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Five million

Brian
  • By Brian · New reply May 16, 2013
  • Journal · 204 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

A new Inspire report in collaboration with Stanford Medical School

Brian
  • By Brian · New reply May 5, 2013
  • Journal · 84 replies
  • As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...

The Inspire Q&A: Inspire talks with Deanna Attai, MD

John2
  • By John2 · New reply April 16, 2013
  • Journal · 16 replies
  • Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...

cystic fibrosis

DipsyMeatball

The Inspire Q&A: Inspire talks with Lindsey Miller

John2
  • By John2 · New reply February 6, 2013
  • Journal · 13 replies
  • We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people featured in our Q&A series ...

Sources sought for article about lung transplants

John2
  • By John2 · Posted January 24, 2013
  • Journal · 0 replies
  • From: John Novack, Communication Director, Inspire Dear members, A journalist with the health Web site for NBC (http://www.nbcnews.com) contacted us last night seeking help with an article. There will ...

We're hiring!

Walter
  • By Walter · Posted January 22, 2013
  • Journal · 0 replies
  • Hello everyone, We have a position open with our engineering team at Inspire, and I'd like to share the job description with you in the event you know just the person we're looking for. We found our most ...

New column: "I am visible. My disease is not."

John2
  • By John2 · Posted November 26, 2012
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire Dear members, I'm writing to share with you a column published today on the "Occupy Healthcare" blog. A I think you'll find it of interest. Michael ...

I need help for my baby

bluewriter
  • By bluewriter · New reply November 1, 2012
  • Discussion in Raising a child with cystic fibrosis · 2 replies
  • My baby has been very sick for 4 1/2 years. But I live in Arkansas and medical care here more than sucks. I am disabled but equally bad medical care. I finally (long story) got them to run tests they ...

Cystic Fibrosis and me

-Mariah-
  • By -Mariah- · Posted May 8, 2012
  • Discussion in Living with cystic fibrosis · 0 replies
  • My name is maddie hilton and i hace CF i am 17 turning 18. I get so pissed having CF... I go to OHSU for my clean outs in OREGON. Where do you go? HOlla For a dollar ...

having children

kwd (Inactive)
  • By kwd (Inactive) · Posted April 27, 2012
  • Discussion in Family and friends · 0 replies
  • I just signed up with Inspire. I wanted to reply to a question from back in Sept. but the site will not let me. I am a Mother to a CF adult. However, back 37 yrs ago I wanted another child and my husband ...

The Inspire Q&A: Inspire talks with Howard Luks, MD

John2
  • By John2 · New reply April 15, 2012
  • Journal · 59 replies
  • Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...

The Inspire Q&A--Inspire talks with Susan Grant

John2
  • By John2 · New reply February 15, 2012
  • Journal · 31 replies
  • Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people making contributions to helping patients and caregivers worldwide. We are posting these interviews ...

FDA Approves Cystic Fibrosis Drug

Rx
  • By Rx · Posted January 31, 2012
  • Discussion in Treatment · 0 replies
  • The novel drug ivacaftor (Kalydeco), formerly known as VX-770, has been approved for treating cystic fibrosis arising from the G551D-CFTR mutation, the FDA said Tuesday. The drug is the first approved ...

Inspire is hiring!

Walter
  • By Walter · New reply January 20, 2012
  • Journal · 15 replies
  • Inspire is hiring, and we're wondering if you know someone who would be the perfect addition to our team. Hello everyone, I'm Walter, one of Inspire's founders and the head of our technical team. I'm ...

The Inspire Q&A--Inspire talks with Michele Baldwin

John2
  • By John2 · Posted January 3, 2012
  • Journal · 0 replies
  • Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people making contributions to patients and caregivers worldwide. We are posting these interviews in a Q&A ...

Following: A new Inspire feature

Walter
  • By Walter · New reply December 5, 2011
  • Journal · 111 replies
  • Hello everyone, I'm writing to let you know about a new Inspire feature that we launched last night, designed to help you keep track of conversations you're interested in. We call it "following" and here's ...

New to cf... Don't understand much yet

MissLili
  • By MissLili · New reply November 13, 2011
  • Discussion in Family and friends · 4 replies
  • Hello, I am getting married in a few months to the most wonderful man I have ever met. We didn't date for very long before we knew we just wanted to stay together. The biggest trouble is I do not understand ...

Using Invitro to Start a family

caallen
  • By caallen · New reply November 13, 2011
  • Discussion in Family and friends · 4 replies
  • Hello, My husband has Cystic Fibrosis and we are at the beginning stages of using InVitro Fertilization to start our family :). I was wondering if there were any other members going through the similar ...

Patient-driven research

Brian
  • By Brian · Posted October 13, 2011
  • Journal · 0 replies
  • I'd like to share with you a new Inspire report, The SCAD Ladies Stand Up: Stories of Patient Empowerment, which chronicles patient-initiated research in our community. This amazing patient-driven effort ...

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