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Journals

How do you accept your diagnosis?

LittleDudesMom
  • By LittleDudesMom · Posted November 20, 2009
  • 3 replies
  • I am new here and relatively new to my diagnosis too. It's only been about 18 months since I was diagnosed with UTCD. I am very susceptible to inflammation over my entire body (my skin feels too small ...

Do you know your hands are soft?

M_McF_M
  • By M_McF_M · Posted November 19, 2009
  • 4 replies
  • This was a rhetorical question; of course I know my hands are soft -- I've been holding them out for weeks now for my friends and family to touch, and squeeze. It's such a simple thing, but such a delight ...

swine flu

meriterry
  • By meriterry · Posted November 18, 2009
  • 0 replies
  • My daughter let us know that the doctor told her husband not to come into the doctor's office, and to assume he has swine flu due to symptoms he reported. He has headache, achy, fever, coughing, but unless ...

Water or Coke? (or rather any carbonated drink)

meriterry
  • By meriterry · Posted November 18, 2009
  • 13 replies
  • This was sent to me by a friend: Focus on the hydration thing....... Water or Coke? I could not believe this..... Very interesting WATER #1. 75% of Americans are chronically dehydrated. (Likely applies ...

finally a small glimmer of hope!

dizzybee
  • By dizzybee · Posted November 17, 2009
  • 7 replies
  • went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...

Cold Outside

artickat
  • By artickat · Posted November 17, 2009
  • 1 reply
  • I think it hit 50 degrees today, but to me it felt more like 20. My hands and knees are purple and swollen. Every movement hurts so bad I could scream. I do not know what I am going to do once winter ...

Thanksgiving Day Dilemma

sjess
  • By sjess · Posted November 16, 2009
  • 9 replies
  • What do I do for Thanksgiving day? I've been invited to my brother's family get-together which is over an hour away. There will be quite a few people there and children. And then I'm supposed to sing ...

MCTD

artickat
  • By artickat · Posted November 15, 2009
  • 1 reply
  • Hi, my name is Ashley, I am 23, and have just recently been diagnosed with MCTD. I was wondering is there was anyone out there that can give me some advice from their experiences, there is little to be ...

Are White Skin Spots Scleroderma?

sjess
  • By sjess · Posted November 15, 2009
  • 6 replies
  • Over the past year, my forearms have had skin erruptions that turn into a thick patch of skin. Of course I pick at the patchy stuff and it turns into a sore. It takes quite a while, but eventually the ...

My Website's Up

sjess
  • By sjess · Posted November 14, 2009
  • 2 replies
  • I put together a website for my singing. The address is: http://web.mac.com/s.jess if you are interested. There's a video on the site of me singing. Was worried today about fellas stopping over tomorrow ...

Dr. Hastings

meriterry
  • By meriterry · Posted November 12, 2009
  • 3 replies
  • Dr. Carl Named to CRN Board of Directors. Reliv Vice Chairman and Chief Scientific Officer Dr. Carl Hastings has been elected to the board of directors of the Council for Responsible Nutrition (CRN ...

Can't Keep Up

sjess
  • By sjess · Posted November 11, 2009
  • 11 replies
  • I look around my messy, dirty house and feel frustrated and overwhelmed. I get up to do something, and my leg muscles are weak and I'm quickly out of breath. I don't want to spend all my time cleaning ...

Looking for a MCTD support group

sjess
  • By sjess · Posted November 11, 2009
  • 5 replies
  • Hi. I'm new to this goup (11/09). A gal with Parkinson's Disease suggested to me last night that I find a support group. She belongs to an in-person one and it has helped her a lot. So here I am. There ...

Complaining

Pawndy
  • By Pawndy · Posted November 10, 2009
  • 18 replies
  • It has been over a year since I was able to sleep in a bed. My husband has been commenting on how he wishes I would sleep in bed again. Since I am on so much pain medicine I decided for my afternoon nap ...

Surprised the Neurologist Today

M_McF_M
  • By M_McF_M · Posted November 2, 2009
  • 17 replies
  • The last time I saw my neurologist, he offered me pain medication, when I hadn't complained of pain. The time before that, he told me I had a definitive diagnosis of FSH muscular dystrophy, and that physical ...

Angela Martinez- "That's Who I Am"

angelacountrystar
  • By angelacountrystar · Posted November 1, 2009
  • 1 reply
  • First of all I would like to introduce myself to everyone before I start telling you my story. Actually it's a continuing story because I am young and I have so much more to experience in life before ...

Out Damn Spot!

dizzybee
  • By dizzybee · Posted October 31, 2009
  • 6 replies
  • have been having trigeminal neuralgia (fancy word for pain from Hades) since around Sept. 23 -- been to ER twice one shot of dilaudel and next time a shot of morphine. Finally got an MRI -- i basically ...

Flu Shot

Pawndy
  • By Pawndy · Posted October 30, 2009
  • 9 replies
  • I have four doctors and so far I have called three of them and they do not have the flu shot medicine. They have told me that the government has made it to difficult to get it. Monday I geuss I will call ...

Find A New Dr

jolenegs
  • By jolenegs · Posted October 29, 2009
  • 4 replies
  • I've learned more about my disease from this site and everyone here than from my rheumotologist in the last year and half. I've noticed muscles or tendons or whatever tightening up in my mouth or cheeks ...

Dentist appt.....Are you kidding me??!!!!!!

Terri9967
  • By Terri9967 · Posted October 29, 2009
  • 21 replies
  • Ok.....went to my new dentist yesterday. After sitting there for 45 min and not being called, I approached the front desk and ask how much longer it was going to be? She told me that the phone repair ...

Group leaders

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