Inspire connects patients, families, friends and caregivers for support and inspiration... More about this group

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

Mom of CF child

Skylars_Mom2012

Thank You, From Inspire

Walter
  • By Walter · New reply December 3, 2013
  • Journal · 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

Sources sought for CF-focused article

John2
  • By John2 · Posted October 14, 2013
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 10/14/13 Dear members, A journalist from a national medical publication contacted us seeking to interview an adult with Cystic Fibrosis on the topic ...

Five million

Brian
  • By Brian · New reply August 5, 2013
  • Journal · 261 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

A new Inspire report in collaboration with Stanford Medical School

Brian
  • By Brian · New reply July 22, 2013
  • Journal · 116 replies
  • As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...

Sources sought for article about the Affordable Care Act

John2
  • By John2 · Posted June 24, 2013
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 6/24/13 Dear members, According to the Associated Press (AP), surveys that show that about 75% of uninsured people in the US aren’t aware of opportunities ...

The Inspire Q&A: Inspire talks with Deanna Attai, MD

John2
  • By John2 · New reply April 16, 2013
  • Journal · 16 replies
  • Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...

cystic fibrosis

DipsyMeatball

The Inspire Q&A: Inspire talks with Lindsey Miller

John2
  • By John2 · New reply February 6, 2013
  • Journal · 13 replies
  • We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people featured in our Q&A series ...

Sources sought for article about lung transplants

John2
  • By John2 · Posted January 24, 2013
  • Journal · 0 replies
  • From: John Novack, Communication Director, Inspire Dear members, A journalist with the health Web site for NBC (http://www.nbcnews.com) contacted us last night seeking help with an article. There will ...

We're hiring!

Walter
  • By Walter · Posted January 22, 2013
  • Journal · 0 replies
  • Hello everyone, We have a position open with our engineering team at Inspire, and I'd like to share the job description with you in the event you know just the person we're looking for. We found our most ...

New column: "I am visible. My disease is not."

John2
  • By John2 · Posted November 26, 2012
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire Dear members, I'm writing to share with you a column published today on the "Occupy Healthcare" blog. A I think you'll find it of interest. Michael ...

I need help for my baby

bluewriter
  • By bluewriter · New reply November 1, 2012
  • Discussion in Raising a child with cystic fibrosis · 2 replies
  • My baby has been very sick for 4 1/2 years. But I live in Arkansas and medical care here more than sucks. I am disabled but equally bad medical care. I finally (long story) got them to run tests they ...

Cystic Fibrosis and me

-Mariah-
  • By -Mariah- · Posted May 8, 2012
  • Discussion in Living with cystic fibrosis · 0 replies
  • My name is maddie hilton and i hace CF i am 17 turning 18. I get so pissed having CF... I go to OHSU for my clean outs in OREGON. Where do you go? HOlla For a dollar ...

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