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Busy day Friday

  • By candacepoet · New reply 10:52 pm
  • Journal · 14 replies
  • Dear friends and family, Tomorrow you won't see me much on the boards, because I have a busy day. I have to be ready for physical therapy at 6:45, and once I get home I have about fifteen minutes to get ...

Question about after my sub total colectomy - any advice welcome

  • By Mitch-S · New reply 6:24 pm
  • Journal · 6 replies
  • Hi guys, I'm 3 weeks post my sub total colectomy and still feeling a lot of sharp pain in my lower right belly - is this to be expected? Am I being to premature to think the pain should be getting less ...

In the ER and being admitted...

  • By lisapavlov · New reply 3:37 pm
  • Journal · 21 replies
  • Waiting on a bed. Had to go yesterday for both chest pain and the ongoing diarrhea (on 13th day). They are concerned about the stents... :(( I also majorly dropped my blood pressure going from lying down ...

QSART test result

  • By BehcetsGirl · Posted 3:10 pm
  • Journal · 0 replies
  • I went to the Cleveland Clinic recently and they did a QSART test (aka Sweat Test). The doctor just sent me the results. She said "it was decreased in the arm but normal in the leg." She also said that ...

Updating, since my April hospitalization.

  • By lisapavlov · New reply 2:20 pm
  • Journal · 7 replies
  • So, I apologize for not being on Inspire much since my hospitalization. When last I left you I had been hospitalized for chest pain and 12 days if diarrhea (no fun!!). It postponed my medical follow-up ...

Sorry It Has Been So Long time since my last post 4/16/2014

  • By littlewhitedove35 · New reply 1:26 pm
  • Journal · 2 replies
  • since my last post I have had 6 feeding tube changes, I got my AFO's , today I got the news that my walking issues my be repairable with back surgery. They are telling me that my back is messing up due ...

1 Year since sub-total colectomy

  • By Qtrmiler · New reply 11:28 am
  • Discussion in Treatment · 2 replies
  • By Qtrmiler Yesterday at 5:54 pm Hi everyone. I can't believe it, but its been a whole year since my surgery to remove 95% of my colon due to genetic attenuated FAP. Due to some excellent medical work ...

Meeting someone like me!

  • By lilpeeps · New reply yesterday at 4:03 pm
  • Journal · 3 replies
  • A new post for my blog.. meeting-someone-like-me.html Have a good day! Michelle ...

Visit to hematologist & pulmonologist

  • By candacepoet · New reply April 15, 2014
  • Journal · 19 replies
  • Well, I went for my six month checkup at the hematologist today, and it looks like I have iron deficiency anemia again, so I will be going into the City for two ferritin infusions. No big deal, and could ...

Boost VHC Drink - 530 Calories

  • By Duvie · New reply April 15, 2014
  • Journal · 67 replies
  • Thanks to a lovely lady battling ALS, I have found out about this new Boost high- calorie drink to pass on to those struggling to maintain or to gain weight. Check it out online. Take special notice to ...

"A wake-up call from a young e-patient: 'I need to be heard'”

  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

food just sits there/naseau/dysautonomia

  • By sweinbe6 · New reply April 15, 2014
  • Discussion in Treatment · 9 replies
  • Hi. I am a 54 year old woman who has MS and was dx. one year ago with another rare autoimmune disease called dysautonomia. Has anyone heard of this. It effects all autonomatic systems in your body. chest ...

G-J Tube

  • By KillaPenguin · New reply April 15, 2014
  • Discussion in Treatment · 1 reply
  • Hey y'all...this might get a little long and I apologize for that, but I'd like some info and advice. I have a gastric pacemaker, since day 1 it has caused me excruciating pain 24/7. Then some times it ...


  • By zenker · Posted April 14, 2014
  • Journal · 0 replies
  • Has anyone ever considered going for "Neurobalancing ...

Nausea, back pain, loss of appetite

  • By lewism33 · New reply April 14, 2014
  • Discussion in Symptoms · 6 replies
  • I am new to this site. I recently started with everyday nausea-bad at times-worse after eating. This has caused me to really cut down on my eating to about once a day and very, very little. This, in turn ...

smart pill study

  • By snarkalot · New reply April 14, 2014
  • Discussion in Living with a digestive system disorder · 2 replies
  • I am having a smart pill study. they are going to insert the pill for me as I have trouble swallowing things. I was told at my last GES study that it took the eggs 85 minutes from swallowing to stomach ...

chronic coughing to point of vomiting

  • By snarkalot · New reply April 14, 2014
  • Discussion in Treatment · 6 replies
  • hi I have GP and am on TPN I have had a cough that over the last two months has become chronic and in the last three days I cough for ten minutes or so at a time and end up vomiting. the many x-rays I've ...

mmihs and prune belly in my little boy

  • By lekker1 · New reply April 13, 2014
  • Discussion in Treatment · 6 replies
  • Hi my 3 month old son has mmihs and prune belly syndrome. He's a twin and his twin is healthy with no issues. I was wondering if anybody else out there had both serious syndromes and how their child or ...

Sleeping - a poem

  • By candacepoet · New reply April 11, 2014
  • Journal · 17 replies
  • Good morning, everyone. While you were sleeping, I wrote this poem in the pre-dawn hours while Loofa slept in the bed next to me. He was a good boy, staying asleep while I changed my stoma gear, and is ...

Curious About The benifits Of Coconut Oil

  • By Duvie · New reply April 10, 2014
  • Journal · 306 replies
  • This past week I've been hearing about coconut nut oil having a lot of great benefits on the body. Can anyone say for sure that coconut oil actually is working for some patients? Thanks for any responses ...

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