I've learned more about my disease from this site and everyone here than from my rheumotologist in the last year and half. I've noticed muscles or tendons or whatever tightening up in my mouth or cheeks or whatever; dr never said anything about this. I have constant stomach problems; dr has no comment when I try to get some answers. And the thing that bothers me most is she told me and I've read here and everywhere else that an echo of your heart once a year is really important, but she says she doesn't think I need another one. I had the first one a year and a half ago and thought it was just like a baseline or whatever. Sometimes my heart just pounds, tho. I can be completely inactive and it feels like its doing flip flops in my chest. Don't know if I'm being paranoid and it's not really that unusual. Or maybe it's because I need to get more exercise. Not sure. But I don't have a lot of confidence in this dr.



