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Living with a connective tissue disorder
hi
- By motherinpain · New reply November 10, 2009
- 3 replies
- we need to start some sort of foundation for people with mixed connective tissue disease.im tired of people not knowing what it is.it is time people understand what it is .like they know what lupus is ...
will work for health insurance?
- By Jacquieness · New reply October 25, 2009
- 2 replies
- Does anyone out there with severe symptoms able to hold down a job? I am half way through my graduate studies and realized I am in the wrong field for someone with all my hand problems. I have never imagined ...
What Helps?
- By mystory · New reply October 20, 2009
- 3 replies
- Hello I am 25 years old and was diagnosed with UCTD about two years ago. I am still struggling with how to live with this disorder. I find that I am getting depressed a lot off and on and that I fear ...
Anybody out there?
- By avasmama · Posted October 12, 2009
- 0 replies
- My daughter Ava was diagnosed with MCTD last month. Her symptoms were joint pain/swelling with a high fever. We were sent to Children's Hospital because our family Dr suspected JRA. The Rheumatologist ...
Prednisone and weight loss
- By VB · New reply September 23, 2009
- 4 replies
- I've been taking Prednisone for nearly 10 years. I am on a relatively low dose 12mg a day but I have gained a huge amount of weight. I've tried going off the Prednisone numberous times, but each time ...
what to tell people
- By motherinpain · New reply September 17, 2009
- 12 replies
- how do you explain your disease to people since really no one has ever heard of it ...
May is Ehlers-Danlos Awareness month
- By looselinks · New reply September 4, 2009
- 2 replies
- EDS is probably the least known or misdiagnosed of all the collagen disorders. Approximately one out of every 5000 people have it in some form. The three major types are Classical, Hypermobile and Vascular ...
Local Support Groups
- By lioness_aurora · New reply September 3, 2009
- 7 replies
- Hello, I have had undifferentiated connective tissue disease for 7 years and I am ALWAYS in pain. I could really use an in-person support group, but can't seem to find one by searching the web. Does anyone ...
MCTD Please help!!!
- By mrs_confused · New reply September 2, 2009
- 4 replies
- I am new here, I have been on a support group before for Lupus...I found it helpful. Last June I was diagnosed with Systemic Lupus, and Discoid Lupus. All my life I have had medical problems, been to ...
Antibiotic Therapy is working for me.
- By neatolokey · New reply July 22, 2009
- 4 replies
- Hey Everyone I am a newbie! I have had a horrible couple of years from one doctor to the next, as many of you I am sure. I have had 5 ER visits, 3 week stays in the hospital, every GI/blood test possible ...
Paraffin Spa
- By Katsdragn · Posted June 5, 2009
- 0 replies
- I bought a paraffin spa. The heat really helps with hand pain, the wax moisturized my skin and I got a real surprise when it pulled out a calcinosis bump I had on a knuckle. It is a real blessing when ...
Dealing with Social Security for disability
- By jhack38 · New reply May 28, 2009
- 6 replies
- Social security lists Connective tissue disorders as a condition to recieve disability but when you apply they tell you that your condition is'nt considered disabiling. Not only do we deal with cronic ...
Always cold
- By Emm · New reply May 22, 2009
- 1 reply
- Hi all, I have a connective tissue disease mainly with symptoms of of becoming very cold very quickly and losing all circulation and color in my hands and feet. I have endured cancer in various parts ...
Pets...they are a great comfort
- By VB · New reply May 19, 2009
- 5 replies
- I notice that several members of the support group have pets. I have a cockapoo, Lucy, that will be four years old in June. She has a great personality and next to my husband, is my best friend. I am ...
Comfort Measures
- By VB · Posted March 18, 2009
- 0 replies
- I'm new to the group and very happy to find others who are dealing with MCTD. It's nice to have a discussion with someone without having to explain what MCTD entails. Sleep disorders are common with this ...
