My wife is 21 and is currently in the hosptial. She has been in and out over the past month except this past time. She was admittied and doctors have come to the conclusian that she has Crohn's Disease. Although they haven't competlly diagnosed her with it since they are waiting for the biopsy to come in before they can do so. She lays beside me in the hospital bed in agonizing pain and all i can do is sit here and watch, telling her everything is gonna be ok. So untill they start treating her for it is their anything that might help her. Please anyone if you know of anything I can do to help her let me know. Also we would like to meet some people with crohns that might be able to help us get through this with coping and dealing with it better. Thank You! Nick
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WHAT CAN I DO TO HELP
- By NickandKaty08
- Posted January 23, 2009 at 3:50 pm · 8 replies
- In Newly diagnosed
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- By networkmom
- Posted February 1, 2009 at 7:07 am
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Hi Nick, My husband has crohns, probably had it most of his life but was diagnosed in his 30's he is now 40's
It is a terrible disease that is all I can say and support and understanding is what your wife is going to need.
It will be hard at times to understand and deal.
We have two teenage boys and raising our 2 year old neice and boy sometimes, well most of the time I feel like a single parent. Research and find out all you can about the disease and hopefully the Dr.s will find meds that will help your wife. Maybe someone else here can give you advice too. Just hang in there.
Denise
- By randynoguts
- Posted February 2, 2009 at 6:23 am
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well for one be sure her pain is controlled as much as possible. i suffered for years before i would insist on pain relief. if the amount they give is not enough, have her ask for more untill it is. it can be excrutiatingly painfull. and drs and nurse dont seem to fathom it sometimes.. as its not a injury they can see.
- By unae
- Posted February 4, 2009 at 10:51 am
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It is always hardest at the beginning. Everything is new and scary. Just being there for her is the most important thing. Acknowledge that things are going to be difficult for awhile and that there are going to be times she does not feel well and is in pain but that you will get through it together. I was 17 and very sick and scared when first diagnosed. My family and husbands support has been very crucial. Things do get better. Just being there for her is very important.
- By NickandKaty08
- Posted February 24, 2009 at 8:03 pm
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Thank You very much for the reply not much time to get on the computer lately. It is very hard to coop with still hard to process. Luckly her sister has come to stay with us for a little while till we can get the pain under control. That way i can go to work. Well i appreciate your time.
Nick@Katy
- By CareBear70
- Posted March 24, 2009 at 3:29 pm
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Just remember on her worst days, love is all you can do. My husband has been amazingly supportive and I have lashed out at him for no reason at all. Prolly the steroid mood swings are his favorite. When she is stuck in the bathroom for hours, bring her a book or laptop, something to occupy her mind. Just let her rest when she is tired and enjoy when she is not. Hope is the hardest thing to find when dealing with a long term illness and there is no cure.
- By heppy
- Posted May 29, 2009 at 9:14 am
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I take pentasa (6 caps) 500 mg a day, and also bentyl, the pentasa made a world of difference...It is expensive also, so I got it from canada, but it wasn't the same, although it should have been, anyway, pentasa really helped me, and the bentyl helped me between the pills.
heppy
- By heppy
- Posted June 8, 2009 at 11:07 am
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bring in a heating pad, and have it on her stomach as long as possible...also, if she is allowed to, give her a tranquilizer (ativan), even a sleeping pill will help...I am so sorry, I understand how she feels, the pentasa sometimes takes so long to work, that once I was going to go to the hosp also, but it finally worked.....
It is a very painful disease.....but with the right medication, it will feel better....
heppy
- By tater
- Posted October 29, 2009 at 11:52 am
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hey nick, Im 20 and been in excrushiating pain since the age of ten. two yrs ago they said i had chrones, honestly wat would be great for u to do is just be there, as much as her stomache hurts its gonna be better if your there holding her hand, maybe a stuffed animal as well, something soft she can hug into her stomache (i recomend a carebear) that way she knows theres a group out in the world that is praying for her and cries with her. hope this helps
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