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Any Trach Patients or Caregivers?

Duvie
  • By Duvie · New reply 6:14 am
  • Journal · 1 reply
  • Duvie has a feeding tube and a trach, since Oct 8, 2009. Seems I'm always giving advice on feeding tube problems, but never talk about trach issues. Duvie doesn't care for most respirtory nurses to suction ...

Keeping Hydrated During Hot Summers

Duvie
  • By Duvie · New reply 4:37 am
  • Journal · 8 replies
  • We all have to realize that it is more difficult for many patients to stay hydrated during warmer or hotter days. Many patients have a caregiver to help. Caregivers, such as Jo & I, need to be aware of ...

advice please

LaurelD491
  • By LaurelD491 · New reply yesterday at 9:24 pm
  • Discussion in Living with Crohn's · 1 reply
  • Hi everyone, I'm sitting here not sure if I'm in a flare or if all of a sudden I've gotten every side effect possible from my medication which is apriso and I'm a bit at a loss of what to do. I didn't ...

Starting remicade

tbird0714
  • By tbird0714 · New reply June 17, 2013
  • Journal · 5 replies
  • Tommorow I will have my first remicade treatment, kinda nervous about it . I have heard that it really helps some people,then I have also heard stories about severe allergic reactions. This is really ...

Five million

Brian
  • By Brian · New reply June 17, 2013
  • Journal · 243 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

All of a sudden

Rain2kids
  • By Rain2kids · New reply June 16, 2013
  • Discussion in Symptoms · 1 reply
  • I was diagnosed with Crohn's a very long time ago and had two resections. I never really had any real issues, my Crohn's only acted up when my intestines started narrowing with the results of my surgeries ...

eye issues:

elisheva6
  • By elisheva6 · New reply June 15, 2013
  • Discussion in Living with Crohn's · 10 replies
  • I developed a sudden possible eye infection with cornea sloughing of my left eye. The specialist thinks it might be autoimmune related to crohn's. She took cultures to rule out bacterial and fungal dinfection ...

Medical Marijuana

Reena2
  • By Reena2 · New reply June 15, 2013
  • Discussion in Treatment · 2 replies
  • Hello, I have just caught a bit of "The Ricki Lake Show". The topic is medical marijuana, administered via pill, juice, in foods.... Of course all the people on the show swear by it for their cancer related ...

Iron infusions do you guys have to get them?

Kristy_in_Houston
  • By Kristy_in_Houston · New reply June 13, 2013
  • Discussion in Living with Crohn's · 1 reply
  • I have had one two rounds of once a week iron infusions for 10 weeks at a time. Then today will be my 3rd treatment with the fereheme treatments, it's like a mega dose of iron. I also had to recive a ...

Gutsy Walk 2013

budd002
  • By budd002 · New reply June 12, 2013
  • Discussion in In the news · 5 replies
  • Hello everyone, Hope this post finds you all feeling well and flare free!!! I just want to share the link to my Gutsy Walk for Crohn's and Colitis Pledge page with you all. I will be doing the walk again ...

IV Drug Shortages

lilpeeps
  • By lilpeeps · New reply June 12, 2013
  • Journal · 5 replies
  • I am asking a favor of everyone that has ever been on TPN or known someone that has been on TPN to please go to the Change.org link below and sign your name. We are almost to 2600 signatures but we need ...

Surgial Options Webinar

lilpeeps
  • By lilpeeps · Posted June 3, 2013
  • Journal · 0 replies
  • I have seen this webinar, it is a great overview of all the surgical options for intestinal failure and of the different types of intestinal transplant. Including diagrams and surgical pictures! It is ...

doctors

dodgebabe21
  • By dodgebabe21 · Posted June 3, 2013
  • Journal · 0 replies
  • So I'm going to see another GI doctor soon and also my OBGYN doctor too. Hoping everything will be okay to start a family ...

Inspire, Inspire, Inspire

Jer_
  • By Jer_ · New reply May 31, 2013
  • Journal · 25 replies
  • Inspire, you do know people here will have withdrawals during downtime to update the site ...

i want to swim

rainbatgirl
  • By rainbatgirl · Posted May 31, 2013
  • Discussion in Treatment · 0 replies
  • I don't know if this was as closes they could find to my diagnosis but I have ultra short bowel syndrom.I have a ililyostomy an I also have a central line. I have looked for something to wear ..water ...

Out Foxing the Fox (meds clog)

Duvie
  • By Duvie · New reply May 31, 2013
  • Journal · 6 replies
  • Hello Everyone, After the second consecutive day with tube clog from Nexium, I decided to out fox the villian (Nexium) instead of reaching for my DeClogger. Three days ago I placed a zip-tie stabilizing ...

Great News about IV Drug Shortages!!

lilpeeps
  • By lilpeeps · New reply May 31, 2013
  • Journal · 4 replies
  • This was just released by the FDA...they are allowing important drug shortages to be shipped into the US this week! Although it doesn't address the long term issue, it does help in the short run! Lilpeeps ...

ROUND #1 with a DeClogger

Duvie
  • By Duvie · New reply May 30, 2013
  • Journal · 4 replies
  • Hello Everyone, Just had my first battle with the screw part of a DeClogger breaking off in the feeding tube. It was difficult and took me an hour to gradually maneuver the tip back up through the tube ...

Crohns or NOT?

brooks2012
  • By brooks2012 · New reply May 28, 2013
  • Discussion in Symptoms · 12 replies
  • Hello I am new here my friend introduced me to this site and said it may help (I hope so). I'm gonna tell you a story and would love any kind of feedback. My husband who is 57 was working one day and ...

It's Done- Now to a New Beginning

Jer_
  • By Jer_ · New reply May 26, 2013
  • Journal · 20 replies
  • The procedure, as planned, was done exactly a week ago today. I woke up feeling good and continued to feel good throughout most part of the next 72 or so hours with having a very minimum of pain medication ...

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