 2008
  • Journal · 9 replies
  • Today I had to take my 6 yr old grandson to the emergency dept. He has been sick for 2 days. In my earlier post I explained that he has a pancreas problem and is taking enzymes. About 5 weeks ago the ...

Disappointing doctor's appointment

Kate1
  • By Kate1 · New reply September 3, 2008
  • Journal · 10 replies
  • Hi, everyone. I thought it might be good for me to write. I just got back from my PCP and I feel terrible. I went in there feeling positive about the appointment- some things have been better, some things ...

Is he ever going to well?

shan789
  • By shan789 · New reply August 29, 2008
  • Journal · 3 replies
  • Well Jake had his c-tube replaced with a Mic-key on Tuesday. He's having blood draining from his cecostomy site, the more active he is the more drainage. Then he woke up this morning throwing up. I know ...

Need medical info for 6 yr old with pancreas problem?

KathyG
  • By KathyG · New reply August 28, 2008
  • Journal · 4 replies
  • My 6yr. old grandson has been sick since he was 6 months old with respitory problems. He also developed a food allergy very young. Dr's said that he had Asthma. It kept getting worse over time and he ...

Worried mom

shan789
  • By shan789 · New reply August 25, 2008
  • Journal · 5 replies
  • Jake started 7th grade oon Thursday. He was so scared and worried that his friends would find out about his c-tube. I tried talking to him about it but he will not talk to me. He is a great kid and is ...

Checking in with sad news!

caletham28
  • By caletham28 · New reply August 23, 2008
  • Journal · 6 replies
  • I found out yesterday that my health insurance has been denied to the Mayo clinic in AR. I wasn't devastated because I had a feeling that is was going to be denied where it took so long to hear. My case ...

Need another source of income

Zacolton
  • By Zacolton · New reply August 17, 2008
  • Journal · 15 replies
  • So I'm currently working at Blockbuster and the job is great but problem I only have enough energy to work at maximum 30 hours a week and when I head to university this winter I won't be able to juggle ...

Med students, I hate them

shan789
  • By shan789 · New reply August 11, 2008
  • Journal · 9 replies
  • Last Thursday Jake had an appt. with his surgeon(5 weeks out of post op) to discuss his Mickeybutton placement. Instead of his surgeon coming in first a Med student came in. He went to pull up my son's ...

ESOPHAGUS REMOVAL

dolfinangle2003

Checking In

caletham28
  • By caletham28 · New reply August 9, 2008
  • Journal · 7 replies
  • I am so sorry guys and gals for not checking in with you. I am so frustrated and feel so LOST. There is no new news. I am just looking and praying for the right doctor and facility to help me and save ...

Finally I head to Mayo clinic in Sept.

caletham28
  • By caletham28 · New reply August 6, 2008
  • Journal · 10 replies
  • I received the phone call that I will be going to AR to the Mayo clinic to bee seen by a medical team, I am have HOPE. I have to lot figure out first, expenses, who is going with me? (most likely, Mom ...

reglan

SASSYCB
  • By SASSYCB · New reply August 5, 2008
  • Journal · 4 replies
  • anyone have any side effects from this drug ...

suest

dolfinangle2003
  • By dolfinangle2003 · New reply August 4, 2008
  • Discussion in Family and friends · 1 reply
  • Hi Sue, I tried to write you but it came back saying that your mail was full. Yor need to get rid og fome of them so you can get some up dated news. Put them in your saved mail till you can read them ...

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