Inspire connects patients, families, friends and caregivers for support and inspiration... More about this group

Should I send my twin to daycare and start work???

MarkiaJ490
  • By MarkiaJ490 · New reply 6:35 pm
  • Journal · 1 reply
  • I am the proud mother of twin girls who were born at 24 weeks on April 26,2011. My daughter Ra'kia was born 15.6 oz with a grade 1 brain bleed. My daughter Markia was born 1 lb 4 oz with a grade 3/4 brain ...

Five million

Brian
  • By Brian · New reply yesterday at 8:08 pm
  • Journal · 243 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

Mess of a mom

Ajohnson6918
  • By Ajohnson6918 · New reply June 4, 2013
  • Journal · 17 replies
  • I'm not sure where to even start. There is so much going through my mind it is just ridiculous and I know I've hit my limit. Let's begin with where we are with my son. We got the big diagnosis February ...

A new Inspire report in collaboration with Stanford Medical School

Brian
  • By Brian · New reply May 5, 2013
  • Journal · 84 replies
  • As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...

Shining Bright

Ajohnson6918
  • By Ajohnson6918 · New reply May 4, 2013
  • Journal · 1 reply
  • I don't want to just use this group to vent which I had found myself already doing. I was going through and reading some pretty inspirational stories and realized that the positive moments are what really ...

Any advice?

awh2011
  • By awh2011 · New reply May 1, 2013
  • Discussion in Raising a child with a developmental disability · 1 reply
  • At what age was your child when you found out they had a disability? I just found out my 18 month old son has CMT1A, also known as Charcot Marie Tooth Type 1A. We knew there was a 50/50 chance due to ...

A special online chat--Autism in a Social Society

John2
  • By John2 · Posted April 19, 2013
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire Dear members, Inspire is proud to band with its partner, the Center for Autism & Related Disorders (CARD), and with Montefiore Medical Center in New ...

The Inspire Q&A: Inspire talks with Deanna Attai, MD

John2
  • By John2 · New reply April 16, 2013
  • Journal · 16 replies
  • Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...

FTT, developmental delays and hypertonia

aewood02
  • By aewood02 · Posted April 3, 2013
  • Discussion in Getting a diagnosis · 0 replies
  • my son has failure to thrive. he sees a physical therapist because he is behind in milestones. he was just diagnosed with congential hypertonia. i know its good and therapy should help but are there any ...

Muscle spasticity

averysmom
  • By averysmom · New reply March 20, 2013
  • Journal · 9 replies
  • Has anyone used an all natural alternative to Baclofen such as magnesium. My daughter has been on Baclofen for almost at year and I don't think she has slept a whole night through since. I also feel like ...

my crazy life

mrsmackay
  • By mrsmackay · New reply February 25, 2013
  • Journal · 2 replies
  • So i wrote about my dad not to long ago and first of all i have to say thank you to all the wonderful support and responses. I am thankfull to say that now we have gotten more information requarding my ...

Red Flag to a Bull - Silenced / restricted in UK

julieshrive
  • By julieshrive · New reply February 13, 2013
  • Journal · 42 replies
  • Back again. Silenced- Unfair Hearing on Forums & Phone ins Raising Medical / Social Issues & Concerns .Set up by admin as adversarial . To Health Unlocked Forum Silenced [ restricted] Causing Anxiety ...

Working from the ground up: teaching a child to stand

healthinmotion
  • By healthinmotion · New reply February 7, 2013
  • Journal · 15 replies
  • Learning to stand, and eventually walk, is a major achievement in a child’s progress. Each step is important, and whether or not a child has Down syndrome or another condition, properly preparing him ...

Lord help me hold my tongue.

jenn-e
  • By jenn-e · New reply February 6, 2013
  • Journal · 13 replies
  • I have an IEP meeting tomorrow with my youngest daughters school. It is not the big meeting it's just signing of paperwork and figuring out what test to do. Where the problem lies is the teacher and trying ...

The Inspire Q&A: Inspire talks with Lindsey Miller

John2
  • By John2 · New reply February 6, 2013
  • Journal · 13 replies
  • We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people featured in our Q&A series ...

We're hiring!

Walter
  • By Walter · Posted January 22, 2013
  • Journal · 0 replies
  • Hello everyone, We have a position open with our engineering team at Inspire, and I'd like to share the job description with you in the event you know just the person we're looking for. We found our most ...

Topic Suggestions?

healthinmotion
  • By healthinmotion · New reply January 9, 2013
  • Journal · 5 replies
  • Hey everyone! If there are any blog topics you'd like us to write about, please let us know! We'd be more than happy to write something that interests you or that you'd like to know more about. All the ...

Bedwetting and Special Needs Children

healthinmotion
  • By healthinmotion · New reply November 28, 2012
  • Journal · 1 reply
  • Bedwetting can be frustrating for both children and parents, whether or not they have special needs. But don’t worry–there are several things you can do to help your child overcome bedwetting. 1. Be Supportive ...

Resources Available!

candacetoo
  • By candacetoo · Posted November 15, 2012
  • Discussion in Raising a child with a developmental disability · 0 replies
  • Check out this news coverage for support for micro preemies through Bee Mighty. (www.beemighty.org) Please visit Bee Mighty's facebook page and 'like' to receive updates of how to get involved or receive ...

School confrence

jenn-e
  • By jenn-e · New reply November 15, 2012
  • Journal · 7 replies
  • So why is it everytime a child has trouble staying on task the teacher always wants the child medicated for ADD? Rylee has SPD, and DD. She is around 2 years behind in all areas, of course she doesn't ...

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